Addison's disease

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I got diagnosed with Addison's about 3 weeks ago after going into adrenal crisis. I'm doing really well but find that I'm awake very early,usually stir about 4am then can be wide awake from around 5.30am. Should I take my morning meds as soon as I wake or should I wait? Many thanks Lorraine x

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  • Posted

    Hi, i wouldn't take it that early unless you are going to be getting up for some reason or are feeling unwell. I've had Addison's for 12 years and there have been times when I've been awake during the night for various reasons but never have needed to take my medication. If you do then you would likely need extra medication to get through the rest of the day. Hope that helps

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  • Posted

    Hi Lorraine

    I agree with Gillian and based on my 50+ years experience you should

    take your tablets at the normal time each morning. However I wonder if

    your disturbed sleep might be being caused by you taking your other

    tablets too late in the evening. It is easy to forget them in the afternoon/ early evening and then to take them with a late drink just before going to bed. This isn't generally a good idea.

    Good luck

    John

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    • Posted

      Hi John I take my last tablet around 6pm,what time do you think is good for morning meds? Kind regards Lorraine x
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    • Posted

      Lorraine W

      Your morning meds should be taken as soon as practical after getting up. When I was working that was 0700, now I'm retired its nearer 0900. !800 is fine for your last dose; I tend to take mine with a cup of tea about 1630. I think the important thing is not to get too hung up on precise times but to find your own reasonably regular pattern/habit for taking your meds.

      Best wishes

      John

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  • Posted

    Hi Lorraine

    I was diagnosed with Addisons about 4 weeks ago after a serious adrenal crisis. Major shock to me and my poor family but I'm out the other side now.

    I take my meds at 8am midday and 6pm and I too also can wake at 4am quite often but I put it down to being in intensive care for a long time with docs and nurses coming in all the time but also our bodies are adjusting to this new condition so it's bound to muck up some things.

    I wouldn't change your med times, certainly not before speaking to your specialist.

    All the best for the future Amy

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    • Posted

      Hi Amy thanks for that,it was a total shock to me as well to be diagnosed,as I was convinced I had a really bad virus finishing up as flu. I will hang on until about 8am for morning meds. Kind regards Lorraine

      Ps keep well x

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  • Posted

    Well, I started on 100 microgrammes of Fludrocortisone, but at the moment am on 25. I record my blood pressure every day and my long experience is that if my blood pressure gets too high, generally a day or two after a 'few' drinks, then I wake early. Alright, you probably won't find any research on this, but I am confident of this. I try to generally keep my 'discounted' average blood pressure below 125 and if that means reducing the dose then I don't hesitate. I have spent spells on no Fludrocortisone. One's blood pressure does not plummet, it takes a few days for any change to occur. The only time I have deliberately increased the dose is if I am going on holiday mountain walking and I judge that I need my blood pressure to be at the upper end of my chosen range (115-125), else I can't climb as fast as my general fitness would otherwise allow.

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    • Posted

      Thanks for this it's all very new to me at the moment and I've jet to have my first appointment with my endocrinologist. I have ordered a blood pressure monitor so I can keep an eye on it.

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