Adenocarcinoma and TAH

Hi Lynn, thanks for your words of comfort. My surgery is next week Wednesday and I am very worry now. After gather informations from Internet, I am more concern about complications after op. Hope you can share some of your experiences or what I could expect post op? Did you suffer any complications and may I know did you remove ovaries as well? Doctor said mine most probable stage 1 but to a certain at what sub category or whether it spread to limb nodes will be another concern after TAH.

Many thanks for your reply....

Hello again Sue - Re the internet, try not to read patient websites at this stage, you have enough to deal with just getting through the whole diagnoses and the fear of surgery.  Only complication I had was that traumatic change of life, it was truly horrible, but once they realised what was going on they put me on HRT and that brought the whole change back in my control, and I was very slowly able to step down over about 2 years with my GP's help to taking no HRT. Yes my overies were taken, you are realiant on the surgeon to save or not, with cancer, I would think, that saver to go.

One thing they did tell me, was our uterus or womb, is really self contained so you can carry a baby, and endometiral cancer is so slow growing, (I assume thats what you have) only in rare cases does it get dangerous before they find it, in some ways the younger you are the better, much more dangerous in a lady who has passed change of life and starts bleeding again, and ignores that bleeding for some time.

Hi Lynn, yes I should listen to your advise on avoiding the Net but let me finish compiling list of questions I wish to ask my onco gynae this coming saturday before my op next wednesday.

I was also bleeding profusely like you that warrants an admission to hospital due to low hemoglobin. My 1st D&C result could not ruled out adenocarcinoma and I requested for a repeat D&C and hysteroscopy which was done end of January. I was on Provera to control hyperlasia and even with that, my uterus lining does not improve much which lead to confirmation of adenocarcinoma in 2nd biopsy report.

I am 38 this year and this is one of the consideration to preserve ovaries. I am kind of scared to enter into menopause at this young age though the reality of not able to have a child do bring me tears.

Good to hear you are out from HRT too. I am asian and may I suggest you try chinese herb by consulting a herbalist?

 

Hi Virginias, thanks for your word of comfort and support. Mine TAH is next week Wednesday. Do share with me your post op experiences. I do want to know what to expect as my onco gynae does not seems want to tell me more. Are you concern too about pelvis prolapse? Does Doctor put belly band on to support or reduce belly swell?

Many thanks and be strong for speedy recovery!

Hi. OK. This is my experience, day 5 am.

Don't fret over the surgery. You won't feel it or remember er it. That is the easy part.

I have a long incision that goes around my belly button to my groin.

This was necessary in order to remove a huge cyst or tumor or whatever it is called. I saw a photo. It looked like a butternut squash.

Disgusting. If you are having laproscopic or vavinal, it should be easier.

It hurts to move because of my incision. There was a little nausea but they have great meds. Gas builds up and hurts, once again because

Of mycut.I am not even thinking beyond today regarding what issues

I will or won't have. Just getting through each day is my challenge. Re em er you have to do this. Ask for help, pray and try to stay positive. It is much harder than I imagined but it is day 5 and each day for make progress. I even laugh and crack jokes but it hurts go laugh!!

Hi virginias, Happy 5th Day.

Thanks for sharing. Ouch, I can imagine the incision pain you had with the horizontal incision to remove cyst (of what a size!).

The option of lapro or varginal op is out for me as my uterus lining biopsy result from hysteroscopy indicate a well-differenciated adenocarcinoma. Abdominal incision is the only option to check lymp nodes and organs. I wish to preserve my ovaries as doctor said it may be early stage of cancer.

You mentioned that 'it is much harder than you could imagined', and this means I should be more prepare for it. How is exercise to reduce leg cramp and backbone ache? Any good suggestions?

Fighting! and get well soon. :-)

 

Hi sue iwas in great physical shape before surgery because I am a distance lap swimmer.I also bike 30 minutes before swimming as a warmup. I didn't have leg cramps. They will wrap your legs in these massaging wraps which will feel wonderful. Anyways, I !like IIT. Some people don't. The back... You ha e to get up and walk around. That helps the back. My back is strong and I don't have lower back issues so the back has been mostly OK. I have lots of pillows everywhere to support head, neck, back, etc. Plus it is a hospital bed and very positional. I was given antibiotics yesterday as my. It was inflamed so today the pain is not excruciating when I walked. I had my first bowel movement toda

I was dreading it. But it was easy I was on strained food for 3 days and then switched to solids once the nausea passed. I eat all thee fruit and juice they put in front of me and salads. My bowel movements t was pain free;-) ;-) ;-) ;-) .

My cut is vertical also, not horizontal. Mostly when I am in just sitting it felt like a cramp. Stabbing pain and. I passed gas or walked or vgot in or out of bed. Move slowly. Take deep breaths. You think it will never end but it will. It's a big deal and it is overwhelming but you can do it. You are strong and you have no choice. My biopsy results on the cyst are not available yet but I have been encouraged by my doctor that I will be fine. I hope, above all, that you have a good doctor and that you have rapport with that doctor. If you don't find a different doctor. Feel free to ask me anything. Best of everything.

Oh my goodness! It takes 6 days before you could have 1st bowel movement? I think I better stock up probiotic supplements and lots of fruits before surgery. Are you still @ the hospital?

I was wondering why Doctor did not prescribe antibiotics for you earlier? Guess you are still on painkiller for the stabbing pain. I read from another hysterectomy group support that there is something called abdominal binder that will help reduce pain and swelling. Perhaps we could try that (if your doctor haven't put one on you).

I may suffer more pain than you as physically, I am not as healthy as you. All I had for exercise is maybe 20 mins yoga or treadmill 4 times a week and walking my dogs during weekends. With no exercise after the surgery, my back should be quite sore with stiff neck/shoulder. Am wondering whether can we do simple stretching exercise (i.e.: pulling leg and shoulder muscle with terra band)?

I am preparing questions to ask my oncologist gynae for my next appointment before surgery.

Virginias, do take care and let's keep each other updated on progress. Fighting!

It took me 6 days but I was on liquors ds 4 of those 6 and it didn't feel bad. Don't worry. I have no problem with it now. Yes still in hospital until tomorrow.

You aren't going to want to do lots of exercise. Standing up and walking will help your back and eliminate gas. Walk walk walk and take gas relief tablets. You won't want to walk but it will save your back. Even my back is sick of the bed.

I didn't care for the abdominal binder. I tried it once. I think it would be good once the staples are gone but I am not finding it useful.

I had stabbing pain. My incision was a bit off even though my blood count was good and I had no fever. They put me on IV antibiotics and the stabbing subsided.

As you will read and hear it is a process. There are days that are tougher than others but there is always a better tomorrow!

Hi Virginias, prayers for you for your recovery and hope you could be discharge soon.

I am a bit shock that you are still @ hospital as doctor said it will be a maximum 4 days stay only (1 pre-op and 3 post-op). Maybe due to your vertical incision, you are staying longer vs. the horizontal cut. 

Wondering did you have a session with physiotherapist -- to brief what exercise could be perform for Week 1, Week 2 post-op?

Get well soon and keep posting updates!