Adenomyosis hysterectomy

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i have adenomyosis praying for a vaginal hysterectomy since we found it from the start...any experience with this?

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  • Edited

    Hi Kimberly

    i had this but didnt know until my histology report came back. I had my hysterectomy because of fibroids and constant floods of bleeding and loss of clots. The consultant that did my operation was shocked. He said that there was no wonder i was having problems. My womb was so large they had to take it out in two pieces. Its been a long recovery as I was expecting to have keyhole but ended up having to have a full abdominal. I must say that I'm finally getting back to my old self the op was well worth it.

    How did the detect yours?

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    • Posted

      I had a baby at 42, never had bad periods or pms no cramping no clotting nothing until about 5 months ago. Weird periods n multiple periods a month. I told my dr n she thought its perimenopause since I'm now 45...however she wanted to do a uterine ultrasound just to check. well ultrasound turned into biopsy which the only cure for adenomyosis is hysterectomy. I just got off a horribly painful 15 day period. meeting with the surgeon Wednesday.

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    • Posted

      good luck. you will feel better but you will need to take it easy for awhile. and it is very exhausting. they say rest but they never really say just how tiring it really is. so keep that in mind. if your going to stay overnight which I assume, bring a comfy blanket and pillow. trust me it helps. sending good vibes ❤

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    • Posted

      Hi Kimberly

      I can completely empathise with you i put my op off for work reasons and I will never put work before my health ever again. Its a difficult decision to make having a hysterectomy but its the best decision I made. It takes a long while to recover and you do need to listen to all the advice you are given. Believe me its hard sitting back when you're used to running at a hundred miles an hour every day but you do eventually come out the other end better for it. The support and care you get from the ladies on this forum is amazing, they really do help you along through a very difficult journey. Good luck sweets you know where we are if you need us x

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    • Posted

      I am extremely glad you addressed the work issue. Im in healthcare work a lot with weekend call. my career is huge responsibility in an emergent procedure area aka Cardiovascular catheterization lab. I've been trying to decide to go forward or wait. Im leaning towards just going forward and getting this over with.

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    • Edited

      Hi Kimberly

      As hard as it is when you care for others but, once in a while, you have to put yourself first so you can go on and care for others. Your condition isn't straight forward and you need to do what is right for you. I didn't realise just how poorly i felt until i was rock bottom. Look after you for a change and i sincerely hope you make the right decision for you regardless how difficult it will be. It is amazing,once you recover from the hysterectomy how more alive you feel. its a long journey but it has made me a better person xx good luck wednesday xxx

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  • Posted

    is there a chance they can do an endometrial ablation. removing all of the endometrial lining from the inside of the uterus? I would ask. I'm not sure if the tissue would come back or not. but I know the ablations are usually permanent. it is something to ask. I had a friend have it done but I'm not sure if that's the term used. I had mine for the opposite. endometriosis on the outside. good luck and try to breathe. its hard, I know.

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