Posted , 8 users are following.
I am a 43 year old female in good health yet I am dibiliated. I cannot walk or function. Here is my story and if anyone has any thoughts or comments, I would be most appreciative.
Background – had an emergency appendectomy in June, 2012. One lap incision was made on the left side. 6 months later, I had adbo swelling and severe pain in the same area on the left side. Imaging tests showed I had a 10cm*10cm cyst on the left ovary so it was removed as the Drs believed that to be the source of the pain and swelling. So now I have 2 lap incision points within 3cms of each other.
The pain and abdo swelling started to come back after a few months and has continued in that area for 2 years now, with ‘episodes’ of extreme pain lasting approximately 4 months at a time. In 2014 – the pain was severe from Feb-June, and it abruptyly ended with severe abdo pain and vaginal bleeding that took me to urgent care. They were not able to deterime the source of the bleed. The bleeding and pain eventually stopped the same day and the next morning, 4 months of pain was inexplicably gone and I was back to myself.
4-5 months of being myself and the cycle is now repeating but the pain is not only in my abdo, it is in my lower back, and has extended through to my left leg. I cannot walk without pain. Any small exertion – even going to the washroom – leaves me breathless and weak. I cannot do anything – I am not a wife, mother or worker.
My doctors cannot determine that there is anything wrong with me. On paper I am healthy as a horse – blood work, urine tests, colonoscopy, endoscopy, ultra sounds, xrays, CT scans and MRI have all shown no abnormalities with the exception of 3 bulging discs in my lower back which the drs don’t feel are contributing to the extreme pain I am in. Yet, they remain puzzled.
I have been tested for crohns, colitis, hernias, cancer, etc. All clear. My family doc has said she wants to stop investigating and concentrate on pain mgmt. She already has me on 3 percocets a day and it doesn’t’ even help that much. I don’t want to be stoned the rest of my life! I don’t find this approach acceptable at all since clearly something is wrong and it is getting worse.
I am desperate to get my life back. Anyone have any experience with adhesions causing this amount of debilitation and pain? My other thought is possibly coming from my brain ? I have had no tests on that. Since so much has already been eliminated, the adhesions is what I am thinking it could be since the source of the abdo pain is directly coming from the area between the incision spots. My husband can also feel a hardness in that area that is not present on the right side – we are not doctors so maybe it is unrelated but we don’t know.
I very much thank you for taking the time to read this long post and for any comments.
1 like, 9 replies