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Adrenal insufficiency and tapering

Posted , 12 users are following.

amkoffee
amkoffee

I've been sitting at 6 mg for several months now. Because of some back issues I've been having my rheumatologist wants me to stay at 6 mg for a while. Eileen has mentioned several times that the body produces its own cortisol at a certain level. I'm not saying this right but I'm going to try to get my point across. I know that she has said low levels of Prednisone are often lower than what my body can actually produce of its own accord. What is that level?

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  • daisylazy
    daisylazy amkoffee

    Posted

    Hi Amkoffee.I had tapered to 3ml of pred after 3.5 years when I developed chronic fatigue and now after two Sanachten tests three months apart my adrenals seem to be stunted .Havnt started anything new yet but I think the plan is to put me on hydrocortisone .They say it is more potent than pred and taken twice daily mimics the adrenals .Am off to the specialist on Wednesday so will post after that .I wonder would Eileen recommend advice from an endocrinologist before starting new regime .
  • amkoffee
    amkoffee

    Posted

    My GP is the one who diagnosed me and referred me to a rheumatologist. He refused to treat my PMR so I had to suffer with the pain for an additional 3 months until I could get in to see the rheumatologist. He told me absolutely nothing about the disease but during that 3 month wait I joined this group and learned so much about it that by the time I got to the rheumatologist I was well armed with information. It helped because I knew what questions to ask her.
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