Adrenal tumors
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I have 2 Adrenal tumors on each kidney. Can anyone give me information on this?. The doctor just said that she would just moniter their size yearily. Can anyone tell me how they effect a peson?
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Merryl david72297
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david72297 Merryl
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Merryl david72297
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david72297 Merryl
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Merryl david72297
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david72297 Merryl
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Anyway, last had 48 hr test too........still hush hush with findings....just said she needs to do ct ad ck once per yr. to see if too big.She said main symptoms minor bloating some??? My Endo is not saying something?????
Keep me posted. Thank and good luck
Merryl david72297
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david72297 Merryl
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joycemadine Merryl
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I am getting the same symptoms as you waiting to have a blood test for my cortisole levels x
Merryl joycemadine
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joycemadine Merryl
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joycemadine
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I am going to go private for a scan I am sick of waiting for docs to make there mind up seen the doc today and told him I wanted a refferral letter to have the scan . what do you think x
Merryl joycemadine
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Hi joyce what symptoms go you get. Mine was found when I had a CT scan when the Dr was looking for something else. I wasn't feeling very well for a long time before they found it. I am waiting for a CT scan anytime now. I also had an MRI scan as well just over a year ago so the CT will see if it has grown or not. About 4/5 weeks ago I had 3 containers for urine tests again, to see if the mass is giving off hormones. The CT scan should show up the mass but sometimes they are very small. What did the Dr say today?
joycemadine Merryl
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Merryl joycemadine
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Hi Joyce I haven't felt well for quite a while my spiking blood pressure was 200/110 and heart rate 132. I was not put on any medication until 6 weeks ago after a mini stroke caused by my high blood pressure. I was sent to the stroke clinic and was put on 3 different meds so feel better at the moment. I found out I had a mass 19 months ago after the CT scan. They are watching it at the moment so still waiting for another CT scan. Hope you have the CT done soon. The mass is slow growing apparently. x
joycemadine Merryl
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Merryl joycemadine
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joycemadine Merryl
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Merryl joycemadine
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You are welcome to keep in touch because you won't find many on this site with the same thing because it is very rare apparentlly. I phoned the endocrinologist secretary yesterday to find out if I have been booked in for the CT scan but she won't be back in until Monday. The endo told me I will have the scan in weeks not months but I have been waiting 3 months now. I need the scan to see if it has grown or not. Did your Dr give you a name for the tumour?
joycemadine Merryl
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I havent been diagnosed with a tumor yet thats why I need the scan .sorry you are still waitng for yours ,I do hope when you get the scan al will be ok xx
Merryl joycemadine
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joycemadine Merryl
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joycemadine
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Merryl joycemadine
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HI joyce, I live in S Wales near Caerphilly. My Dr's secretary should be phoning me tomorrow to let me know about the CT scan. I had an ultrasound about 3/4 years ago for something else but the ultrasound scan didn't pick up any tumours then so don't know how long it's been there.I read that CT or MRI are better at picking them up. .Are you on any medication?
joycemadine Merryl
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Merryl joycemadine
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joycemadine Merryl
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take care Meryl xx
Merryl joycemadine
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Hi Joyce, the secretary said i will get a letter in due course, so not sure when that will be. I would like to know the results of your ultrasound. I didn't realise you are having the scan tomorrow. I hope you get good news and don't have a tumour in your adrenal. Good luck x
joycemadine Merryl
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Merryl joycemadine
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Hi Joyce, so what is your next step. Have you had a 24 hr urine test to find out if your adrenal is giving off hormones. I had 3 of them over 3 weeks but don't know the results until I see the endocrinologist. I just seem to spend my time waiting for appointments and suffering too. I just spoke to my Dr on the phone and she is putting me on a different tablet because I am taking 2 a day but I am getting tingling all over my body with 2 tablets, but when I was told to just take one my BP went up again. So she is giving me another one that will lower my BP. So are you having a private CT scan or have you given up. x
joycemadine Merryl
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Merryl joycemadine
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joycemadine Merryl
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Merryl joycemadine
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Hi Joyce, Was wondering how you was geting on. Not good my end either. The secretary told me yesterday that the Radiographer said I don't need another CT scan which they normally do once a year. I had a telephone appointment with my GP today and she wants me to make an appointment up the surgery because I need blood tests as well. I had a text message this morning to see the endocrinologist at the hospital on 6th April. I will ask him why can't I have a scan. I didn;'t expect to have an appointment so quick. I got in touch with Spire hospital for the cost of a CT scan and it is £499 Hope you have some news soon x .