Adult suvivors of Rhesus Haemolytic Disease

Would this be the cause of us all being ill from our teens to later in life. I would be intrested on your views on this please.

My son was born early seventies prematurely. I only found out a year ago that I am rh negative blood group. I have three sisters all negative but had healthy banies because they were injected during pregnancy. Obviously I was not given the injections and I got sensitised during pregnancyand my body started to reject baby. He has all kind of health problems. Anemia, billirubin, bones break easily and at times extreme tiredness. Doctors never told me why my son was born early, they kept asking me why do I think baby was born early. I was very young and had no family aroud me. 

As a baby my son was crying constantly, I think bacause he was in pain. I have blamed myself for my son's health problems all these years thinking I didn't take good enough care of myself while pregnant. Doctors let me believe so too.

I was born in 74 and had blood transfusion and light therapy at birth.  I don’t know much else other than that I was orange.  Always low energy and stomach problems my whole life.  I was always shy and didn’t smile.  I didn’t want to run like the other kids and was bad at sports except for swimming.  Depression started at 13.  I’ve struggled with it most of my life and I’m now 43.  Gastrointestinal symptoms worsened in college and then got very bad after pregnancy and then after a surgical infection with PICC line antibiotics in my late thirties.  I have IBS, small intestinal bacterial overgrowth, and malabsorption.  I can’t work anymore because the gastrointestinal symptoms are too disruptive.  Towards the end of my pregnancy I developed an anxiety that has been hard to shake even with medication.  About six months ago I started experiencing extreme weakness and fatigue after physical exertion.  I have so little energy now.  I can’t walk very far and simple tasks can take a day to recover from.  I feel my body is falling apart and I have been trying to figure out why.  This thread is really enlightening and the connection to Rhesus is I have suspected for a long time as I always had that low energy that no one else in my family has.  The depression is genetic from my father’s side.  My mom’s side has some gastrointestinal issues but not as severe.

Mabe if you did forget to mention this its mabe worth letting everyone know.

The anxiety really makes sense - should we start a FB group? Contact the doc who discovered the antidote? I was that slow to run, awkward kid - had a very successful career but was disabled with ptsd / anxiety at 50 and have struggled every day to put my face on with the world and deal with, have you tried this diet or that supplement , etc. 

my older brother is healthy, never hospitalized and not so much as a doc visit beyond the flu. He thinks I am a hypochondriac. 

It is a comfort to know we are not alone or crazy - our med histories are so similar and robust.

I believe we all must be tired of advice, explaining ourselves and are ready for Ellen or Oprah w our stories - there has to be a connection.

I really hope this thread keeps going or we can find out more. I am now 63 born a rhesus baby , blood tranfuses, handed to a nurse and found starting after three months. Main issues is life long allergies with extreme urticaria all though life,  loose joints and endless back will nto stay up straight easily issues. So now my teeth are weak and bones fracture easily but most of all it is my eyesight. I practically died eating a piece of Lamb after 40 years and I am completely allergic to Antibiotics.. so I can never have surgery . I feel if I do not do something I will  loose my sight.   I have always wondered why no one was curious about my issues. I stay away from Dr;s. as much as I can .. there must be optimal diets for us. specific things that will assist us.. my fingers are now tingling and going numb.. there is no point doing issues by issue as there must be underlying causes 

I'm a 58 year old female who after being diagnosed with a muscle disease in 2010, had my Mother say to me .... "There's something your Father and I have never told you .... You were born RH Incompatible."  

I had never heard of RH Incompatibility.  I was born in 1960 but only learned of RH Incompatibility in 2010.  Since learning of Rhesus Disease, I've attempted to educate myself all I can but have found very little on the Internet and the finding of others born RH Incompatible, a difficult challenge.  

Growing up, I suffered with what was labeled Enteritis.  Enteritis is basically inflammation of the small intestine.  Sounds simple but was very painful for many years.   Later in my early 20's I was labeled as having Colitis and Chron's.   Fortunately I outgrew both by my mid 30's.  

The one paper I was able to find, through the National Institute of Health stated that it was known that those born with  RH Disease back then, suffered from an inability to absorb nutrients.  When I read this, I felt like I had hit the lottery.  In 2010, I had just been diagnosed with a muscle disease and told I'd be in a wheelchair within 3 years and that there was no hope and no cure.  I was desperate to find anything that could lead to a cure for myself and learning of an inability to absorb nutrients, was golden to me.  If I could turn my lack of absorbing nutrients around then my health would surely improve.  After 7 years of muscle weakness, once I applied the practices of eliminating toxins from my diet and environment, and eliminating foods that prevent nutrient absorption,  much of my muscle strength returned.  

Today, I continue on in my quest for optimal health and look forward to communicating with other Adult Survivors born RH Incompatible, prior to 1968.  

Geraldine

Please let’s keep this going.

Its amazing how so many of us have the same symptoms.

i was born in England in 1958

RH baby/ blood transfusion 

Age one tonsils out

Shy and insecure all my life.

Born with hereditary hyper ferritin cataract syndrome  . Ferritin are always in the thousands.

EBV,MTHFR,Lyme and so much more.

I am dealing with major joint pain,brain fog and weakness.  I have been to so many doctors it’s crazy.

I do think RH disease has made our immune system weak.

Sorry we all have to go through this.

Stay strong!