Adult suvivors of Rhesus Haemolytic Disease

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I agree that there is very little information about this condition. I was born with it and apparantly spent 2 months in an incubator. I would like more information on possible life long problems as a consequence of having this disease in infancy.

I am 34 and have suffered all my life with low immunity, fatigue depression and anxiety and general ME like symptoms. I suspect there is a connection.

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  • Posted

    hello everyone,

    I found all your subject of interest I am Australian.My mother O-negative.My father O+positve.My sister born 1969 in country hosptital me different country hospital 1970. We both have Dad blood group O+ mum was told when my brother born Brisbane city hospital in 1972.Mum was having issue with pregancy was told should have had injection before I was born 1970.My brother was breach birth the specialist doctor told mum that antibodies was showin up in blood test.My brother was born O-negitve no blood transfusion required. Girl O+ jurdice at birth. My sister and I have both got thyroid issiues Hypothyroidism sister need compound medication.Im ok so far on General Pracitioner prescription meds.Anemia/preeclampsia during pregnacy.I had hypertenion since? found at 16 years with first urinery tract infection. suffered UTI for 20+years 5 to 12 times a year.Sister asthma at 18month related to cow milk eczema as well disappeared on goats milk.Asthma for me when parts of day temputure drop below 12 degress.Sister and I have anxiety,osteoporosis,problem with ultra voilet rays get nerve tingling, sister get skin rash. I have Muscular spasm due to lack of magnesium.Great results with Magnesium cream internet recipes.I have high cholestrol don't known why? Eat all the right foods very healthy diet. Get plenty of exercise.I have had pneumonia 4 times.Kidney diease since 3years.Excessive pain when injuried.Injury takes longer than other people to heal.Need twice the amount of medication to get well.cronic hayfever. Rhinitis.environmental allergies. Fatty liver.Scoliosis we all have as siblings and mum. Done home work with homeopath found out through hair and saliva test what food to avoid chemical issues.Fatigue tried all the time.My sister and have eczema or psoriasis in our hair wearing a hat any time of year is unbearable due to heat develop itch.Make my own health and beauty products,house hold cleaners.My family origans mum side Germany,poland,Danmark,England.Hemangiomatosis is a factor.Mum has 9 siblings.They have live mostly to about 80 +years.Dad side are England Norway,Germany, orgins mostly lived until 90+ years.My husband is Gemany and England origans.B positve his mother was AB positive his father O positive.A friend told me AB are Germany origan as she is ABpositive.We both had AB,O incompatiblity issues with our children. My sister wasd born a mucus baby.Mucus covered all her internal orgain.Iridologist dignosed in her teens.Dad was all for Natural medicine.           

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    • Posted

      Empathy for all that you are going through and have been through and can relate. Glad you are your own doctor mostly.  Itchy head with hat.... ha ha recognise that one.. and many sensitivities, kidneys issues, liver issues, and the will to keep going.. whatever .. I too avoid almost all household products and make my own skin cream ..  issues with Calcium Magnesium balance, always cracked split nails always wondered how other women grew them.. . I will look up the magnesium cream.. thanks for that tip. Stay well and enjoy as you much as you can

       

  • Posted

    HI. I so relate to many of your symptoms. I am 63 about to be 64  and like some here having to spend lot more energy and time time keeping it all together . is anyone else in their 60's? 

    Right eye pupil does not dilate

    Allergies.. cannot now even wear a leather thong around my neck 

    Violently allergic to meat

    Avoid all allopathic medicines .. fatally allergic to Antibiotics

    Very weak teeth

    weak bones

    Have to keep diet extremely simple as digestive tract has periodically stops working .. cannot happily eat fats except Ghee or olive oil 

    Avoid Dr's .. rely on energy medicine, bicom and homeopathics and flower essences except in one extreme case ( bilharzia) allergic to anaesthesia ( 2 epidurals for caesareans had me vomiting all the next day) 

    memory and eyesight visibly worsening ( scuse the pun) 

    Otherwise I just keep going knowing I am very lucky to have gotten this far.. I never expected to 

    We do all seem to have similar underlying symptoms  

    Always wondered why no one ever interested. .. least of all Doctors and folks asking that when my whole body blew up after eating a piece of lamb after 40 years whether it was psychosomatic...   I stay off meds and just try to live through it.....I realise my liver hardly works.. even though tests show normal  

    anyone in their 60's or over? 

    • Posted

      Hello Sue

      If you look back through the replies you might find me.  Yes I'm over 60 - 75 in fact and did not have a blood change.  Problems with anxiety and depression throughout my adult life but am so fortunate that I do not have allergy problems and rely on anti-depressants a lot of the time which do work thank God.  Funnily enough I've been to the doctors this morning for a review of my medication and made a point of asking him about rhesus disease and he said yes he had heard of it.  It isn't in my medical notes simply because the NHS didn't start until 1948.  He was only mildly interested when I told him about this forum but hey - he had a waiting room full of people.  It was rather funny because he had to tell me to stop talking while he took my blood pressure as it would make it high.  That's one way to shut up your patients.  No he was very kind but what a shame that no research is done on this .  Try to keep smiling

      Best wishes

      Geraldine

       

    • Posted

      I need help. Im a rh disease survivor, possibly the oldest living. I have suffered all my life. Mom was rh- and dad rh +. I was transfused and incubated.

      Sick all the time. Exhausted. Diagnosed with Chrones, Fibromyalgia, Cant regulate body temps, arthritis, diabetes.

      Anybody else have this?

    • Posted

      I'm 62 and tried to talk to my Dr about it. he totally blew me off like everything is in my head. anyone hear have any autoimmune diseases? All my tests come back negative so I'm also have problems getting any diagnosis.

    • Posted

      Dear Geraldine.. you have inspired me.. .. let's have lots more decades to go...Sue

    • Posted

      Dear Steve

      I am so sorry for all your troubles. I do think we can all celebrate getting passed 60 in spite of all the odds. I am so inspired to hear that some of us have gone around the sun more that 70 times. How many times have you been around? I know most on this forum struggle with usually undiagnosed issues. I do think some whole integrative feel good 'therapies' like immune and gut supportive Aryuvedic adaptogen herbs, massages, Chinese Acupuncture and doing mindful exercise like Qi Gung, Tai Chi, simple yoga, walking in beautiful woods and countryside, gardening, doing what you love, laughing a lot and chuckling at our lot, with mostly simple healthy diets, all with deep breathing to oxygenate our cells, supports us. The problem with Western medicine is that it is categorised around specific organs and physical systems and so few are looking at the whole or for some of the deeper biochemical or gut flora issues that set off a lot of different symptoms. Regular blood and stool tests are not picking them up and sometimes synthetic medicines make some of them worse. I also think that if no one has been much interested in finding out about what our gestation and birthing created in 40 - 70 years, it is not going to happen now as hopefully there will be fewer and fewer of us. I so appreciate finding this forum. It makes me feel I am no longer alone and more determined that ever not be defined by my birthing . Stay well Steve ... I am sure you have the courage of a lion and do share and know you are supported.

    • Posted

      Hi Sue, I just turn 64 and was the fourth child. Mom called me her miracle baby. Spend the first six months getting those bloody exchange transfusions. I was sick most of my like cold, flue and whatever else was out there i got, which seems to be a problem with many of us. I often think how the heck I lasted this long. Should have been dead at birth and a number of times since. I feel for you and your health problems but for whatever reason we are where we are for a reason, I just can’t figure what that reason is? If you look at schizophrenia and rh disease you might find a similarity, I did. I started tai chi in 1991 and with out if i would be dead.

    • Posted

      Dear Douglas

      I am 64

      third baby..( Could have been fourth as some of my mother's medical notes record a still birth) transfused at birth and given to nurse.. found starving after 3 months etc

      I let myself go the last few months and have not done qi gung and it is a disaster

      So you just convinced me to get going again and to take care of myself as like Cheryl at 75.. you never know... here's a hug from me how blessed we are to have made it this far and my heart goes to all of those who did not. and I started doing some trampolining after seeing Mirela's post to get the lymph system going .. feeling so great this morning.. happiness to all....

    • Posted

      Hi Douglas

      My long reply with links to quite a few papers would not post

      Now when I receive the notice that someone has posted in this group the link in the email does not work and I have real trouble getting back onto this site and it is not listed in the communities. So in case one day I cannot make it back in, I do wish you all the very best. I wish we could have met up and had a party .. Keep well strong and happy and give everything you've got.

    • Posted

      Hi Douglas

      I cut a lot in case it was the length that would not post

      Exploding dying blood cells and lack of oxygen in the womb I think could lead to many things. Also there is such a shortage of studies, so I would have been very interested in a study that looked at our susceptibility to allergic reactions. Compared with us, there are some seriously whackey theories out there on rhesus negative.

      A good page to browse even without a science background is https://www.sciencedirect.com/topics/biochemistry-genetics-and-molecular-biology/rh-blood-group-system

      https://en.wikipedia.org/wiki/Kernicterus makes really interesting reading because for all of us who came out bright yellow and had to be instantly transfused it would make common sense that we had more than average bilirubin in the brain for some time prior to birth and then had to deal with someone else's adult blood before our systems were up and running .. most of us here will not have been as severe as to have full blown kernicterus or obstructive jaundice, even so I have always felt my most damaged main organ has been my liver. ...

      Of the 300 children examined ( including all the high risk) while 32 had abnormalities, 11 were attributable to Haemolytic disease. 4 had kernicterus, 7 had severe sensorineural hearing loss. Develop. Med. Child Neurol. 1974,16, 592-611 A Follow-up Study of Survivors of Rh-Haemolytic Disease W. Walker M. I. Ellis E. Ellis A. CurrN R. D. Savage R. Sawger

      It is a very interesting read and interesting to see myself as part of the statistics in Newcastle in 1954 . In those days they wrote papers on ' Rhesus deafness'

      https://profiles.nlm.nih.gov/ps/retrieve/ResourceMetadata/CPBBGL

      http://www.hrc.govt.nz/news-and-media/news/anaemia-womb-affects-adult-heart-health

      https://www.smh.com.au/lifestyle/fifty-years-two-million-babies-australias-role-in-a-remarkable-medical-success-story-20170906-gybtk2.html

      Great story

      https://adc.bmj.com/content/archdischild/38/197/54.full.pdf

      When I read all these papers, I realise most of all Douglas, how very very lucky we are to be alive and functioning, also to take care of our eyes, teeth, hearts, livers and kidneys as best as we can. It also seems that holistic complimentary medicine and mindful energy / breathing exercise seems to suit us very well.

    • Posted

      Hi Steve!

      What can I say, except : yaaa! At almost all your illnesses ! And I am ill since my childhood. Now I am 44 and pack-up meds, just to be able of making through the day! Exhaustion is my biggest enemy!

      Best of luck and blessings from Chile!

  • Posted

    Hello Everybody!

    I hope that my email will reach all of you!

    I am not sure how this site works, please advice!

    BECAUSE WHAT I HAVE DISCOVERED SHOULD BE SHARED WITH EVERYONE ON THIS PAGE !!!!!

    My discovery could save most of us!!!!!

    The lymphatic system is not working proper, therefore, is affecting everything else!

    I made the discovery by accident, ofter I went twice to a Chinese Dr.

    First he drained the lymphatic system, through a antic method of suckers(in Spanish are called ventosas)

    I have felt like sleeping and I barely have gotten to my home- I have slept for 18 hours, uninterrupted.

    Another time He performed just a massage. I have felt very ill! I think, because of dispersing the toxins into the body.

    I have tried at home the same treatment with the massage, made by electric massage machine- BUT when I was in the period time. All toxins came out, and I felt so much better. I try to make a point in the monthly massage. My health has improved.

    I am looking forward for your help with the propagation of the message.

    Thank you !

    • Posted

      Hello Mirala

      Sorry to hear your sad story but good news that the Chinese doctor has helped. I am a bit of a sceptic about such cures as I feel that if it was that easy to diagnose our GPs would take these practices on board and use them within the surgery. However, having said that I know these cures work for some people and I'm so glad that you are feeling so much better. I was born in 1943 before there were blood changes so was given little hope of survival but did neverthe less. Life has sometimes been an awful struggle but I am here at 75 and still living to tell the tale. With all best wishes Geraldine

    • Posted

      Thank you very much Geraldine!

      I wish you many more years of life, but a better, healthier one!

      I know that the western society is skeptical to other forms of treatment out there, practiced for thousands of years, with actually good results...

      I just need to mention the fact that I was born and educated in Romania, have lived in South Africa( where Also is a very well known medical school), now for the past 10 years, I am living in Chile, and I have had my fair share of doctors visits, operation, etc.

      But, there is Always a but: there is no pecuniary gain for the massive pharmaceutical industry, nor for the western doctors, to apply ancestral medicine, With actually results!!!

      Love Ya All brothers and sisters in suffering!

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