Adult suvivors of Rhesus Haemolytic Disease

I am so stunned to find this thread. When I was a toddler I had black teeth my siblings called me pirate baby. I was always very stiff and hyper so they also called me cable..,, when I was in school I was in special ed the entire time for audio processing disorders even though they said I had a very high IQ.

I’ve had bizarre health issues my siblings did not have. I started to go into kidney failure when I was four. I have narcolepsy but that’s just genetic. And spinal stenosis.

A couple of months ago I was diagnosed with MS but the doctor said she’s had 3000 patients and has never seen a presentation like mine. I just have intermittent symptoms. I still like to run and I do work for therapy. Is these bizarre symptoms familiar to anyone else?

i was born in 1974 . i was looking for information tonight as i was diagnosed with microcytic anaemia last year and currently having problems with a high white blood cell count . My mum always told me about having my blood changed when i was born and in an incubator for a few months and that i was really seriously jaundice. She is rh neg and im rh pos . i have had strange things over the years and she always thought it was down to the problems from ehen i was born. looking back i can see i am ocd with certain things and go over and over and check things a lot, and i always did that to remember things. the fatigue was always bad and i really enjoyed sports so would almost collapse in a heap by about 7 or 8 in the evening. i just thought i was lazy and tried to fight it. but recently it is sooo bad and now i have this brain fog as i call it. i am so glad i found this forum as now i dont feel so paranoid and other people are experiencing similar problems. i hope all the parents with children suffering with similar problems get all the help they need as your kids will need all of your support.

I was born in 1971 , a Rhesus Baby who had a full blood transfusion at birth. I was the second child of a AB negative mother and a postive O father. I had jaundice and I was baptised in the hospital. I had always been very healthy child apart from a turn in my right eye, which notably a couple of other people have mentioned on this forum. At the age of 30 I was diagnosed with Polycystic Kidney and Liver Disease. No-one in my family has ever had this disease that I know of. I remember asking my Renal Consultant if there was a link to being a Rhesus Baby as I thought, 'how come'? and it was dismissed. I do suffer from fatigue which I believe is part and parcel of my illness. After reading people's accounts here I do wonder if there are certain conditions that could be linked and I do question whether there is little or no research on the long term effects if any - which could be due to the fact that the anti D injections are given now to prevent the need for a transfusion. Or do such conditions crop up in general?

this post really caught my eye!!!! i am ab rh neg ....apparently rarest blood type in the uk. a client asked me if i have looked into the adult affects of rh disease during my birth. Same as you massively premature and spent from birth till the day the doctor's had to say...longer on life support in a skiboo will end up with the same result... so either i took my own breath or i wouldn't. I however have bar pneumonia a few times in my first few years have not suffered immunity wise at all.......after 27 years old ...fatigue depression ,anxiety set in but i know thats likley down to my personal life i think ( or what i put it down to). for me i cannot put on weight even eating 20 meals a day lol ...if im left to sleep i will without waking, honestly i could loose days if i was probably able.

i suffer from high blood pressure like my mother tho. Not as bad as hers i think the only time she actually levelled normal was first pregnant weeks\months of me till our bloods collided lol. i think my blood pressure readings are usually around sys 147 dia 100+ p 80+

im 35 now and i never thought id feel this fatigued ...lifestyle is easier... keeping healthy ...eat well....yet cant put on weight tired all the time ...cant remember the last time i was ill.. hence stumbling across rh disease...not sure if AB RH negative ...even falls in the category being so rare but hay!!!! wishing you all the best xxxx

My parents were young when they had me and I was the second pregnancy, my sister was only slightly jaundice. I was born in 1966 and was an RH baby. My mother always told me the story, it was a year before rhogam was in use. We were the first to have an amniocentesis on LI, and my dad had to drive the fluid to the lab to be analyzed, lol. My mother engaged with an excellent doctor. 3 weeks before Mom was induced and i was born. I was slightly jaundiced and had 3 transfusions, blood donated by my fathers friends, someone didn't eat lunch and I convulsed, times were different no testing of the blood and you used the blood that was donated, crazy I know. They watched me for a long while and except for being a spoiled brat, I was and have been very healthy. I had been researching the topic when discussing it with my husband and came upon the many ailments that others have experienced. i can honestly say i have never suffered depression, or debilitating anxiety. I suppose I was lucky.

I'm late to the party. I was born in 1988 to an Rh- mom. No shots given, and my twin died in utero. I have lots of health issues, and most that are "idiopathic" that I was beginning to think I was crazy, until I remembered my mother telling me they forgot to give her shots when she was pregnant and she didn't know any better. I guess some of the fun things I deal with are:

Severe Fatigue

Muscle Cramps

Muscle tremors

Seizures

Memory problems

Concentration Issues

Joint pain/swelling

Dyslexia

Depression/Anxiety

OCD

Migraines

Pineal Gland Tumor

Endometriosis/PCOS

Poor tooth enamel

Weight issues

My bloodwork often comes back like i'm a healthy runner, and the doctors look at me like i'm either crazy or they have no idea what is causing anything. I've had so many tests, and studies done, but nothing.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5297634/

HI Everyone

I hope you are all ok and thriving

With COVID this went very quiet

It seems I may have PoTS

So was curious at finding this article and thought to share it

There is so little research

Although research on RH - HDN at birthing continues

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8504549/

I will follow up with some researchers as to why no one considers Adult survivors

Take care

Sue

Throwing my hat in the ring - I was born with this in 1980, jaundiced, had blood transfusions and mum said I nearly died. She was RH- and dad was RH+. Not sure what that makes me but in the military I wore a tag which said I was A pos but then on my medical documents it said A.

Had severe childhood asthma which disappeared as a teenager, eczema all my life, sinus issues and severe allergies.

As an adult I've got depression, anxiety, eczema, sensory processing sensitivity SPS, body temperature regulation issues, I overreact, am highly emotional and reliant on cannabis edibles. Oh and someone else described their heart suddenly starts racing for no reason - I get this too, often. Also periodontal disease where my teeth are fine but the gums aren't. Extreme menstrual fluctuations that directly coincide with my emotional stress levels. Also another person mentioned a lot of psychosomatic illnesses with no physiological cause.. Me too.

So I'm starting to experience muscle soreness, weakness and joint pain. Hands and feet, shoulders and neck mostly.

Am going to try twice daily relaxation and meditation. I already to daily gently yoga and if I let this slip, I get sore straight away.

I'm 43 and I do enjoy life when it runs slowly and at a pace I can handle. If things speed up or people treat me callously, I tend to crumble.

Have been diagnosed with BPD but I don't feel it fits.. to be honest I feel that is a made up diagnosis for something that psychiatry isn't ready to accept - Highly Sensitive People. But I digress.

i was born in 1959, i was the second born . Mum didn't know she was rhesus negative until a week before i was born. I had a total blood change as i was jaundiced and anaemic. i am A+.

i have always been anxious, but didn't really have health probs until adulthood. I have had problems with kidneys, constant tiredness, occular migraines, dental problems and other vague symptoms. i have been tested for auto immune disease but tests always come back inconclusive.

I have always wondered if my condition at birth has had any bearing on my health now.

https://www.palomar.edu/anthro/blood/Rh_system.htm#:~:text=The%20greatest%20problem%20with%20the,Rh%2B%20(DD%20or%20Dd).

Useful explanation

I had not realise we were transfused with Rhesus Negative blood at birth and they do not say how long it takes for us to get it out of our systems

I was looking for answers also. My Grandmother was RH negative, 2 babies died, 2 had serious problems. My Mom was RH negative like her Mom and seemed OK, she died of Melanoma at 24, I was also born RH negative, but they gave me a transfusion because my blood type did not exist, I am O -, this was 1962 in TX. I had 5 kids first and fourth ones have my blood type, the other 3 have had serious medical, mental issues. My youngest Daughter was bipolar 1, borderline personalty diorder, ADHD. Very bright straight A's in school, until all her issues kicked in. She had cysts everywhere, and on her ovaries and had 2 surgeries. She had endometriosis, was anemic and a host of other pains. She killed herself 06/05/2023 and I am struggling to cope and figure things out. She was 34, I have a Son 38 that has all the same mental issues, yet my first and fourth kids with my blood type don't have these issues, yet. I feel like this could be completely my fault. Maybe some blood types just can't mix.