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Advanced prostrate cancer

Posted , 8 users are following.

mike_51753
mike_51753

hi a year ago I was diagnosed with prostrate cancer grade T4 Gleason score 4+5 started 6 monthly hormone injections with a three monthly check after last check a daily casodex tablet was added apart from weight gain and tiredness I feel fine I am 68 years  old I know no one can predict the future but has any one got any experiences to share many thanks Mike

 

1 like, 14 replies

14 Replies

  • supercargo
    supercargo mike_51753

    Posted

    Hi Mike

    ​I had PSA 7, Gleeson 7, staging T3b 2.5 years ago. I am 73.

    ​Went the Hormone, RT route, with good results, except for ongoing weight gain, and night sweats.

    ​My only suggestion is to keep up with all treatments. I am now off medication with yearly monitoring with oncologist.

     

  • Washie
    Washie mike_51753

    Posted

    Hello Mike ----looks as if we are on identical pathways. My stats  Gleeson 4+5. T3b Nl M1a.      1st PSA Sept 15 178 ---2nd Nov 15  19.    Next PSA reading in 2weeks.     What's yours and any prognosis?      Washie  73 years
    • mike_51753
      mike_51753 Washie

      Posted

      Hi Washie very similar mine T4 N1 Mib first psa was 26 2nd was 12 3rd was 4 but 4th had gone back up to 12 next check in March so hoping it's back down again apart from tiredness and some weight gain feeling fine hope all goes well with your next psa checCheers Mike
    • Washie
      Washie mike_51753

      Posted

      Mike.   Treatment at present    Zoladex only. Not offered rad. or chomo .not sure why.     Have you been offered either?     If not why not?                         Washie.
    • Washie
      Washie mike_51753

      Posted

      Mike---how did your last check up go? Good news I hope.                               Washie
  • FoxT
    FoxT mike_51753

    Posted

    Hi Mike

    My prognosis was exactly the same as yours. (Gleason 4 + 5, PSA 27)

    9 months of monthly hormone injections (Prostap) My PSA is down to .75 and 2 days ago my onchologist said , and I quote, "No resason you shouldn't stop long term planning, everything is excellent"!!

    so chin up, if you feel fine you most likely are. 

    As someone said to me, 'You'll most likeky die with the cancer rather than from it'!

    No plans to check out yet!!

  • dieter80046
    dieter80046 mike_51753

    Posted

    Hi Mike

    After a PSA of 16, biopsies and Gleason 9 (4+5), I had a radical prostatectomy by means of robotic surgery (Da Vinci). After some 6 weeks, PSA was checked and found to be 0.42. Another 6 weeks later it had increased to 1.34. I am now on hormone (testosterone depressant) treatment (TEVA BICALUTAMIDE 150, one pill daily) without any noticable side effects so far. Due to have PSA checked again at end of February. Am hoping that the increasing trend will have been reversed. Will let you know.

    Would be interested in how your PSA has developed and is developing.

    Good luck

    Dieter (76 yrs.)

    • mike_51753
      mike_51753 dieter80046

      Posted

      Hi Dieter my first psa was 26 after 3 months down to 12 after six down to 4 but at 9 back to 12 so 50 mg was added to the hormone injections except for tiredness and some weight gain feel fine my next check up and psa results are in early March even though it has spread to some bones I still work part time swim two or three times a week hope all goes well with your checkup 

                           Mike

  • philip1950
    philip1950 mike_51753

    Posted

    Hi Mike,

    my dad  was treated with hormone injections every 4 months. He did very well on this treatment and lived for going on 18 years after diagnosis.At the start of his treatment he was 69 yrs. He may well have still been with us but for getting pnemonia after a fall.

    Wish you well and hope that this treatment gives you many years yet.

    Regards, Phil.

    • Washie
      Washie philip1950

      Posted

      Very pleasing to hear someone lived so long just on hormone treatment alone. I' m getting a pneumatic injection soon, so let's hope I'm as lucky as your Dad.          Washie
    • arthur98082
      arthur98082 philip1950

      Posted

      Hi Phil, it was so encouraging for me to read your post regarding your Dad. I was diagnosed with prostate cancer last August, it has also spread to my bones. I have been on Prostap for  the last six months, my psa has dropped from 34 to 1.06, no more appointments for 6 months. I was wondering what happens next i.e. do I stay on

      Prostap for the rest of my life? providing my psa remains low

       Kind Regards Arthur

    • philip1950
      philip1950 arthur98082

      Posted

      Hi Arthur,

      sorry i dont know enough to say what comes next for you in terms of your treatment.

      Despite what many say if you live in the UK you will get top class treatment from the many specialist cancer treatment centres we have.

      If you are being treated at a local,hospital you can ask to be refered to a specialist centre, the one near to where I live is the Christie at Manchester.

      Again I hope your PSA stays low and you feel well.

      Kindest regards

      Philip.

    • philip1950
      philip1950 Washie

      Posted

      Hi washie,

      I to hope you do as well as my dad. He had a poor health cenario for most of his life TB in the 50s , Tumours in his arms and spinal surgery in the 60s  and heart disease in the 70s. Dad always had faith in his doctor and always followed their advice and kept a positive attitude which I think helped him a lot.

      Hope you are as lucky as dad and do well on your treatment

      Kind regards

      Philip.

    • Washie
      Washie philip1950

      Posted

      PSA now 4.7  good news . Only saw nurse on Friday with news. What the nurse could not tell me was what happens when Zoladex fails and PSA starts to go up. Urologist seems to be very busy so would obviously ask him if I could get to him!    In meantime can anybody help with future drug names etc?      Washie
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