Advice???

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My PE was diagnosed 4 weeks ago. I was told it caused damaged in my right lower lung. Yesterday I went with my daughter and grandsons to the library, we went to the bakery, and watched the boys play at the park. I came home and rested for 45 minutes, and then I drove to get my hair cut. My husband wanted to go out on the pontoon for a leisurely ride so we attempted to do that. I became winded and we had to come back to the house before we left the dock. That evening I was breathing heavy and had pains in my lower right lung. . .sharp pains. They didn't last long but they were stabbers. This morning I am having breathing issues.  My question. . .even though none of the above was strenuous, did I do too much?

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  • Posted

    The first couple of months after my diagnosis I found the worst. One minute you are think you are starting to get better and you start getting back to normal things and then the next, you are out of breath with sharp pains in your lungs. I got really worried the blood thinners weren’t working,  but when I had a CT it showed my PEs were dispersing. I was told this is very painful when it happens and was prescribed painkillers. I have been on blood thinners for about 4 months and I am a lot better than before, but I still get breathless and the odd sharp pain. It will get better but it is a slow process and can be quite frustrating. Take things a bit slower because your body is going through a lot and you a probably still in a bit of shock.
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  • Posted

    You probably did. It is quite easy to think you are feeling better when you are not doing anything much.  As soon as you start moving around, you tire yourself out.

    Not sure where in the world you are, but if it’s in a hot or humid area, you also may struggle when you move out of an air conditioned space into the outside heat.

    Early days at 4 weeks, pace yourself and maybe stick to one outing a day.  I doubt you will do any harm doing more, you just won’t feel so good. I found reading a tremendous help - get a really good book and it stops you from running around too much.

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  • Posted

    Mine were in March this year. I am still struggling if I overdo things. The hot weather makes it twice as bad and second hand smoke, even the tiniest whiff, makes me gasp for breath. I think limiting yourself for another month of so would be beneficial. I used to have to stop ironing after 2-3 items, now I can a whole load. Even shopping with a trolley tired me out for a couple of months! Take care.
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  • Posted

    Thanks so much, everyone, for the advice! I probably did overdue with the humid weather going in and out of air conditioning. . .but it felt so good to be somewhat normal!!!
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  • Posted

    Does anyone know how to go back to discussions that were a week ago. I didn't and don't know how to save anything.

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  • Posted

    Yep, I'm a year and a half out and it still happens to me a lot. Slow down, recovery takes a lot of time, your body has been through something major.

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  • Posted

    I’m on the same boat! I was diagnosed on the 19th June,  had 2 weeks sick leave, went back to work and now I’m signed back off on the sick as I hoovered my living room......I’m 29 years old and hoovering floored me!! I also have damage to my left lung so maybe that’s why we are still experiencing pains and exhaustion! This has by far been one of the hardest things ever to go through! 
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    • Posted

      It is very frustrating! I have an appointment with a pulmonary specialist on Wednesday and have plenty of questions. Have you seen a specialist? By the way what does "hoovering" mean?

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    • Posted

      Haha vacuuming the floor! Haha sorry I’m from Glasgow so my spelling and wording will be strange! Yeah I have an appointment on the 16th August with a consultant to talk it all through and yip I’m the same I have many pages of questions written down like how the hell does a 29 year old get clots in the lungs, there is legit no reason! Clots usually starts in the legs and will lead to DVT but nope I just get the full blown PE, collapsed/scarred lung 😡and oh I’ve just tidied up my kitchen (washed dishes and wiped the counters down) I’m totally exhausted lying down now!!! 

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    • Posted

      Honey, I am twice your age and have the same dilemma! Take care and I wish you well!
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    • Posted

      Hi I have had them twice now both not from DVT! Had a DVT several years ago caused by contraceptive pill for gynae reason. Both caused by prolonged exposure to second hand smoke from neighbours (confirmed by 2 senior Chest Physicians), current one hears or sees our door open and comes out to smoke; she knows it affects me in fact calls it a fake cough especially when I have a bout of chronic bronchitis! Previous one used to crouch behind fence (unseen) and laugh when I coughed until she heard I was hospitalised with PEs, she then at least made an effort albeit late. Yours could be environmental "pollution", get it checked out at your next appointment.

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