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Advice

Posted , 5 users are following.

alison_44707
alison_44707

Just looking for some advice really. Last summer I started getting pains in my arms and legs (dull aches, stabbing pains, throbbing pains and pins and needles). Went to the doctors and if I'm honest I think she thought I was making it up (wouldn't mind but I never go to the doctors). Finally she did some blood tests last December and they all came back clear. They were for lupus, thyroid, arthritis plus many more. Since then I now have the same pain but I also now get it in my back and chest. I do get restless leg syndrome with it but more at night and I am always so tired. I do find I am stiff in the mornings but once I'm moving it does ease. I have recently noticed that sometimes my skin feels as though I have a bruise but there is nothing there. I have recently been back to my doctors who has redone all the blood tests again from previous and they have all come back clear apart from folate so I need to see him about that on Monday. I haven't actually been diagnosed with fibromyalgia yet as still waiting to see if my doc will send me to a rheumatologist. Just wondering if this sounds like it and if others have the same symptoms

Thanks

2 likes, 15 replies

15 Replies

  • faye71324
    faye71324 alison_44707

    Posted

    Hi. I'm sorry to hear that you are feeling like this. I have had the same symptoms for months now, and have had many blood tests for numerous things including Rheumatoid Arthritis which have all come back ok. I also have that feeling sometimes like I have a bruise, but like you said, there is nothing there. I have an achey neck, between my shoulders and upper back. Achey legs especially my hips, and I am also stiff after sitting down for a while but it eases when I move about. I get pins and needles in my hands and feet, and also random sharp pains in my arms and legs. I have suffered with extreme tiredness although it is a little better now. The last lot of bloods I had done were normal but I've had a letter to say that my doctor wants to see me. I'm seeing him on Tuesday and will mention Fibro to him. I know someone who has fibro and everything she says is almost identical to how I feel. I hope you get some answers soon and I'm sorry I can't be of much help, but your not alone. We need some answers. Take care, Faye x
  • PiliPalaB4ch
    PiliPalaB4ch alison_44707

    Posted

    Hi Alison.

    like you I had lots and lots of blood tests to rule out this and that, I felt like a sieve at one point! It took months for me to have the diagnosis of Fibromyalgia and even now I am waiting for the next stage of diagnosis for Sjorken's syndrome, but that seems to be the process! It does sound from what you say that Fibro is a strong possibility,a lot of my symptoms are similar to what you say,  but so many illnesses seem to cross over each other, I would NOT want to say for sure! My advice is go back to your GP and perhaps ask for a referral to rheumatology  or CMAT if they work in your area.

    ultimately, they are the only ones who can say for sure! 

    Keep going back, until you are happy everything has been done for you. Good luck and take care.

  • kaz_40
    kaz_40 alison_44707

    Posted

    Hi alison44707 It sounds like it could possibly be fibro, all the symptoms you have mentioned I have. a rheumatologist diagnosed me with fibro last year. it took 10 years to get a diagnoses after seeing many specialists and having loads of tests. drs normally like to rule out other conditions it could be, before refering you to see a rheumatologist its they that diagnose fibro. your gp needs to refer you to see one. the rheumatologist I saw sent me for as bone scan and more bloods to rule out rheumatoid arthritus. he also did a pressure point test on different parts of my body their are 18 in total, I got the full 18. I would see if your gp would refer you to see a rheumatologist write all your symptoms down and how your feeling each day. take care   
  • meggiemoo1988
    meggiemoo1988 alison_44707

    Posted

    Nice to meet you alison im in the exact same position.

    Everything you have said is what im going through now. To be honest i think mine started a long time ago im 27 just turned a few weeks ago. I think it started about 3 years ago i thought maybe it was just me getting older and cus i have put on weight again etc. But you need to find a doctor who will listen to you i did luckily after visiting many. They try and fob you off. All my bloods came back normal everytime and ive had countless also. Im always tired even if i sleep right through or for hours n hours. Ive not felt non tired for years now i dont remember the last time i woke up and thought wow i feel ready for the day. Have your doctors said whats next for you? Xx

    • faye71324
      faye71324 meggiemoo1988

      Posted

      Hi meggiemoo. I totally agree with you about finding a Dr who listens and who doesn't fob you off. I've seen many and the last straw was a Dr who didn't even look at me and said I had a neck sprain!!! Oh so a neck sprain causes all these other symptoms then all over? Lol! Anyway, I finally found a Dr who listens and has promised me he will get to the bottom of all this. A good Dr makes all the difference when your in this position. Good luck with everything and take care. Faye x
    • meggiemoo1988
      meggiemoo1988 faye71324

      Posted

      Yes Faye they are terrible.im trying to lose weight as i know this should relieve some of the pain but not all but still might help. And thats all ive heard for years is its your weight go lose weight n tell me how you feel. Finall i went back one more met a new doctor whos just come to my gp practice and straight away he beleived me so im happy that im being taken seriously after all these years of getting worse xx
  • alison_44707
    alison_44707

    Posted

    Hi

    Thank you all so much for your responses. I am going back to my doctors today to see what he is going to do next. They seem to think just cos you actually look okay there is nothing wrong. If I walked in wrapped in bandages he would bloody take me serious lol These past few days I've also started to get really bad pains in between my ribs. When I first got it I panicked as it was just on my left side near my heart. I've looked it up and it comes up with costochondritis and its where the cartilage inbetween yours ribs inflammation. It also says people with fibro do get this. Has anyone else had this pain at all? Lately it has started to get me down and sometimes I find myself really snapping at people as the constant pain gets on my nerves. I think speaking on here to others who have it will help me as will learn how to deal with it. I tried the Epsom salts last night as heard that's good so hopefully that will ease it abit after a few times. Today mine isn't too bad but when I get a flare up I just want to bury myself x

    • meggiemoo1988
      meggiemoo1988 alison_44707

      Posted

      morning Alison,i too get that pain i always think im gona have a heart attack its scary thrn it goes away. I dno about you but i get even worse when im on my monthly cycle. Shooting pains everywhere now and again really sharp like someone is stabbing me. I think with fibro we can get a lot of other problems its never ending. I never slept last night im at work and struggling i can feel myself dropping off at my desk. Its so frustrating i know if anyone talks to me today im gona bite. I dont want to im a reall happy fun kinda girl but im becoming snappy and its because of this stupid disease. It really does make life a lot hatder than it should be. Im just so tired.
    • kaz_40
      kaz_40 alison_44707

      Posted

      Hi alison4407 I get costocondritus its frightening when it happens as you think your having a heart a ttack. any chest you do get should be checked out by a gp to make sure nothing else is going on. fibro throws so many different symptoms at us. its hard to know if it is just fibro playing up or something else going on. its worth checking things out with your gp if unsure on anything. fibro is a learning curve for us all it affects us all differently, its finding what works for us. its very much trial error. take care gentle hugs 
    • alison_44707
      alison_44707 meggiemoo1988

      Posted

      Hi Meggiemoo

      Yeah it's a horrible pain to have. When I first got it last week I was sat at work and freaked out but then it passed. I woke up again with it Saturday and it just didn't go so Saturday evening I rang the nhs helpline to see if I could get an out of hours doctors appointment. Well that was a nightmare as the minute I said it was my chest area on the left side they sent an ambulance round my house even though I said I don't need one and if a doctor could ring me back that would be fine. How embarrassing. Well after all that I know it's not my heart lol In all honesty I haven't noticed if it's worse on my monthly as only started getting it for the first time last week but will keep an eye on it to see if it does. I hope you feel better today x

    • meggiemoo1988
      meggiemoo1988 alison_44707

      Posted

      It sure is. Sore when you breathe too right? I hate it. Oh dear lol but at least thats a good thing because they habe yo make sure ur not having a hear attack. Nice to see there on there feet with that. Yea im ok today just stiff legs and really tired. Never slept hardly so i start work at 8.30 till 5pm and i think ive nodded off at least 10 times already rolleyes whoops. Xx
  • sian41806
    sian41806 alison_44707

    Posted

    hi alison i have been having the exact same symptoms as you   i have been back and four the gp for 3 years and i have had mri blood test all clear apart from torn disc but i have been told its fibro by freinds on hear so i have to go back to my gp in 3 weeks and i am going to ask her to refere me has i have had enough of being told its nothing let us know how you get on and il do the same xx
    • alison_44707
      alison_44707 sian41806

      Posted

      Hi Sian

      Yeah it's rubbish isn't it. Doctors make you feel like you are making it all up. As if we would all pretend we have these pains all over our bodies. Well I hope you get to the bottom of it. I'm going back to my doctors tonight so hopefully he will refer me x

    • sian41806
      sian41806 alison_44707

      Posted

      great let us know how you get on i fogot to say my gp has put me on pregabalin tablets for the pins and needles its esed it a bit but not stop and given me pain killers haa witch dont work i feel like a old woman in the mornings xx
    • alison_44707
      alison_44707 sian41806

      Posted

      Hi Sian

      So I went to my doctors and he is going to refer me to a rheumatologist ☺️ He did keep saying there is no need for me to see one as all my blood tests are fine and if there was a problem my blood would show it. Like I told him that's good my tests all came back good but there must be a reason why I get all these pains. I had to battle with him as he said maybe I just have to live with it and I kept saying I'm not prepared to accept that so eventually he said he would. I was determined I was not leaving until he did. My persistence finally paid off. Now you need to get a referral and hope you do x

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