advice

Hi Diana as iive said previously I've only been bad for 10/11 days now and am too constantly knackered I woke this morning at 6 and by 8 I was asleep again until 12.30 constant room spinning and drunkeness ll the time I'm supposed to go back to work tomorrow so that should be fun as have no choice being self employed never had any help from social since leaving school 28 yr ago so don't want to start now only trouble is I drive trucks surely there's got to be some relief or something out there that stops this and wIting between appointments at the docs is just soul destroying you'd think they'd like get you on an intense programme straight away to try and combat it I think we should set a group up and demos for all the dizzy people pmsl till they listen to us

Hi ,all, I had BPPV from October last year , still didn't get appointment with ENT at NHS So had to see ENT privately. Had empley done but got just worse . I read many discussions over here ,and replied for some of them . After 5 month having vertigo and seeing GP several times I realised that nobody know what to do with it. ENT advised me to do Brandt- Daroff exercise which you can find in internet but after exercise don't wait for immediate improvement you have to do it 3 times a day Morning Lunchtime and in the Evening . All sedative pills would help with anxiety , but because our GPs better will die than give you diazepam or similar pills I was using lots of valerian root - anything for relax you. Also some antidepressant you can ask from yr. GP . Brandt - Daroff exercise is helping but it is not short cut. I noticed that with vertigo isn't easy to keep calm so I used web to find calming exercise some breathing will help with anxiety as well . Accupunture done some good as well . I can't say I'm feeling absolutely fine now but it is better compare to October when could walk only with help.

I absolutely agree with Chris 1971 about setting group up, to be honest NHS doesn't do anything to help.

Hi t you both.

Thank you for your reply.Its good to know that you are there.

Chris. Really difficult as I know that I have found driving difficult but being self employed leaves you in a no win situation.

Morning are definitely worse.

Tina.im due to have the manipulation on Friday.if im honest I was really hoping this would be it and I would be great afterwards.so I will let you know.Like you I have gone private as its months and months wait.

I will try relaxation as def anxiety increases my symptons. .

I agree with both of you.how do we set a group up.

Diana

The best place to set this group up is Alton towers just as we get off the nemesis cuz that's what this feels like

I'm sorry it's just me I like to prat about abit but I've been on the net today and there are groups out there already just depending where you live I suppose but reading in to it all everyone's situation is different some have sickness some have bad bouts of dizziness like myself what might work for one may not for another I think I'm just gonna try and ride this thing out for the next few weeks and if nothing improves then start the ball rolling in the correct areas

Hope your all feeling well sooner rather than later I'll keep posting about my journey into the unknown though and will look forward to reading all your comments

Hi again I just want to share my experience about empley with Diana . I don't know for what reason ENT didn't tell me that after this manipulations (which is similar to Brandt- Danroff exercise) I will feel myself like when all vertigo symptoms just started , in my case - very bad. You have to sleep in the chair or very high in the bed for 2 days after empley. The recovery period was horrible with a lots of anxiety , sleepless nights, heart palpitation etc When I've been offered to do it second time I refused - couldn't go through all this nightmare again.

But to be fair I read that some people was cured after first time they had empley. So let's hope it will work for you.

Best of luck.

there are loads sites out there to help but ENT is best help as its all related to inner ear even if it is Acquired Nystagmus which all goes back to the Labyrinth so i found loads info at vestibular dot org, and loads info to print out including all the exercises i enedd up getting from ENT doctor, i had the manouvers that moved the crystals from in ear and noise it made while moving them was unbelievable, i thought my life was over when the dizzy spins started and thought after MRI and loads tests nothing showed up it took so long i thought of suicide but ENT specialist fixed it all and as i said loads stuff online, so hope this helps as i never thought it would ever end, travelling was the worst thing of it all but now driving and back to normal, hang in there and get a good ENT doctor and hope this helps, the exercises were the best of all and are online at vestibular dot org, so go there and see what i found and hope your all feeling better real soon

Exercise to stop dizziness caused by inner ear problems

Also in Conjuction with Cawthorn Cooksey Exercises these can be done also, depending on severety of each case

Vestibular compensation is a process that allows the brain to regain balance control and minimise dizziness symptoms when there is damage to, or an imbalance between, the right and left vestibular organs (balance organs) in the inner ear. Essentially, the brain copes with these disorientating signals coming from the inner ears by learning to rely more on alternative signals coming from the eyes, ankles, legs and neck to maintain balance.

Gaze stabilization exercises

The aim of gaze stabilization exercises is to improve vision and the ability to focus on a stationary object while the head is moving.

Your therapist should assess you and say which exercises are suitable for you.

•Look straight ahead and focus on a letter (for example, an E) held at eye level in front of you.

•2. Move your head from side to side, staying focussed on the target letter. Build up the speed of your head movement. It is crucial that the letter stays in focus. If you get too dizzy, slow down.

•3. Try to continue for up to one minute (the brain needs this time in order to adapt). Build up

gradually to repeat three to five times a day.

You can also do this exercise with an up and down (nodding) movement.

Progressions with this exercise can include placing the target letter on a busy background and changing the position of your feet.

Canalith repositioning procedures (CRP)

The aim of Canalith repositioning procedures (CRP) is to treat people with benign paroxysmal positional vertigo (BPPV) by moving particles trapped in the posterior semicircular canal in the inner ear (labyrinth) causing dizziness.

CRP involves a series of head and upper body movements performed by a trained specialist health professional.

The two main CRP treatments are the Epley manoeuvre and the Semont (Semont-Liberatory)

manoeuvre. It is important that these manoeuvres are only performed by a trained specialist to prevent the risk of neck and back injuries.

Brandt-Daroff exercises

Brandt-Daroff exercises are a CRP treatment for BPPV that can be performed at home without the

supervision of a specialist.

•Sit on the edge of the bed and turn your head 45 degrees to one side.

•2. Quickly lie down on your opposite side (that is, to the left if you turned your head to the right, and vice versa) so that the back of your head behind your ear touches the bed.

•3. Hold this position for about 30 seconds.

•4. Return to the sitting position.

Repeat on the on the other side, alternating until you have completed six repetitions on each side.

My diagnosis was vestibular neuritis which is a viral infection of there labrynth

Hello.

Thank you so much.

This has been really helpful.

I will let you know how I get on with the treatment post Friday.

Fingers Crossed.

Diana

Hi all

Well ent back to work this morning and was really not looking forward to it but I made it through the day

Although it was really hard work at first but it did get easier for me how I do not know as I was in a right state before I set off but I kept saying to myself come on Chris you can beat this so something whatever it was I was doing worked

But all good things come to an end I'm absoloutely knackered now I've only done a 10 hr shift the norm is 12/14 hr for me and can't wait for the weekend I think I'm gonna sleep all the way through good luck with the quacks Diana I shall be interested to know how it went

Well done Chris for getting through what must have seemed liked a never ending day at times.

That over whelming tiredness is just awful.

Yes will keep you posted.Diana

Just a quick one to see if anyone else has felt a lot better after afew weeks

As I said earlier in the week I returned to work on weednesday feeling like absolute s*** but 3 days on I'm feeling a hell of a lot better all the diszzies still haven't gone but I'd say at least 90% have,

Is this what is to be expected or is it the calm before the storm ? Although my hearing hasn't returned yet

Hi Chris.

That's great news.will keep fingers crossed that you continue to improve