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Advice about medication

Posted , 4 users are following.

kirsty08752
kirsty08752

Hi I have recently seen pain specialist an he as put me on pregablin 50mg I am taking at the moment 4 in morning an 5 at night but my question is any1 is taking them because since taking them I have developed a twitch but it just doesn't happen on 1 part of my body happens all over it not all at the same time thankfully.

I have noticed it happens when am trying to sleep

Any advice please will be really helpful

Happy new year an thanks kirsty xx

1 like, 18 replies

18 Replies

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  • lisa52101
    lisa52101 kirsty08752

    Posted

    Hi Kirsty, 

    i have been on pregabalin for the past 6yrs and although I'm told the twitching isn't a common side effect it does happen. I used to get twitches as you describe but only very occasionally and like you, when I'm tired. Three months ago I was also put on another medication alongside the pregabalin. This drug is called gabapentin and is a very similar medication, but as I was on the max of pregabalin it was felt it was worth a go. It turns out the combination. Of the two has been very effective but the twitches that were very occasional happen all the time when I'm tired. Very disconcerting but as both medications are used for neurological disorders it isn't such a stretch that these twitches would happen. I suppose it all depends how much these twitches bother you against the benefit you may be getting. 

    I hope this helps and good luck xx

    • kirsty08752
      kirsty08752 lisa52101

      Posted

      Thank you Lisa it does help I thought I was imagining it. I have to increase the tablets every week till I am on 6in the morn an 6 at night I also take amitriptyline as well with them. They are helping with the pain so I will definitely put up with the twitches xxx
  • lisa52101
    lisa52101 kirsty08752

    Posted

    Hi Kirsty, despite being told I was on the max dose of the pregabalin it seems I'm nowhere near it. I'm on 450mg, 150 three times a day, 900mg of gabapentin and 20mg of amatriptalin. Although the amatriptalin was originally for a rare type of migraine it works well for both conditions. I take so many meds for different conditions it's difficult to keep track sometimes. Anyway the good thing about this site is you can almost always find someone to answer your questions. Glad I could help, take care xx
    • kirsty08752
      kirsty08752 lisa52101

      Posted

      You certainly did Lisa well am 50 mg of pregabalin but take 200 in morning an 250 at night till I build my dosage up to 600 my doctor told me I cudnt take my amitriptyline due to take pregabalin so I had to ring my pain clinic for advice on what to do but they told me to keep taking them. In the past I would never take a tablet for a migraine and nw I take nearly 30 a day madness thanks again take care xxx
    • lisa52101
      lisa52101 kirsty08752

      Posted

      We never know where life will take us, 8yrs ago I was working full time, took a degree course and hugely into sports. Now I have 5 major health conditions, in a wheelchair and on so many meds I can rattle and roll (I'll leave tha shaking alone, the twitches are enough). I'll leave you be unless you want to know anything else xx
    • kirsty08752
      kirsty08752 lisa52101

      Posted

      Thank you Lisa you have been a great help life can just turn on you so bad can't it I was a very active woman an also had a job an just got loads of degrees but like yourself are in a predicament where I can not work but I will not let it get me dwn no point dwelling on the past an I always think there is worse ppl than me take care an again thank you so much xxx
  • cherl450
    cherl450 kirsty08752

    Posted

    hi kirsty I too am on pregablin and been on them for a year now i also get twitches or spasms in my legs and it can be so painful but my gp also put me on liquid morphnine and now morphine tablets as i can not take anttiplime it does help but i also have other medical condtionds as well, and used to work and be a dance teacher but now my life is spent being unable to walk with out aids or just being housebound it gets me very low but wishing you loads of luck hun
    • kirsty08752
      kirsty08752 cherl450

      Posted

      Thank you cherl450 I use to be on the liquid morphine as well off the hospital but my gp would not prescribe it to me as it effects the heart rate she said. It is very depressing isn't it I am mainly housebound as well. I was very active loved walking all the time an walking are dogs an working but nw I struggle to walk. Thanks for your reply at least am not going mad 😀
    • cherl450
      cherl450 kirsty08752

      Posted

      Hi Hun I suffer with heart disease too and if it affected heart rate I'm sure they wouldn't give it to me but some gps are funny I'm always here if you want a chin wag it's nice on this site it shows people are so caring love and best whishes Cherl xxx
    • kirsty08752
      kirsty08752 cherl450

      Posted

      Hi love well I thought that myself as the consultant would never of gave me it. My gp isn't the best when all this started an I ad few tests done an all came bak negative she then turned round an told me an a mystery wish made me very annoyed so an upset so I refused to see her again. It was my urology nurses that picked up that I had fibro. Am now hopefully on the right track to getting help an support I need. This site as been very helpful when I need answers or just a lil moan pplon here Ave been lovely. Thanks lovely it's nice to no ppl are there just to chat my husband is so understandable but it's nice to chat to ppl who are going through the same thing kirsty xx
    • cherl450
      cherl450 kirsty08752

      Posted

      I agree no understands better than another sufferer my husband too has been amazing but it's lovely talking to others waiting for my date for operation to come as I need one on my shoulder dreading it for lots of reasons .i agree thou I use to see one doctor who told me everything was in my mind it was my remotolgist who diagnosed my fibro then I went back and stormed into that doctor and said to him all in my mind hey he went a very pale and said sorry I changed practices I know have a fab doctor well keep smiling Hun xxx love Cherl xx
    • kirsty08752
      kirsty08752 cherl450

      Posted

      Thanks cherl I will do, I hope your operation goes well an try not to worry to much which is easier sed than done I no. It's so much easier having a husband/partner who's is understanding an helpful. I spoke to a lady the other day at the hospital an she sed her fiancée left her an sed your always sick I was so shocked someone could be so nasty xx
    • cherl450
      cherl450 kirsty08752

      Posted

      Hi Kirsty omg that's terrible but a friend of mine who was married with two boys went through that her with husband he blamed her said it was all in her mind and walked out I can't believe men can be so cruel my poor hubby is diabetic but he always worry a about me he gave his job up to be my carer he's my rock we have been together 22 years now and I love him more now than ever before I have no friends were I live I just have him my children who are all grown up live in England I'm in Scotland so I might see them one every few years so for me this site is my life line love always xxx
    • kirsty08752
      kirsty08752 cherl450

      Posted

      Hi cherl isn't it terrible I just dnt understand some men it's disgusting especially having a family an to say it's all in Ye mind is horrid. Me am hubby have been together about 16 years but I love him more nw than ever he is always there for me he works on the taxi's at the moment but my fibro is getting worse so he is also wants to leave work to look after me an are 10 yr old. It's hard having a circle of friends I find anywhere cos I can not really go out an socialise, I do have a friend who is lovely an understands what we are going through her mum had something similar she does a massage called raki or something an she wants to try it on me. I do love to come on and have a chat on here it is nice to have a nice chat or need a lil pick me up. Must be hard ur children being so far an not seeing them regularly sending gentle hugs xxx
    • cherl450
      cherl450 kirsty08752

      Posted

      Hi Kirsty hah my hubby used to be a taxi driver too lol yes it's hard not seeing them but I know they are busy and doing well but that's life well Hun gonna watch a film now so I'll speak to you Tom love always Cherl xxx
    • kirsty08752
      kirsty08752 cherl450

      Posted

      Hi cherl thanks for the chat enjoy your film spk tomorrow love always kirsty xx
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