Advice about MS needed.

Posted , 6 users are following.

So, this has been playing on my mind for some time now. I am 22 years old. I have no symptoms of MS whatsover. My grandmother had MS, and died around 16 years ago. I have no idea if it was MS related. Then when my dad was in his early/mid 30s, he too was diagnosed with MS. Then a few years ago in his 30s, my uncle (dads brother) was diagnosed as well. All 3 cases have pretty gloomy stories with deterioration. Now, being a selfish person, I keep worrying that MS is now going to affect either me, my brother or cousins. I cant find anywhere that can directly link it as hereditory. Its just now likely going to be a coincidence that 3 of my family members suffer. Also, can you be tested without any signs and symptoms? My heart goes out to all with MS, and the family members and I hope this post doesnt come across too selfish, its just my father once told me 'I watched my mother deteriorate due to this illness and it broke me' and now he has it, and im the child watching a parent deteriorate and its breaking me. On top of watching the decline of my father and uncle, im petrified of having MS.

?Thank you for listening to my big ramblings,and any help or info is appreciated more than I can put into words.

0 likes, 6 replies

6 Replies

  • Posted

    Hi, they say it's not hereditary but I have it, my mum had it my sister has same test results as mum but no diagnosis and my other sister was diagnosed with early Parkinson's but not tested for ms, she had similar symptoms to me. Don't live with the fear go see your Dr and discuss it. There's about 4 or more different versions of ms. It's not a death sentence and they're making progress with treatment all the time. You're NOT destined to get it, don't stress that's not helpful. Good luck, live life to the full and never have sweeteners. 🌹🌷

  • Posted

    Hi corrie, You aren't wrong, or selfish, to worry about your own health, it would be a bit strange if you weren't. I have secondary progressive MS, without any other sufferers in my family. The likelihood of my son developing MS, is about twice that of someone who doesn't have a family history of the condition. Therefore, my son's chances of developing MS at our longitude are about 300 to 1, here, in the UK(apparently, the further away from the equator that you grow up, the more likely you are to develop MS... Odd, but the stats show this to be the case). Testing for MS, when you have no symptoms, will almost certainly give a negative result, which would have no effect, other than using up time and resources. Live as healthy a lifestyle as possible, record any symptoms you MIGHT have, one day and focus on doing things that keep you positively focused. Look into relaxation techniques, this is helpful for anyone dealing with health, or other worries.

  • Posted

    Sweetie, you are not being selfish!  You are being realistic.  First of all i am so sorry that at a young age you have had to watch 3 family members with this disease.  Please remember that no two cases are alike, hence why it is called the snowflake disease.  I share your same worries as I was diagnosed recently and they now figure it began about seven years ago in my forties.  I have a son and daughter about your age and have asked the same question regarding genetic testing.  Unfortunately there really is none but I do believe that if you were somehow destined to get it there are things you can do now to try and reduce your risks.  Many Neurologists are recommending vitamin D supplements and a healthy diet with lots of greens, fruits and other veggies.  Try to reduce sugar intake as MS is an inflammatory disease and sugar will make it worse.  Again, common sense, you're young and not expected to give up all treats!  Also, plenty of rest and exercise.  But most of all go live your life and don't search the internet worrying about any symptom you may get going forward.  The mind can play very real tricks and can fool you into having almost any disease.  Please take care and remember you are not being selfish at all.  Anyone in your situation would have the same concerns.  The best thing you can do is look after your health when you're young.  Please write back if you need to.

  • Posted

    There are some very good answers so far but I would definitely advise you to take 5000iu of Vitamin D3. I would agree it isn't supposed to be hereditary but I'm not convinced on that or that it's not catching! What's the chances of two next door neighbours both having MS. I'm 63 year old male diagnosed 5 years ago with PPMS and thank goodness progression is slow. Get on the Vitamin D!!!!

  • Posted

    It's possible to overdose on vitamin D. Take it under medical advice only. I started taking a vit. Do supplement, without researching it first. I'm glad that it made me feel ill, which stopped me taking it. Apparently, it's possible to do irreparable damage to the liver.

  • Posted

    Hi Corrie,

    Please, please read "Overcoming MS" by Professor George Jelinek.  He has MS and his mother had it.  I have had secondary progressive MS for many years.  Last year I read his book and started his way of living and his diet.  I feel so much better and am not taking any drugs.  Please read his book, I just wish I had read it when I was first diagnosed, it would have made a lot of difference.  Good luck

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