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Advice back injury

Posted , 10 users are following.

bob28320
bob28320

Had bike crash 2 years ago and have argued until December there that something not rite in spine.

Now had 4 mri scans and they have found I have disc bulges to c3/4 C5/6 C6/7 LEVEL ALSO DISC BULGES TO T7/8 T8/9 LEVEL ALSO WEDGE BREAKS TO T8-12was told a week after accident I had fractures to L1-2 .

Also have what looks like tear on spinal cord at L1-2 level

Have been told I have had spinal stroke at time of accident. Have lost sensation down left side from waist and no reflex. From time to time I lose feeling from waist down can last up to 30 minutes and can't stand.

I suffer from constant pain which is not nice.

During the night I have started waking when I do eventually sleep with pins and needles from the waist up which only goes away when I stand up for 5 minutes.

The great British health service don't want to seem to tell me what I can do and what I can't do.

My next appointment is not until August

I can't live with the constant pain anymore and the pain killers that make me feel drowsy and forgetful and crap all the time

Can someone shed light on my injury's for me and give me an opinion how bad they areally and do I need surgery to correct and take pain away.

Getting weaker by the day.

0 likes, 40 replies

40 Replies

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  • Carolineq8
    Carolineq8 bob28320

    Posted

    Ah I am so sorry you are suffering like this but unfortunately it seems to be happening more and more, I can totally sympathise with your pain as I have the same issues with my neck and have a cyst on my thoracic spinal cord, go back to your GP and be referred to a pain specialist or pain mangent unit also ask for a second opinion with a different neuro surgeon, it's a long road to finding the right docs and care plan for your needs, do as much research on your condition so you can't be fobbed off, if your armed with information and questions they have to answere them otherwise youl be sent away in pain until your yearly follow up and this will go on for years.

    I find gabapentin helps with nerve pain. I get it when it's so bad youl take anything just to stop going crazy but like most people here we've tried a lot of hard meds only to realise that the long term effects do more harm than good, try heat/ice packs, tens machine, relaxation techniques and a good chiropractor, the key is to finding what works for you, I wish you well in your recovery, please keep us updated with your progress or even if you just need to sound off where here to help in what ever way we can, good luck 😊

  • Carolineq8
    Carolineq8 bob28320

    Posted

    A chiropractor should be able to help with the disc bulges at least and honestly I must say do everything you can to avoid surgery unless it's absolutely necessary, good luck 😊

  • DJ1976
    DJ1976 bob28320

    Posted

    Hello from the USA.  I feel for you and the pain you are going through.  I am not as familiar with your healthcare system. But sounds to me that they are not as concerned about YOU the patient. Until they feel what your day to day living is like, they will take a wait and see attitude.  You have been given some good advice from the other two responses.  If surgery is not an option for a variety of reasons, you might want to find a good pain management Dr. and look into a pain stimulator trial to help with the pain if your pain is in a area that a stimulator can help.

    They do work, but it is trial an error in finding the right one.  I know your Country uses it more than here.  I just had one put in on 3/2/17 and I am now through much trial with the settings getting some relief.  I am hoping it will work better with more time.

    I wish for you good luck in your finding some solution in alleviating your ongoing pain.

    Dee

  • jessica_78456
    jessica_78456 bob28320

    Posted

    I insisted my GP send me to a private hospital/ neurosurgeon via the nhs . This was September last yr it's the best thing I did do far my neurosurgeon has been fab and I due for spinal fusion on the nhs at the private hospital next month. Originally the rheumatologist at the nhs hospital said just stick on more pain relief and physo , yeh right can't event sit up strait . Push like u did they can't and should not refused u have a right to be seen where u like .

    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      I have a spinal fussion and I know there are cases where this has to be done but it was the worst thing for me and has completely ruined my life, I say this only because i think the surgeon let me down and tha pain I suffer could have been avoided to some degree if the right after care was given but all he was after was his private fee, I have to live with that decision the rest of my life or what is left of it
    • DJ1976
      DJ1976 Carolineq8

      Posted

      It hurts me to read of the lack of care or compassion you received from your doctors.  I can only speak as one individual who has gotten the care I desperate needed.  We do not have single payer here.  Our Veterans seem to be going through what you have experienced.  So sorry for what you have gone through.  I will keep you all in my prayers that someone will step up and find a solution for unending pain.

      Dee

    • DJ1976
      DJ1976 jessica_78456

      Posted

      Jessica am so glad to read that you have found a good surgeon to help you.  Wishing you a speedy recovery upon having your back fusion.  I have had 3 back surgeries and now have a spinal stimulator to help alleviate the nerve pain from a minor auto accident 2 years ago.  It has been a long road back, but Imdo believe I and my rep. For the stimulator have found the right setting for my pain.  It will need some tweaking for maximum pain relief.  Keep us posted.  

      I started a page on surgical pain stimulator.  Mine is the BURST by St. Jude's.  I found my info from your corner of the world and talked to my Dr. here.    Your country ahead of ours in getting medical devices to market before ours,  Kudos to those in charge of that.  Again good luck.

      Dee

    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      Definitely, make sure you have a good plan in place before you go ahead, I'm

      Going to ask why I wasn't given any rehab after such an invasive surgery, also a nurse took my drain out in the toilets the next day and I passed out but she changed what happened in my notes

    • jessica_78456
      jessica_78456 Carolineq8

      Posted

      Terrible speak to Irwin Mitchell solicitor s there great for dealing with things like this . Put a complaint into the hospital first via written letter. Wait 28 days for response. In the meantime time speak to these guys .
    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      I have tried other solicitors but it's the time scale and they've said that all neuro surgeons will stick together and there the hardest people to fight, however I won't give up and I'm still trying to get more info from other docs "off the record". I will give them a try thank you

    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      Also I'm a it worried that once I go down this route that I will be shunned by the docs especially as i need them the rest of my life now 🙁

    • jessica_78456
      jessica_78456 Carolineq8

      Posted

      WEll there's no need for other doctor s to know, iam not sure how they find out .it may mean traveling to another area , but doctors shudnt shun u . It's ur call people sue medical professionals who have neglected patients all the time, by law there still intitled to nhs care. If people don't stand up to these people. Then people will continue to suffer due to negligence

    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      I know I'll cross that bridge when I come to it, my now neuro doc said I was born with the cyst and when I asked him how big it was he ignored me when I asked again he said why what does it matter, I will try and fight it because I feel like I can't move on until I have some answers, how do we end up like this after going in to have an opp 😢

    • jessica_78456
      jessica_78456 Carolineq8

      Posted

      Unfortunately as we are all built different DNA ect some react positively to medicine and operation s others don't , but have a good competent surgeon always helps. But even the best can come across complications. The thing is with these people when a mistake is made there not always man enough to step up and admit it, because if they do it means a law suit and possibly been struck off. But we are all human imperfect and we do make mistakes even these people. Best thing they can do when they do, is Man up admit it and learn from it. Jees we put are life's in these people s hands

    • Carolineq8
      Carolineq8 jessica_78456

      Posted

      I had one of the best and would probably use him again if I had to, even with everything that's happened I have more faith in him than my current neuro doc, mistakes happen and I know it wasn't deliberate, however your so right, I would have more respect for him if he'd told me if something went wrong instead of suffering for the rest of my life and struggling to fight for a diagnosis and docs looking at you like your stupid or paranoid 😊

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