Posted , 3 users are following.
Hi I am 46 had hfs for 2 years have Botox but now had enough,getting regular headaches because my sleep is interrupted,does anyone take medication for it ??? Was offered diazepam by my gp but does it help please??? Any advice welcome thank you 😊
0 likes, 2 replies
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Roseann Mrse
Posted
This is just a repeat of a reply to another thread:
Hi Mrse, so sorry that you're totally fed up with HFS - it is such a debilitating condition and I remember feeling as you do now.
Diazepam might help your sleep but it will not stop the spasms. There is no known drug that stops the spasms unfortunately and surgery remains the only potential cure. One or two people seem to have found the Keppra helps their spasms a little bit but generally antiepileptic drugs don't do much good, sorry.
Hope you will find a way of coping. All best wishes.
diane35198 Mrse
Posted
Hello,
Unfortunately I have tried everything, even had surgery 4 years ago but it didn't work for me. I did try Botox again and it is working along with 20mg of Baclofen (muscle relaxer) a day.
I have had HFS for 8 years and it is so aggravating. I feel bad for anyone who has to deal with this. If you do try surgery make
sure you choose one that has done thousands of these surgeries. My mistake was using someone that had only done a handful.
Best of luck,
Diane