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Hemifacial Spasm

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  • scared.. Face tingling..twitching

    I was put on Prozac in May 2017 for anxiety disorder with panic attacks. I noticed in July I had pretty bad twitching in my legs and then arms. I decided to get off Prozac thinking that was the cause. In December 2017 I had “pressure” in my forehead accompanied with twitching in forehead, cheek, and...

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  • Trying to decide in treatment of hemifacial spasm

    I have read so much here. Having to deal with my hemifacial spasm alone has been hard. At least now I know I’m not alone. I have questions though. It has been determined mine was not a tumor but trauma to the nerve. A year ago I was in a bad car accident. I have many herniated discs..,heD pain ..eye...

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  • Dr. recommendation in or near Torrance, CA

    Heavily leaning towards having surgery for Hemi facial spasms. Started with an eye twitch about 7 years ago. Have been getting Botox for almost 2 years. The twitch is starting to effect my cheek and near my mouth. Looking for recommendations near me. Torrance, CA Thank you!

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  • My hemifacial spams are gone without surgery!

    I'm a 51 year old guy.  (Irish/Italian/French/English) descent. I've had hemi facial spasms since age 40. At first it was a slight twitch on my eye.  Then, the whole eye was closing with my left side of my mouth and cheek muscles moving. (If you are here on these forums... you know...

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  • Support Group for Hemifacial Spasm sufferers?

    Hi there, I've had Hemifacial Spams for two years now. They can get so bad the whole of my face is pulled to one side making talking and eating difficult. It's horrible as you're trying to 'fight' your face and when people notice - it's just the worst feeling. I would...

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  • Surgery for hemifacial spasm

    I am due to have surgery for hemifacial spasm. Extremely worried due to all the risks. My surgeon said there is a risk of death!! Stroke! Also facial droop. Really want to have the surgery to stop the spasm, but so worried about all the thing that could go wrong. I am 39 with 3 children, I really don't...

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  • hemifacial spasm

    hi i have been diagnosed with hemifacial spasm after bells palsy. i have really bad eye twitching, my eyelid closes my cheek pulls up and i am in so much pain. does anybody else have the same symptoms i am being drove up the wall. thank you

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  • First symptoms?

    Hi everyone! I am a new member and my english is not good, i'm just 26, a female. I have eyetwitch over 1,5 months, it only happens when i smile, pucker my lips, on upper lid and sometimes lower lid (come and go), Is that the early symptoms of hemifacial spasm? And what should i do if i dont have...

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  • PLEASE HELP! Is this hemifacial spasm?

    Hi everyone, I've been suffering miserably with what I think is HFS for almost 3 years. I've been under the 'care' of a maxcillofacial specialist for 18 months with no diagnosis and not much help. I've tried self diagnosing as it feels like I'm banging my head against a brick...

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  • Recurring problem after operation for hemifacial spasm

    I had an operation for this condition in March 2016 and by December I was spasm free.However I am now beginning to feel slight fluttering of the eye lid and hope this is not a recurrence of the condition.Has anyone had a similar experience ? Marilyn

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  • alternative treatments

    Has anyone tried massage, chiropractic or other alternative actions to help with the HFS? I was just diagnosed and was told that my CT scan and MRI are normal - so I am on a medication for Parkinson's that I don't feel is doing much. I follow up with the neuro on the 28th and really not enthused...

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  • Need advice.. scared!

      Hi everyone, I have what I believe to be Hemifacial spasm.  Every single night, while I'm watching TV, my right eye get very dry all the sudden and I have to blink rapidly, then my eye feels very tight, my eyelid closes half way, and my eye brow raises all at the same time.  This...

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  • Has anyone tried SCENAR?

    My name is Nicoloa I am 42 years old and in my 4th year of what is becoming my little hell.I have had botox injections for the last 3 years but I dont think they are working anymore . I am wondering if anyone has tried SCENAR? I am currently at my witts end and now trying to find alternatives . I am...

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  • HFS

    Has anyone had sucessful surgery for this embarrasing condition? I have suffered for 3 years. I have botox but still have a twitch. So depressed with it and want it to stop!!

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  • Neurologist Recommendation in Ottawa, Canada?

    I know this a shot in the dark but does anyone know of a neurologist with HFS experience in or around the Ottawa area in Canada? My GP literally does not know where to send me. She has never heard of HFS and apparently doesn't want to research it since she asks ME what I have found in my reading...

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  • Advice please

    Hi everyone, I'm looking for some advice. I've been experiencing muscle spasms at night when trying to sleep for over a year now all through my body & have been seeing a Neurologist who diagnosed me with a sleep disorder & recommended that I take Diazepem. More recently my right hand...

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  • USA Hospital Info

    Hi, Reaching out to find best hemi Hospital. Also share ink on Botox shots. It's just getting worse....have to move on it. Much appreciated, Stan

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  • YKL YKL

    MVD surgery 8 days ago

    I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with satisfactory result, but gradually the injections were becoming less effective. I had my first consultation with Mr K at the NHNN Queens...

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  • Occipital neuralgia after mvd

    Did anyone end up with occipital neuralgia after your MVD surgery for hemifacial spasms? Did your surgeon do anything to help with pain? How long did it last? Thank you, I'm suffering

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  • Diagnosed 4 year ago

    Hi folks I was diagnosed 4 year ago and offered muscle relaxant but they made me too drowsy and to be honest I'd sooner put up with the twitch .it went away on its own for a few months but has come back with a vengeance . Like someone else on here it doesn't stop when lying down I wake up to...

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  • My operation

    Hi Guys, just a short update. My opp was on the 19th June it has all gone well, no more face spasms, I am feeling on top of the world, I am only taking paracetamol, and I feel really well, just very tired and slow, but not in any pain at the moment, I have had my staples out yesterday all was good with...

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  • New Findings

    Driving a car with the affected eye can be difficult, especially if there is some tearing as well. However I discovered that keep the body straight and pulling in the chin can stop the eye closure. I wonder if anyone here with the same problem could give it a try. Wearing dark glasses should help too...

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  • After 16years I am hoping to look normal again

    hi, I have had all the treatment every one else has had, and now feel brave enough to have surgery. I am going to Bristol,and Nick Patel is going to do the opp, he seems the best one I have heard about. Can anyone let me know what to expect,as I am very nervious. Thanks guys

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  • HFS and noise in left ear

    I've had HFS for 15 years and have had 2 unsuccessful MVD operations. One of my most distressing symptoms is a continous noise in my left ear (it's left side of my face which is affected). Some days this noise is really really difficult to live with and very often makes sleeping difficult. Has...

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  • Hemifacial Spasm

    I have just been diagnosed with Hemifacial Spasms at the age of 46 - since suffering from daily fluttering in my left eye. Thankfully at this stage it is still only affecting the left eye (I have had this since May last year) and hasn't spread anywhere else. I am beside myself with panic that I...

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  • Advice for hemifacial spasm please

    Hi I am 46 had hfs for 2 years have Botox but now had enough,getting regular headaches because my sleep is interrupted,does anyone take medication for it ??? Was offered diazepam by my gp but does it help please??? Any advice welcome thank you 😊

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