Skip to content

Hemifacial Spasm

All discussions in this group

Next
  • Support Group for Hemifacial Spasm sufferers?

    Hi there, I've had Hemifacial Spams for two years now. They can get so bad the whole of my face is pulled to one side making talking and eating difficult. It's horrible as you're trying to 'fight' your face and when people notice - it's just the worst feeling. I would...

    Last reply
  • My hemifacial spams are gone without surgery!

    I'm a 51 year old guy.  (Irish/Italian/French/English) descent. I've had hemi facial spasms since age 40. At first it was a slight twitch on my eye.  Then, the whole eye was closing with my left side of my mouth and cheek muscles moving. (If you are here on these forums... you know...

    Last reply
  • Bitter taste after surgery for hemifacial spasm

    I have had HFS for four years before having the surgery. The surgery completly cured the spasms but I've had a few side effects, hearing lost which I was aware could happen, but others that where not explained to me, high blood presure not easily controlled and my sense of taste has been altered,...

    Last reply
  • Hemi Facial Spasm Worse After Surgery?

    Hi everyone! My mom has has hemi facial spasm for the past 10 years. Last year around October, she went to have MVD surgery with Dr. Anthony Kaufmann in Winnepeg, Canada. After the surgery, she felt like the spasms were slowly getting better/less frequent. But after 2 months, it is now worse than...

    Posted
  • scared.. Face tingling..twitching

    I was put on Prozac in May 2017 for anxiety disorder with panic attacks. I noticed in July I had pretty bad twitching in my legs and then arms. I decided to get off Prozac thinking that was the cause. In December 2017 I had “pressure” in my forehead accompanied with twitching in forehead, cheek, and...

    Last reply
  • Trying to decide in treatment of hemifacial spasm

    I have read so much here. Having to deal with my hemifacial spasm alone has been hard. At least now I know I’m not alone. I have questions though. It has been determined mine was not a tumor but trauma to the nerve. A year ago I was in a bad car accident. I have many herniated discs..,heD pain ..eye...

    Last reply
  • Dr. recommendation in or near Torrance, CA

    Heavily leaning towards having surgery for Hemi facial spasms. Started with an eye twitch about 7 years ago. Have been getting Botox for almost 2 years. The twitch is starting to effect my cheek and near my mouth. Looking for recommendations near me. Torrance, CA Thank you!

    Last reply
  • Surgery for hemifacial spasm

    I am due to have surgery for hemifacial spasm. Extremely worried due to all the risks. My surgeon said there is a risk of death!! Stroke! Also facial droop. Really want to have the surgery to stop the spasm, but so worried about all the thing that could go wrong. I am 39 with 3 children, I really don't...

    Last reply
  • hemifacial spasm

    hi i have been diagnosed with hemifacial spasm after bells palsy. i have really bad eye twitching, my eyelid closes my cheek pulls up and i am in so much pain. does anybody else have the same symptoms i am being drove up the wall. thank you

    Last reply
  • First symptoms?

    Hi everyone! I am a new member and my english is not good, i'm just 26, a female. I have eyetwitch over 1,5 months, it only happens when i smile, pucker my lips, on upper lid and sometimes lower lid (come and go), Is that the early symptoms of hemifacial spasm? And what should i do if i dont have...

    Last reply
  • PLEASE HELP! Is this hemifacial spasm?

    Hi everyone, I've been suffering miserably with what I think is HFS for almost 3 years. I've been under the 'care' of a maxcillofacial specialist for 18 months with no diagnosis and not much help. I've tried self diagnosing as it feels like I'm banging my head against a brick...

    Last reply
  • Recurring problem after operation for hemifacial spasm

    I had an operation for this condition in March 2016 and by December I was spasm free.However I am now beginning to feel slight fluttering of the eye lid and hope this is not a recurrence of the condition.Has anyone had a similar experience ? Marilyn

    Last reply
  • alternative treatments

    Has anyone tried massage, chiropractic or other alternative actions to help with the HFS? I was just diagnosed and was told that my CT scan and MRI are normal - so I am on a medication for Parkinson's that I don't feel is doing much. I follow up with the neuro on the 28th and really not enthused...

    Last reply
  • Need advice.. scared!

      Hi everyone, I have what I believe to be Hemifacial spasm.  Every single night, while I'm watching TV, my right eye get very dry all the sudden and I have to blink rapidly, then my eye feels very tight, my eyelid closes half way, and my eye brow raises all at the same time.  This...

    Last reply
  • Has anyone tried SCENAR?

    My name is Nicoloa I am 42 years old and in my 4th year of what is becoming my little hell.I have had botox injections for the last 3 years but I dont think they are working anymore . I am wondering if anyone has tried SCENAR? I am currently at my witts end and now trying to find alternatives . I am...

    Posted
  • HFS

    Has anyone had sucessful surgery for this embarrasing condition? I have suffered for 3 years. I have botox but still have a twitch. So depressed with it and want it to stop!!

    Last reply
  • Neurologist Recommendation in Ottawa, Canada?

    I know this a shot in the dark but does anyone know of a neurologist with HFS experience in or around the Ottawa area in Canada? My GP literally does not know where to send me. She has never heard of HFS and apparently doesn't want to research it since she asks ME what I have found in my reading...

    Last reply
  • Advice please

    Hi everyone, I'm looking for some advice. I've been experiencing muscle spasms at night when trying to sleep for over a year now all through my body & have been seeing a Neurologist who diagnosed me with a sleep disorder & recommended that I take Diazepem. More recently my right hand...

    Last reply
  • USA Hospital Info

    Hi, Reaching out to find best hemi Hospital. Also share ink on Botox shots. It's just getting worse....have to move on it. Much appreciated, Stan

    Last reply
  • YKL YKL

    MVD surgery 8 days ago

    I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with satisfactory result, but gradually the injections were becoming less effective. I had my first consultation with Mr K at the NHNN Queens...

    Last reply
  • Occipital neuralgia after mvd

    Did anyone end up with occipital neuralgia after your MVD surgery for hemifacial spasms? Did your surgeon do anything to help with pain? How long did it last? Thank you, I'm suffering

    Last reply
  • Diagnosed 4 year ago

    Hi folks I was diagnosed 4 year ago and offered muscle relaxant but they made me too drowsy and to be honest I'd sooner put up with the twitch .it went away on its own for a few months but has come back with a vengeance . Like someone else on here it doesn't stop when lying down I wake up to...

    Last reply
  • My operation

    Hi Guys, just a short update. My opp was on the 19th June it has all gone well, no more face spasms, I am feeling on top of the world, I am only taking paracetamol, and I feel really well, just very tired and slow, but not in any pain at the moment, I have had my staples out yesterday all was good with...

    Last reply
  • New Findings

    Driving a car with the affected eye can be difficult, especially if there is some tearing as well. However I discovered that keep the body straight and pulling in the chin can stop the eye closure. I wonder if anyone here with the same problem could give it a try. Wearing dark glasses should help too...

    Last reply
  • After 16years I am hoping to look normal again

    hi, I have had all the treatment every one else has had, and now feel brave enough to have surgery. I am going to Bristol,and Nick Patel is going to do the opp, he seems the best one I have heard about. Can anyone let me know what to expect,as I am very nervious. Thanks guys

    Last reply
Next

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.