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Hemifacial Spasm

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  • First symptoms?

    Hi everyone! I am a new member and my english is not good, i'm just 26, a female. I have eyetwitch over 1,5 months, it only happens when i smile, pucker my lips, on upper lid and sometimes lower lid (come and go), Is that the early symptoms of hemifacial spasm? And what should i do if i dont have...

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  • Recurring problem after operation for hemifacial spasm

    I had an operation for this condition in March 2016 and by December I was spasm free.However I am now beginning to feel slight fluttering of the eye lid and hope this is not a recurrence of the condition.Has anyone had a similar experience ? Marilyn

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  • My hemifacial spams are gone without surgery!

    I'm a 51 year old guy.  (Irish/Italian/French/English) descent. I've had hemi facial spasms since age 40. At first it was a slight twitch on my eye.  Then, the whole eye was closing with my left side of my mouth and cheek muscles moving. (If you are here on these forums... you know...

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  • Surgery for hemifacial spasm

    I am due to have surgery for hemifacial spasm. Extremely worried due to all the risks. My surgeon said there is a risk of death!! Stroke! Also facial droop. Really want to have the surgery to stop the spasm, but so worried about all the thing that could go wrong. I am 39 with 3 children, I really don't...

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  • alternative treatments

    Has anyone tried massage, chiropractic or other alternative actions to help with the HFS? I was just diagnosed and was told that my CT scan and MRI are normal - so I am on a medication for Parkinson's that I don't feel is doing much. I follow up with the neuro on the 28th and really not enthused...

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  • Need advice.. scared!

      Hi everyone, I have what I believe to be Hemifacial spasm.  Every single night, while I'm watching TV, my right eye get very dry all the sudden and I have to blink rapidly, then my eye feels very tight, my eyelid closes half way, and my eye brow raises all at the same time.  This...

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  • Has anyone tried SCENAR?

    My name is Nicoloa I am 42 years old and in my 4th year of what is becoming my little hell.I have had botox injections for the last 3 years but I dont think they are working anymore . I am wondering if anyone has tried SCENAR? I am currently at my witts end and now trying to find alternatives . I am...

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  • HFS

    Has anyone had sucessful surgery for this embarrasing condition? I have suffered for 3 years. I have botox but still have a twitch. So depressed with it and want it to stop!!

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  • Neurologist Recommendation in Ottawa, Canada?

    I know this a shot in the dark but does anyone know of a neurologist with HFS experience in or around the Ottawa area in Canada? My GP literally does not know where to send me. She has never heard of HFS and apparently doesn't want to research it since she asks ME what I have found in my reading...

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  • Advice please

    Hi everyone, I'm looking for some advice. I've been experiencing muscle spasms at night when trying to sleep for over a year now all through my body & have been seeing a Neurologist who diagnosed me with a sleep disorder & recommended that I take Diazepem. More recently my right hand...

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  • USA Hospital Info

    Hi, Reaching out to find best hemi Hospital. Also share ink on Botox shots. It's just getting worse....have to move on it. Much appreciated, Stan

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  • YKL YKL

    MVD surgery 8 days ago

    I am a 54 year old man living in North London, who was diagnosed with hfs about 5 years ago. I had botox treatment for about 4 years, the first couple of years with satisfactory result, but gradually the injections were becoming less effective. I had my first consultation with Mr K at the NHNN Queens...

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  • Occipital neuralgia after mvd

    Did anyone end up with occipital neuralgia after your MVD surgery for hemifacial spasms? Did your surgeon do anything to help with pain? How long did it last? Thank you, I'm suffering

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  • Diagnosed 4 year ago

    Hi folks I was diagnosed 4 year ago and offered muscle relaxant but they made me too drowsy and to be honest I'd sooner put up with the twitch .it went away on its own for a few months but has come back with a vengeance . Like someone else on here it doesn't stop when lying down I wake up to...

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  • My operation

    Hi Guys, just a short update. My opp was on the 19th June it has all gone well, no more face spasms, I am feeling on top of the world, I am only taking paracetamol, and I feel really well, just very tired and slow, but not in any pain at the moment, I have had my staples out yesterday all was good with...

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  • New Findings

    Driving a car with the affected eye can be difficult, especially if there is some tearing as well. However I discovered that keep the body straight and pulling in the chin can stop the eye closure. I wonder if anyone here with the same problem could give it a try. Wearing dark glasses should help too...

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  • After 16years I am hoping to look normal again

    hi, I have had all the treatment every one else has had, and now feel brave enough to have surgery. I am going to Bristol,and Nick Patel is going to do the opp, he seems the best one I have heard about. Can anyone let me know what to expect,as I am very nervious. Thanks guys

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  • HFS and noise in left ear

    I've had HFS for 15 years and have had 2 unsuccessful MVD operations. One of my most distressing symptoms is a continous noise in my left ear (it's left side of my face which is affected). Some days this noise is really really difficult to live with and very often makes sleeping difficult. Has...

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  • Hemifacial Spasm

    I have just been diagnosed with Hemifacial Spasms at the age of 46 - since suffering from daily fluttering in my left eye. Thankfully at this stage it is still only affecting the left eye (I have had this since May last year) and hasn't spread anywhere else. I am beside myself with panic that I...

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  • Advice for hemifacial spasm please

    Hi I am 46 had hfs for 2 years have Botox but now had enough,getting regular headaches because my sleep is interrupted,does anyone take medication for it ??? Was offered diazepam by my gp but does it help please??? Any advice welcome thank you 😊

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  • For HFS sufferers: HOW TO SMILE

    Hello Everyone, Since I posted "New Findings", I have not found a lot to help copers and sufferers who have no inclination to an operation called MVD. (the complications reported are not worth it). I still believe HFS is the result of a changed spine configuration - maybe due to a previous...

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  • Microvascular Decompression Surgery

    i had Surgery 6 weeks ago for facial spasms and I'm still experiencing spasms, dizzyness, and hearing loss. Has anyone had the surgery and experienced these things.? If so, how long did it take before you were back to normal?

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  • Has anyone developed HFS after a craniotomy?

    I had a craniotomy for posterior fossa Meningioma in Oct 15 and now since Jan I have had increasing facial spasms. They began around my chin but are now moving up my face. Once it involved the entire right side of my face.

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  • Had mvd surgery two days ago and it was a success!

    I am a 43 year old female living in Chicago that has had hemifacial spasms for the past 9 years. Since my diagnosis I have been getting Botox every 3 months and taking meds to minimize the twitching. Every day i hoped and prayed it would stop and over time it seems Ed to have gotten worse. I saw 3...

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  • clh clh

    How many time can you have the mvd surgery?

    I have had the spasms since 2010 and started with Botox doe two years and decided to get the surgery . In 2012 of April I had my first surgery putting the saline pads between my 7 th and 8 th nerve. The recovery didn't go so good lots of complications but I was spasm free . My head hurts so bad...

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  • hemi facial spasms

    hi my name is chris, im 33 and have been suffering with the spasms for the last 5 year when my spasms arnt that bad it can be something from a bit of twitching on the left hand side of my cheek with minor headache, when there at there worst its as if my whole head is affected as though someone is shaking...

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  • Botox concern

    I have been diagnosed with HFS 2 years ago.  I started Botox around that time with my eye doctor.  Botox helps, however, I wanted to see if other HFS patient's experiment what I do.  First - are you all getting it from eye doctors or other specialists?   Secondly - are you...

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  • HFS and MVD

    Hi there, I have suffered from HFS for about 9 years. In Nov 2007 I underwent MVD and the spasms did slow right down, even to the point that I could go a whole week without one, although not disappear altogether. However, they have come back with a vengeance over the last 2 months. It is as if the...

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