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I've had Hemifacial Spams for two years now. They can get so bad the whole of my face is pulled to one side making talking and eating difficult. It's horrible as you're trying to 'fight' your face and when people notice - it's just the worst feeling.
I would like to keep in touch with fellow sufferers as I have no-one to relate to and to talk to about it who really understands what it's like. Does anyone know if there is a UK based support group I can join? I wouldn't feel so isolated and it might help me to cope better.
Hope someone can help :D
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