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Hello all! I'm in the states and have been dealing with ongoing (off and on) facial twitching since March of this year. Mine started as a constant non-stop fasciculation in my smile line on the left side of my face. Then over a period of a few months, both of my eyes at various times had twitching- pretty constant in top and lower lids. Also around my eye and eyebrow area- very fast fasciculations that would go on for sometimes an hour at a time. Things died down for a few months, but now I'm having some pretty serious twitching around my mouth on both sides. This time the right side is worse, but I have it on the left as well. I was wondering if any of you have had twitching on both sides of your face. My doctors are clueless. When it starts, it looks like a pulsation under my skin, or like there are electrodes attached to my face. I haven't had any of the pulling up of the cheek, or the closing of the eye- so I'm wondering if HFS is even what is going on. I've been at a loss and very scared at to what's happening. Things are so much worse when I'm tired, or stressed, and seem to be a thousand times worse when I'm looking down at my phone. Any help or similar stories would be greatly appreciated! I have another appointment with a neurologist on the 11th of this month- have had an MRI and a Lyme test and metabolic blood tests when all this started- all were negative. Since HFS seems to the be the closest thing I can find to what is going on- I was wondering if anyone had experienced anything similar. Thanks so much!!!!
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