HFS and vertigo?

Posted , 2 users are following.

Hello all. Diagnosed with HFS in February 2019. Had all tests done and there does not seem to be a "seen" blood vessel compression of the cranial nerve. Went to eye specialist...no issues. Went to ENT specialist....no issues. See an acupuncturist for hot flashes and she is also helping me with the spasms. Not curing them, just helping manage the severity. I do believe this helps and I plan on continuing.

However, last week, in the middle of the day with no warning at all, I had a horrible attack which I now know was/is vertigo. Went to ER, tests show no other issues except for this horrid spinning. Went back to neurologist. No help there, only offering Botox which I do not want to do at all. Surgery is not an option according to them as they do not see on any test that I have a vessel pressing on that nerve. They suspect my nerve is just misfiring. Sigh. Anyway, has anyone else experienced vertigo with HFS and have any insight?

0 likes, 5 replies

Report / Delete

5 Replies

  • Posted

    hi,

    Everyone is obviously different but i experienced many many things as a result of what was originally disgnosed as HFS. However, after arranging for an MRI no compressed nerve was found. Instead ,after a number of specialists, neurosurgeons and a bunch of others I was diagnosed with whats called an AVM which was in a very rare instance tapping my nerves. I have been successfully treated and live issue free and its important to not panic and keep pushing doctors to disvover the cause.

    My AVM (which is now gone)mainly caused:

    HFS

    Vertigo

    Hot and Cold episodes

    Dizziness

    Confusion

    Headaches

    I underwent Stereotactical Radiotherapy (sometimes known as gamma knife) AVM stands for Arterio Venous Malformation and whilst very unlikely worth ruling out by doesking to your doctors. The symptoms in my instance were severe, please just mention AVM to your doctor so they have another way of looking at what causes your symptoms. oh! and botox was given to me and very strangely gave me instant relief but it only lasted 24hrs ( must have got lucky??)

    Report / Delete Reply

Report or request deletion

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up