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HFS and vertigo?

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barbara64517
barbara64517

Hello all. Diagnosed with HFS in February 2019. Had all tests done and there does not seem to be a "seen" blood vessel compression of the cranial nerve. Went to eye specialist...no issues. Went to ENT specialist....no issues. See an acupuncturist for hot flashes and she is also helping me with the spasms. Not curing them, just helping manage the severity. I do believe this helps and I plan on continuing.

However, last week, in the middle of the day with no warning at all, I had a horrible attack which I now know was/is vertigo. Went to ER, tests show no other issues except for this horrid spinning. Went back to neurologist. No help there, only offering Botox which I do not want to do at all. Surgery is not an option according to them as they do not see on any test that I have a vessel pressing on that nerve. They suspect my nerve is just misfiring. Sigh. Anyway, has anyone else experienced vertigo with HFS and have any insight?

0 likes, 5 replies

5 Replies

  • nick05593
    nick05593 barbara64517

    Posted

    hi,

    Everyone is obviously different but i experienced many many things as a result of what was originally disgnosed as HFS. However, after arranging for an MRI no compressed nerve was found. Instead ,after a number of specialists, neurosurgeons and a bunch of others I was diagnosed with whats called an AVM which was in a very rare instance tapping my nerves. I have been successfully treated and live issue free and its important to not panic and keep pushing doctors to disvover the cause.

    My AVM (which is now gone)mainly caused:

    HFS

    Vertigo

    Hot and Cold episodes

    Dizziness

    Confusion

    Headaches

    I underwent Stereotactical Radiotherapy (sometimes known as gamma knife) AVM stands for Arterio Venous Malformation and whilst very unlikely worth ruling out by doesking to your doctors. The symptoms in my instance were severe, please just mention AVM to your doctor so they have another way of looking at what causes your symptoms. oh! and botox was given to me and very strangely gave me instant relief but it only lasted 24hrs ( must have got lucky??)

    • nick05593
      nick05593

      Posted

      at the end of the day, i only intend for you to investigate the possibilty! i was a rare case apparently.

    • nick05593
      nick05593

      Posted

      AVM is not a great option. It was explained to me as " so your 40, well done" i am 43 now!!!!

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