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Some background information, I am female, 53 years old reasonably healthy except for the SVT.
I had my first ablation in January 2016 after probably 15 years of symptoms. When I originally had these 'episodes', as I used to call them, they would last 4-8 hours with a rapid heartbeat with all the usual symptoms. I would only get them once a year so didn't really take much notice of them until they started becoming more and more frequent a couple a month by this stage.
I went through the hospital system and was put on Sotalol and eventually put on the list for an ablation. At this stage I was being treated for AF. I had my ablation for AF which appeared to be successful but I was then told that while they were treating the AF they saw that I had an SVT but because it was so close to the AV node they could not ablate as it would risk damaging the AV node leaving me pacemaker dependent.
After the ablation I was never symptom free and within the three months after the ablation i was taken in to A&E almost every other week with SVT that would last hours. I tried all the manoeuvres but unfortunately none of them worked. During this time I went on holiday and ended up in the local A&E department , making sure I had the translation for Adenosine ready to hand before going in.
On my return I had my second ablation they did warn me of the possibility of destroying the AV node but my Consultant was confident he would be able to ablate without this happening. Afterwards the doctors were very happy with the way it all went and told me they had managed to ablate most of the SVT except for a small part that was just too close to the node but that it should not cause me any problems.
After the ablation my medication was stopped and straight away again I started to have attacks Within the three months they were back as strong and as long as pre-ablation. I was given a week event monitor, I handed this back on the Thursday afternoon and Friday evening I had a call from the hospital as they were worried about the attacks they had seen and told me to go back on my medication immediately and that they would arrange with my consultant to put me back on the waiting list for another ablation.
So last November I had my third ablation where the remainder of the SVT that they had been unable to ablate previously was completed, along with a new AF ANVRT and AT. Afterwards I was told that they could not completely ablate the new one they found but about 95% of it so that should be enough to kill the pathway.
On returning home the symptoms recurred and have been increasing in frequency and length 2 1/2 hours last Saturday. Also for about the past 4 months they seem to be coming during the night. I wake up and then within seconds it starts.
The attacks leave me feeling absolutely wiped out especially as they now interrupt my sleep. I am able to use the manoeuvres to stop them which did not work before and usually takes 30-40 minutes except on the odd occasion but I feel now I am at the point where I can't cope with all this anymore. I work in a college and have been taken to A&E by ambulance, I am now exhausted most days as I am having attacks weekly with smaller ones of 2-3 minutes daily.
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