Posted , 4 users are following.
I just came across the forum as I have contributing to hip replacement and just thought I would pop in to say hello.
I was diagnosed with Gilberts Syndrome in 1978 and as far as I am aware I was the first diagnosis in the UK. My diagnosis came about after severe jaundice devloped after having my appendix out.
This missing enzyme that we all have in common affects us in different ways is a benign condition that most GP's I have come across either don't know anything about or make it up!
Signs and symptoms for me...
Mild to annoying jaundice
Metallic taste in mouth on waking
Fuggy brain days
Numerous stones and cysts
Inability to process outside hormones (no contraception pill, some drugs and anaesthetics)
Raised bilirubin tests
Unexplainable aches and pains
Bulky liver (ultrasound results)
I don't need much sleep
A weird kind of pain threshold which manifests in being undiagnosed with a number of things until they got to 'severe' - gall stones, appendix, ectopic pregnancy.
Hints and tips....
I drink plenty of water
I drink alcohol but avoid getting drunk
I take milk thistle to help clean out the liver
I give in when i have fatigue
I have a six minute sun bed every week in winter
I get out in the sun in summer
I have very little red meat
I have a mainly veg diet but will eat chicken or fish
I avoid additives and chemicals like the plague,
I make my own bread and meals from scratch
I avoid salt or anything that is going to make my liver struggle.
I have tried various things over the years and have found that long term clean living works for me.
My symptoms are always worse when my body is under assault from something else, illness, stress etc.
I am aware of my condition but don't let it rule my life. I see it as a pain in the ass sometimes but it's not going to kill me!
Hope this helps any or some of you
2 likes, 4 replies