Advice I feel like I've been misdiagnosed

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Hi there I'm after some other people's experience please I was diagnosed with HS in the early stages off getting boils around a year and half ago as 2 yearsyears ago I started to get boils out off the blue , but as time goes on I feel I don't have this and have something else due to a few thing like every now and then I feel ill like really achy to the point where I have to lay down all off my top /middle back aches and my legs and I feel sickly and have headaches basically feel like I have the flu but don't, I have really ichy skin a lot off the time , I also break out it little s**t blister spots which sometimes get infected and turn into boils , what I would like to know is if other people go through stages off feeling unwell and it's the same feeling every time and weather anyone else constantly gets these little white blister spots , thanks Lucy xx

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  • Posted

    i had a similar experience i got boils on my armpit groin i even got a big boil on my chin. i seen two doctors before they gave me a week of antibiotics it never went away it would always come back in the same spot. well i got a boil so big went to a different doctor turns out i have a staph infection. i think ive had one for a long time i was just mis diagnosed. the antibiotics they gave me are working great. everything is clearing up.

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    • Posted

      Hi April 81226 thank you for your reply , funny u should mention that as all my boils have tested positive for staff infection and they gave me stuff to put up my nose a couple off times and all they said was everyone carries staff on their skin so it will always come back positive , I'm honestly so confused with everything I'm considering going private to get some answers x

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  • Posted

    i also use to feel like i had the flu always tired white blusters that would spread. it was terrible. google staph infection pictures. hope all goes well.

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  • Posted

    this is do confusing right?? Some doctors dont know wth they are doing. They should have put you on medication to get rid of the infection. what did they give you to put up your nose lol. my new doctor gave me Doxycycline 2 a day for 3 months. she also perscribed me retin A to dry it up. you can also buy it online it works great for flair ups even diminishes scars. I know it sucks i literally had to stop shaving everywhere. Sounds gross but when i would shave id get more boils that would leak puss and take months to go away.😳

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  • Posted

    HI Lucy. In the very beginning so many years ago I believe my first boil was a staff infection i contracted from a hospital while watching my niece be born. I had never heard of a boil let alone staph. I was so healthy before this. I know it was at this point I got it because 3 other people also got it as well. I was of course prescribed antibiotics. Prior to this I had healthy skin, no blemishes, could eat anything I wanted. I would heal, then get another boil and the doctors only solution was more antibiotics. MY immune system was damaged severely by the pills. I realized it was time to do things a holistic way. I quit drinking soda, minimized sugar, gluten and nightshades. I work out. Essentially i took care of myself. Took herbal supplements: echineacha, burdockroot, oregonol oil, tumeric, etc. DETOXES. Meditation, more sleep, decreased stress, no tight clothing, showering immediately after sweating. Everyone is different when it comes to the trigger that causes the skin eruption. I noticed I became sensitive to chemicals like bleach ans cleaners. I've gone into remission for months. But as soon ans i ingest gluten or sugar, get stressed, lack sleep, wear tight clothing it comes back in the same spots. I hope something in here helps you. YEARS and research later.... look into the lymphotic system most HS is in an area where we sweat. Also look into EBV. Feel free to messenge me. hugs

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