Advice Lymes?

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I am 26 years old about 4 years this pain started. Severe Fatigue in my legs like the best i can describe is achy legs like if you had the flu and your body aches my legs feel like that. Like a ran 10 miles the night before. I have been to multiple doctors Orthopedics internist GP . Done countless CBC CBM CT SCANS MRIS XRAYS. I also get tingling in fingers as well as headaches for a month straight. My legs hurt everyday in my knees and ankles. Does this sound like it could be lyme. Please i need advice as i feel like im going insane.

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  • Posted

    Hi. It certainly has been one of my Lyme symptoms (blood-test-proven). My legs would often feel like they'd run 10 miles too. And very bad tingling/coldness in hands and feet with headaches - these symptoms have lasted longer than the muscle aches. So you need to try and get to your GP and have a serious discussion about this. This won't be easy but a decent doctor will at least listen to you and discuss treatment. Good luck,

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  • Posted

    You are so young that they must take notice of your symptoms.

    Ask the GP for a Lyme test and Co infections. This will be sent to Porton Down if in  England.

    If you are in US there are are much better tests it seems.

    What other symptoms do you have?

    Tell the Dr you suspect you may have Lyme Disease.

    Some GP's will immediately switch off and others may listen. Lets hope yours will listen.

    Good Luck.

    Meantime watch your diet. No carbs or sugars and drink lots of water with lemon juice.


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  • Posted

    J, 1st you are not going insane. It is ok. We are all here for you & experiencing many variations of what you are expressing. Yes, I think you need to see a Lyme Specialist ASAP. If you are too fatigued to find one, get a friend to research for you. Fly to one, if you must & charge it to your credit card. Unfortunately, this is a disastrous disease for the middle & lower income bracket. But do NOT ever give up HOPE. It is always darkest with borrelia/Babesia/& Lyme's friends BEFORE the dawn when you get meds onboard & kill the spirochete. Make no mistake, you are now at war to regain control of YOUR body/immune function AND you WILL WIN. Hugs.

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  • Posted

    Cap is so right.

    Never give up. 

    One day someone will believe you and  help you with it.

    Today that miracle happened to me.

    Meantime help yourself as much as you possibly can.

    All the symptons you have had I have had too. And many more. 

    Blood tests and all tests  come back good.

    How can they when you  are  so unwell?

    Because these spirochetes hide in the cells and cannot be detected except by special testing only available in Europe and USA and Canada and Australia. And sometimes, if time and stage  of the disease is just right, Porton Down tests come back positive. 

    In  Uk our GP's often are  stressed. They have too many patients and not enough time for each.

    WE ramble on about ailments that make no sense to them and they . can only conclude we are depressed.

    How wrong they are. We are desperate.

    Had they enough time they would do a bit of research. They would listen carefully and maybe start to add things up.

    Tests all come back negative. So they simply turn off.

    Unless you get lucky.

    Believe in yourself.

    Be  one of the lucky ones and  find a good listening Doctor. Try to be very concise and unemotional(yes it's hard- I wish I could follow my own advice).

    Keeping fingers crossed for you

    Ask for a Lyme test plus co infections,

    Help is just round the corner..

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