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I'll try to keep it as short as possible. Around 6 months ago I posted on here detailing some symptoms I had been experiencing. they included-Hoarseness (the first symptom I noticed around july),speech difficulties, weakness in arms and legs, nasal voice, severe fatigue, among many others.
These have gotten progressively worse since then, along with new symptoms.my bloodwork and MRI came backnormal, which has only convined me more that it is MND, specifically PBP or bulbar onset ALS. I'm having an EMG in the next monthand just wondered if anyone with similar symptoms who has had anEMG could give me thier opinion on the possibility of me having this.
Heres where I am now- the hoarseness in my voice has never left, I'm constantly clearing my throat and sound like I've got a blocked nose all the time. My speech Is really starting to trouble me,particularly when trying to pronounce words beginning with 'Tr' or 'Dr'..'trying' is coming out as 'chrying', 'train' is 'chrain'..my tongue just can't seem to produce the right sounds. Also my lips are involved, with 'm' or 'n' sounds. 'I'm going to my mums 'is 'I'm going to mmums', I can't separate the two 'Ms'.
Ive recently developed a constant tingling in both my hands,a bit like pins and needles.My cheeks have started to feel strange,especially when I try to smile. I say try because I'm finding it more difficult to make facial movements and expressions, also my lips come apart when i smile.
My chest is always slightly raspy/wheezy and sort of aches inside. I've developed a runny nose, particularly when eating hot food or when I walk somewhere it will willstart. Also might I point out in regards to the speech, pronouncing 'Th' (as in 'the', 'this') I notice that my sinuses become completely blocked, in fact its incredibly hard to pronounce, something feels blocked nasally.My right eye stings almost all of the time and I've often got a weird tingling warm feeling on the right side of my face, usually above my cheek and temple. Obviously all of this is hard to get across in a few paragraphs but I need to vent somewhere. I've never been as depressed, angry and terrified in my life. I know what it is and I'm just waiting to be told.
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