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My husband was diagnosed with UC around a year ago and was put on mesalazine. In October last year he went through a bad flare up, passing blood & mucus about 15-20 times a day with painful belly cramps. His ibd nurse put him on prednisolone steroids for 8 weeks. After the 8 week course was up he went back to how he was before and his nurse put him on another course of 8 week steroids. The second course has recently ended and again went back to how he was. His nurse now thinks he is having withdrawals from the steroids so is on another 4 week course of them! However this time he is feeling no better on them, if not worse than he ever has done. He has has no energy, has lost a lot of weight and is not getting anywhere with his nurse or consultant, he has an appointment to see his nurse in a month but I do think he needs to be seen a lot earlier but they are not interested. So we don't know what to do now. He has also had 2 IV iron drips in this 6 month period as he is severely anaemic. Has anyone got any advice on what we can do next?
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