Advice needed please

Posted , 8 users are following.

Hi everyone, its been so long since I have posted that I'm sure you dont remember me. I have, however been following all the posts in the last year or so.

I've had a few ups and downs, but I've managed to get down ( at last) to 3mgs pred. My Forsteo injections finished this month (2 years) and I'm still taking the Calci-chew. My rheumy has prescribed Fosamax for the forseeable future and also told me I now have Bursitis in my right hip!! :x This on top of everything else!!

So now to add to pernicious anemia,underactive thyroid, osteoperosis,anemia,ibs and pmr, i now have to try to cope with bursitis!! Sorry, having quite a bad day..

I just want to ask a question and I hope you lovely ladies and gents out there can give me some advice. My rheumy has suggested that,as my esr levels seem to be yo-yo ing and I have to go up and down with the amount of pred I take, I might consider taking mtx.

Does anyone have any advice? Has anyone had any bad experiences?

The reason I ask is that my brother (he has psoriatic arthritis) was put on mtx and thought he was going to die he felt so bad on it and a friend of his who was also put on it thought it was the best thing since sliced bread!!!

Does the effect depend on the person taking it or is it a combination of different drugs being taken at the same time affect the outcome?

Sorry to be on such a downer tonight, havnt felt this bad for a while. Think I'll have a little (well littleish) medicinal brandy and go to bed. :lol:

Night,Night all,Pat. :zzz:

0 likes, 35 replies

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  • Posted

    Dublin Ireland

    I have heard of someone who was taking too long to get going in the morning either her GP or her Rheumy, and I cannot remember which, said to try splitting the dose and taking half at night. It worked for her.

    Might be worth an ask.

  • Posted

    Pauline - I would have reacted similarly but I bet it is part of their questioning rubric and my medical physicist, technogeek husband HAS been known to not have something plugged in and be ranting all over the place :oops: :D . You'd be amazed how many people don't check - and if that is the problem then if the first question is that it saves them a very expensive phone call :wink:

    On other matters - sorry your quest for an RA drug has to continue. I suspect this is a common problem but there are a lot of them nowadays and I suppose they start with the longest serving for both cost reasons and knowledge of side-effects.

    The offer of a fat transplant still stands :lol: :wink: but in the meantime you'll just have to take extra cream on the porridge - can I offer you some yummy wheat-free cake recipes to help with the calorie war?

    Eileen

  • Posted

    So sorry Pauline you are feeling so poorly

    I really hope they find the right drug for you soon Your being better in the afternoon does sound PMR not RA

    I have two friends with RA ( one very badly ) and if they feel bad it is all day not part of the day particuarly if they are having a flare up It is horrible to keep swapping drugs as you dont know if the other ones are still in the system fighting them

    Hope all goes well with the Rheumy I like Eileen can give you lots of kilos I was size 10 in my BMI when this started !! Not now At first it bothered me but now I just feel Im lucky that steroids work for me and that is my most serious side effect

    Best wishes

    Mrs G

  • Posted

    Hi all,

    Well the rheumy was a big waste of 100 euro today :roll: :shock: .

    He sat looking totally confused and told me that I wasn't reacting the way that I should be to the meds,then said that he coudn't inject my poor sore fingers because \"there are too many of them\" :? :o :oops:

    How many fingers is too many, I wonder, as I had always assumed that I had the usual complement of four on each hand plus a thumb each :lol:

    The up-shot was that he gave me a steroid injection in my left shoulder, which was pretty immobile, and told me to continue on 20mgs MTX (give it more time to work !!)and 10 pred until I see him again in 6 weeks, and to take more pain-killers in the interim.

    I would have been pretty fed up with his advice and treatment.....or lack there-of, except that I had received an appointment for the Rheumatology clinic in our local teaching hospital before I went to him, so at least I now have a second opinion to look forward to in two weeks time.

    I had been giving this guy the benefit of the doubt up until today, and trying to assure my hubby that he knew what he was doing, but my visit today tested my faith in him hugely as he really seemed to be struggling as to what the best option was for me.

    I am going to try Mrs K's advice and split the steroid dose to see if that helps the morning stiffness and soreness, as it certainly can't make it any worse :wink:

    I sometimes wish I was my cat.....her vet seems far more in tune and better at diagnosis than the doctors we humans have to tolerate :roll:

    Love to all,

    Pauline.

  • Posted

    Pauline - oh dear, what a lot of money for nothing. Doesn't exactly inspire one does it when you're looking for a positive answer and you get the opposite. Let's hope the second opinion turns out to be more reassuring for you than the first.

    As far as animal treatment from the vet is concerned, many years ago we used to take our dogs and cats to the most wonderful vet, very knowledgeable, very caring and so lovely with the animals - hubby, Mike, used to tell everyone he was sure I made up animals' ailments just so I could see the vet (come to think of it he was quite dishy! :wink: )

    At least, I do hope the injection gives you some relief, Pauline.

    Love

    MrsOx

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