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Advice needed - possible flare

Posted , 3 users are following.

Roda_4445
Roda_4445

Hi friends - my life has been rather complex lately. Have had PMR for 5 yrs, had been on3 mg past 6 mo. Last Feb I was diagnosised with Gall Bladder cancer that had spread to the liver. Both were successfully removed and lymph nodes clear. I am on 3rd of 4 cycles of chemo, solely for purpose of making sure there are no cancer cells in blood stream. Surgeon had been concerned about possible PMR flare but none came. (Surgery was April 14). Past week I have had bilateral low back pain radiating to both thighs, ibiphrophen little effect. Yesterday back pain gone, but in right hip to the point of limping all day. That's gone back and thigh pain back! Everyone on this forum dreads going backwards, but should I try increasing the pred? Big question is by how much to get an effect and then how long before I try lowering it?

your forum has been so much help and I thank you all!

0 likes, 4 replies

4 Replies

  • EileenH
    EileenH Roda_4445

    Posted

    I'm not entirely convinced this is "just" PMR - it sounds more like spasmed muscles in your lower back which are irritating your sciatic nerve and leading to referred pain or possibly bursitis. Both may be better dealt with using other approaches rather than just raising your dose of pred. 

    • Roda_4445
      Roda_4445 EileenH

      Posted

      Thanks Eileen! I think you are dead on! This morning I woke with no pain then bilateral low back. Advil finally kicked in an hr later. Then food shopping kicked off the right hip pain. Shall peruse that avenue. Sounds silly, but a relief not to mess with the pred. Your dead slow method has worked beautifully...much appreciated.😘

    • EileenH
      EileenH

      Posted

      biggrin

      sorry, forgot this forum has emoijis!

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