Advice needed regarding antibiotics not given by hospital
Posted , 5 users are following.
Just over a week ago my partner was diagnosed with a severe water infection caused by his catheter and our GP prescribed Amoxicillin stressing how important it was he took them. He started the course but the following day our GP rang with his blood test result - he had almost total renal failure and was hospitalised the same day. He was rehydrated on a drip and discharged 6 days later but I was horrified when he told me he hadn't been given his Amoxicillin - he'd taken them with him along with other drugs he was on but they were taken off him and locked up. When he asked for them he was told he could only take tablets that were prescribed by the hospital. Unfortunately I was unable to visit him so knew nothing about it until he came home. I rang out GP who said the hospital must have put them in his drip and to check his discharge letter but there is no mention of any antibiotics at all. I found this strange as he was also on long term Trimephoprim. I counted his tablets and found he had been given the Trimethoprim and also his Omeprazole but not his Amlodipine or his Amoxicillin. On rechecking his discharge letter under Detailed changes to drugs since admission & reason it said his Amlodipine have been stopped and Bimatoprost issued as 300mcg/ml (these are his eye drops). No other drugs are mentioned, nor his other eye drops. Then I noticed he had brought two new boxes of tablets home, prescribed by the hospital. These are his Omeprazole and strangely his Amlodipine!
My partner did not seem much better when he came home and despite finishing his Amoxicillin yesterday has deteriorated further over the weekend, it burns when he pees and today he couldn't stop shivering. I rang our Drs surgery today and was asked to take a urine sample in which I did and it tested positive to infection. I then had to wait for the Dr to write a prescription and for it to be filled at the chemist, a total of almost 3 hours, leaving my partner on his own. He is so unwell he's not capable of doing anything for himself, he had his bowel removed in March due to a bowel obstruction and has a bag and I got home to find him in a right mess as it had leaked (again!) but at least I'd managed to get the antibiotics so it was worth it.
I feel very upset that he is suffering as a result of having a 6 day break in the Amoxicillin and feel this is a mistake that should not have happened.
0 likes, 146 replies
kaydi
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It's been a very long day, I just want tomorrow to come so I can speak to that Dr although it's not going to be easy to be civil to her as I feel so angry! I've gone over and over everything in my mind and in my diary and she is the same Dr that failed to follow up after tests around 9 months ago showed negative for malabsorption. She is the same Dr that failed to notice his stomach was bloated when he went to her as he was vomiting continually. She failed to diagnose his bowel obstruction until the vomiting had been going on for three whole months, it was faecal matter he'd been throwing up! She's the one who failed to do the blood tests asked for on all of his discharge letters! Whenever I've spoken to a Dr at the practise it's always been the male one who is also my Dr, he's the one I thought was to blame but I now know he has never even met Don and I presume he was just helping the female Dr out. I feel so much anger and frustration against her for making a bad situation even worse. I keep going over the conversations with the nurses, both the one that took the blood and the one that came the following day told me I had no need to speak to the Dr about my fears of dehydration as they were going to tell her. So she had to have known those blood results were important yet she hadn't accepted and read them! Maybe still hasn't!
Oh well tomorrow is not far away now and all I can hope is things will get moving then.
kaydi
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I've just realised I've forgotten to say that two nurses came earlier this morning and I told them about the Dr not ringing me Friday and said how worried I've been as I knew something was wrong, that he's showing all the signs of dehydration but I couldn't believe it as they just weren't interested. They weren't exactly rude but they acted like I was making a fuss over nothing and just didn't want to know no matter what I said. They then made a quick exit while I went to the loo and didn't even write in the book (all nurses and carers wrote in the intermediate care book to log what care they'd given). I was left near to tears and speechless. So that's when I rang the surgery and it was a great relief when the Dr finally rang.
Anyway two nurses from the Jet Team came out and they were the complete opposite of the two that came earlier but they seemed pretty sure he is not dehydrated as they said he is too alert. I heard them discussing whether to test his urine and when they did they said he's got a really nasty water infection. That's why he's been confused and sleepy and had little appetite they said. I said he's had very little appetite from the day he came home n they said he's probably had this infection the whole time! Unbelievable that no one picked up on it, no one bothered to check despite the fact he's got a catheter so is more inclined to get water infections! What sort of care at home is that?!
They really did try to drum it into Don that he MUST drink more water, they said a glassful every hour and all I can hope is he'll do it as he's barely been drinking a glassful a day! Oh yes the Dr did check his blood results and when she rang the second time she said they showed he wasn't drinking enough. That's all she said so I assume it showed everything else to be ok.
I had a really bad night last night, kept waking up coughing and it was that dry cough that happens with an asthma attack so I was really scared. I only ever suffer asthma attacks when I'm severely stressed, the last two scared me so much I quit smoking after smoking for 45 years, I haven't touched a cigarette since 24thMay this yr. Don still smokes but I use an e cig. I'm hoping I'll sleep better tonight as I am completely exhausted.
eric31962 kaydi
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Do they ever 'care' or are they just trying to protect their little backsides.
I really hope you will sleep well tonight.
Sleep well, Eric
kaydi
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This morning the carer gave him the most thorough wash he's had so far so my comments about no one having washed his feet were heeded. At one point yesterday I got the feeling the team assessing him may have thought I could wash him n I told them this is not possible as I suffer from pompholyx eczema so must avoid my hands coming into contact with soap or any other cleaning products. I also have tennis elbow which my dr refuses to inject with cortisone n every movement of my arm is painful.
Anyway the carers visit this morning was quickly followed by two nurses and they too seemed more thorough, asking when his catheter was last changed. On his discharge letter it says district nurses for catheter care but up until now no catheter care has been given. Hopefully now they know he's had a severe infection all this time they will keep a check on it.
lynne69494 kaydi
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kaydi lynne69494
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All I can hope is they have learned from this and it does seem his care has been stepped up as today the nurse gave him a much more thorough check and it made me realise this was the first time any of the nurses had checked his blood pressure and also the first time any of them asked him how his bowel movements are! Unbelievable considering the stoma reversal! I even checked in the book and there's no mention of checks on bp, temperature etc or his bowel movements!
But it was David's reply to my text update that left me completely gobsmacked - I told him the GP sent a team who diagnosed a severe urine infection that he'd probably had for two weeks and was the cause of his lack of appetite, confusion and sleepiness. David replied 'it sounds like they are taking things more seriously and that things are being caught earlier which is good news'.!!!! I replied that I disagreed with him, that two weeks is too long to have an infection and that had I not kicked up a fuss over his blood results it would've gone undetected for God knows how long. I then added that infections killed one of my kidneys years ago and they cannot be ignored. I have received no reply from him!
Another thing I've not mentioned here is when Don came home his wallet and door keys were not in his bag. He said he'd asked if they'd been put in the safe like other times but was told they weren't in there and nobody knows what happened to them. There was £30/£40 in the wallet, at least one credit card, library card etc and keys on his keyring that can't be replaced but it seems we've just got to accept the loss!
There was more more I wanted to say but I'll have to add it to my next post as Don's waiting for me to get his dinner.
lynne69494 kaydi
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kaydi lynne69494
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On Tuesday I went to collect his antibiotics and Omeprazole only to find the chemist hadn't got his Omeprazole. Went to the surgery n they said it was signed for on Monday, back to the chemist n eventually found there had been a mix up n they will have them on Friday. As it happens I'm on Omeprazole too so they agreed I'm to give him some of mine until Friday. While I was at the surgery I also asked about his long term trimethoprim as he has been on them at least a couple of yrs but it had suddenly occurred to me he'd come out of hospital no longer on them. There's no mention of them on his discharge letter which both I and the receptionist found strange. They are a low dose antibiotic for preventing urine infections. Anyway shortly after I got home Don received a call from the surgery telling him he doesn't need them anymore. All I can think is they said that as he'd been on them last time he got a urine infection so they obviously weren't working.
While I was at the surgery I asked for my inhaler to be added to my repeat script but the receptionist could find no record of the dr prescribing it in May! I know it was in May this year as it was after two asthma attacks I quit smoking but the only record of an inhaler she could find was November 2014! So she made me an appointment with the asthma clinic for tomorrow so I can get another inhaler. I've been warding off asthma attacks by using my inhalers a lot lately n the thought of having an attack only to find an empty inhaler terrifies me.
Reading your post makes me wonder just how many people there are who've been badly let down by the NHS? You certainly have been as have Don and I. I feel sorry for all those receiving care at home who haven't got anyone to keep a check on everything!
I'm hoping things will begin to run smoother now. Like you I feel an apology was called for but know there's no chance!
As for you giving up smoking I can give you some advice on e cigs to prevent you spending a lot of money on ones that won't help. I spent £150 on rubbish and eventually joined a forum and was advised to get a 30w battery called an Eleaf Istick and a tank called a Nautilus mini and it was the best piece of advice I've ever had. I've now got two of these batteries and three tanks and they really are the best. I buy the e liquid to put in the tanks from an online shop called Onepoundliquid, it really is only £1 a bottle and the flavours are amazing. You can get both the Istick and the Nautilus mini tank from Amazon although make sure the seller is from the UK (my first battery took weeks to come as I didn't check!). The batteries are around £30 and tanks around £15/18 although I bought a third as it was only £12.90 but it may have been a one off. You will find with this set up your cravings for cigarettes are gone and I actually enjoy vaping even more than I used to enjoy cigarettes. I started off using 18mg nicotine strength e liquid but have quite quickly reduced down to 12mg and then 6mg and now I'm finding even that is too strong so I now add some 0mg strength to the 6mg.
The battery and tank are much bigger than a cigarette, I much prefer the look of the 'cigalikes', the e cigs that look like a cigarette but none of them are good enough to help you quit and are just a waste of money.
I hope this helps. I wish I could persuade Don to try but no chance. Sorry gotta go as got a Tesco delivery.
kaydi
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Anyway a week later Don started going to the loo then as soon as he got back to his chair he'd be up n back in the loo again. This went on all evening but Don still refused to accept any help! It continued overnight but it was late the next day by the time he finally decided he did need help and he rang asking to speak to a doctor. She rang first n at first she just said she'd write him a prescription for laxatives but luckily I managed to persuade her to come out. By the time she came he'd been hiccuping almost permanently which I know is a symptom of a bowel obstruction and the first thing she did was check his stomach which was distended, another symptom of a bowel obstruction. So you can imagine my surprise when she said she thought it was a bladder problem. She then checked his catheter bag and sure enough it was almost empty. He then said for the first time that he was unable to pee! The doctor arranged for a district nurse to come to check for a catheter blockage. While waiting for her Don started shivering uncontrollably and when she arrived she checked his temperature which was 39.9 and blood pressure which was low, he also complained of severe lowerback pain which he said felt like kidney pain. She asked him to lay on his bed so she could check his catheter but it was as if all his strength had disappeared as no matter how hard he tried he just couldn't get up out of his chair! After almost an hour she said she had to go, that there was nothing she could do as she needed him lying down to be able to check the catheter n change it if it was blocked. She arranged for another doctor to come to reassess him. He just sat staring into space n when I mentioned we'd been waiting a long time he asked what we were waiting for- he wasn't even aware another doctor was coming! Eventually that doctor came n he arranged for an ambulance saying he'd have to be taken to A&E. He said he wasn't going to hospital but the doctor said it was just to A&E to check n change the catheter n then they'd bring him home again. Again while waiting he just stared into space n again seemed to forget we were waiting for help. The ambulance arrived 3 hours later at 1am! They transferred him from his chair into their chair but he was so ill by this time he couldn't even sit up in it n kept flopping to the side! I had a feeling he wouldn't be brought back and I was right, he was admitted. His catheter was blocked and he had got a UTI and was given more antibiotics. This was Thursday and he's still in hospital being assessed daily. I was just relieved he hadn't got a bowel obstruction. As for his floating stools and frequency I've told the doctors but no one seems concerned so there's nothing more I can do. If there is a problem he's in the right place, I know he had a liver scan yesterday so they seem to be checking him thoroughly.
I'm now making the most of the much needed break from caring for him.
lynne69494 kaydi
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kaydi
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He only had two antibiotics left which I gave him yesterday and I'm surprised there is no mention of having another sample tested to make sure the UTI has cleared up. In fact there is no mention of any follow up treatment! It says the fluid is not suitable for drainage, he's got tablets for his thyroid but these are not even mentioned in the letter! Sorry I've just noticed it does say Review against the antibiotics but I've a feeling no one will!
Under reason for admission it says Raised temperature, Blocked catheter and None opening of bowels but that's the only mention of his bowels!
Oh well I'll just see how he goes, he is definitely much better than before he went in.
lynne69494 kaydi
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eric31962 kaydi
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So to all intents and purposes you are a first line carer and treatment technician all in one. !
It seems so much in the health service all are equal but some seem much more equal than others. I'm involved with a couple of health cases, but not as deeply as you must be , are !
Sorry have to dash , thinking of you ------- Eric F.
kaydi
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Yes, Eric I had a lovely week of relaxation, thank you. I've been recovering a massive cat activity centre that had become tatty and I've almost finished it. Then I've got to rebuild it without instructions which will be a challenge. If I manage it the whole thing should look like new and I'll be really pleased as I recovered it using four fleece covers costing £5 apiece.
I'm not sure Don is as well as I first thought as he's slept a good part of today and last night he said a walk up the hall to the toilet left him feeling exhausted!
I suspect the hospital may have needed his bed as nothing had been said about him coming home Friday, they just sprung it on him telling him his transport was waiting! I normally receive a phone call telling me he's coming home but not this time and if he'd been five minutes later he wouldn't have been able to get in as I was getting ready to go out! His front door key was lost last time he was in hospital n we still haven't managed to get another one cut.
So I'm hoping he hasn't come home too soon but I'm sure he shouldn't be sleeping quite so much. I really don't like having this responsibility on my shoulders but I've learned from experience Don has to be at deaths door before he'll accept medical help!
By the way it's good to hear from you again Eric, you certainly sound like you've been very busy caring for your friends, they are lucky to have you.
And Lynne, did you manage to quit the cigarettes? I persuaded my daughter to buy a tank and battery e cig the same as I use and she's not had a cigarette since :-)
lynne69494 kaydi
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kaydi lynne69494
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BTW I called in the surgery Friday n asked if the blood results were back from when they sent a nurse out almost two weeks ago (they weren't back when I asked on Tuesday). They were back but the receptionist wouldn't tell me, she said I'd have to speak to a doctor!
I've got six cats, cats have always been the love of my life, I adore them and totally spoil them, they have every cat toy you can buy and cat trees in every room of the house bar my bedroom - that's a thought, since Don's bed seems now to be permanently in the living room as he uses it a lot in the daytime, there is lots of space in my bedroom so they can now have a big cat tree in there :-). Think I'll go have a look on Amazon n eBay ;-)
lynne69494 kaydi
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