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i have been having test, after test, after test now for over six years. Yes SIX years. This is due to what the consultants refer to as false positive and false negative results. Many of these are contradictory and need doing again and again. They keep telling me I DEFINITELY have the condition, they just have to prove it, and find out why!
So so far both a CAT scan and an MRI have ruled out the pituitary gland. A CAT scan indicated a nodule on BOTH. Adrenal glands, and venous blood taken in the radiology dept (forget the procedures name) indicate that BOTH these nodules are 'pumping out' almost the same amount of excess hormone! It has even been suggested that there may be a 'hidden' nodule somewhere in my chest cavity. Very rare apparently and almost impossible to detect. So more bloods, yada yada.
i could almost put up with all the back and forth, the various blood tests and so on. But what is really driving me nuts is the virtually constant pains in my upper arms and thighs. There is just no respite.
as for sleep! Well, I wait until the pain has reduced to a dull ache, and grab a few hours, until it wakes me again. I find myself moving from chair, to bed to chair. Juggling three different pain killers, and calling upon my son to rub analgaesic gel into my back, or even, sometimes simply administering a gentle massage up and down my back. Which has become so very tender I can feel every bone!
do others experience this pain? And if so, how do they cope?
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