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advice on ILP

Posted , 1 user is following.

Guest
Guest

Hi there

I writing this in the hope that some one out there will be able to help me ,+hopefully reply.I have irrosive lichen planus of the mouth+vulva.

My mouth has cleared up for now+im having treatment done by injections

for my vulva, which is painful to say the least, but its nothing in comparisson to the pain im constantly in with the disease itself.

I read somewhere that there is alink between it and red foods,eg tomatoes strawberries, peppers etc.

Please can anyone of you out there tell me if there is a link+any other advice on this truly awful disease.MY dermatolagist is very good and understanding. I thought i was causing it to get so bad by getting stressed, however he told me and i quote (it the pain thats so bad thats causing you to get so stressed ) So to all you poor unfortunate people like me , remember, it is indeed the pain that causes the stress.

I was so bad i cant cry any more+iv told my dermatolagist (im all cried out, nothing left in me ) SO please some one if yu have ant info, Please share it with us+maybe we can all help each other :arrow: :cry:

0 likes, 5 replies

5 Replies

  • Guest
    Guest

    Posted

    Lillymilly

    the forum UKLP. You will get information and advice on this forum. Join it now. You need some advice from other women who have lp and you will get advice from people who suffer like you. Use the same name Lillymilly and we will recognise you. we can have long chats there that will give you hope and courage. God bless you.

  • Guest
    Guest

    Posted

    Lillymilly

    Do you use aqeuous cream as moisturiser in the vulva?? You can buy a tub of it in all chemists including Boots. This will help you a lot. You use this aqueous cream as a soap substitute to wash your whole body with and your vulva. NEVER use soap. Then use it to moisturise your body and your vulva as your vulva is very dry and needs to be moisturised. Use this aqueous cream every time after you use the toilet.

    Always rinse the vulva after the toilet and then moisturise. Then use throughout the day when you feel dry. I feel very sorry for you as I think you are not being advised properly. Look after yourself and ask any questions you need.

  • Guest
    Guest

    Posted

    Hi there

    come and join us on ****. and you can chat with us

    [color=red:a89a74e694][size=9:a89a74e694][b:a89a74e694][i:a89a74e694](Sorry but Patient Admin have removed either a telephone number, an email address, a postal address and or web address, from this posting, as it is the policy of Patient UK not to publish these on this forum.

    If you wish to communicate directly with people, you should register, for free, with the forum (click Register in the menu list below the green banner above). You and other registered members will then be able to communicate with each other via Private Messaging (PM) or e-mail.) [/i:a89a74e694][/b:a89a74e694][/size:a89a74e694][/color:a89a74e694]

  • Guest
    Guest

    Posted

    lso for the advice on the aquais cream, i will definatly try that as the barrier get very dried out so quickly.

    Yes i have been given the wrong advice+im only finding out tha hard way, as iv already written on this site before(it dated may 10th +it on the main page.Please god your advice will help me +if you see anything on the main page that iv writen that you can help or advise me il be very gratefull.

    iv to log off for now as i cannot sit any longer.

    I would really appreciate you help

    yours sincerly

    lillymilly

  • Guest
    Guest

    Posted

    Hi..i too suffer with vulvar lichen planus. Salt baths help alot i have these every night, and natural yoghurt on the area as it is more likely to get thrush when you have this. i also see a homeopath who is great..i will let u know the name of my tablets as i am waiting for more and cant remember the name. but it is definately worth going to see a homepath. I only use steroid cream when i get a huge flare up. I use eperderm cream that helps keep it moist, i use that about 4 times a day. Also calendula cream that u can purchase from boots which helps heel the area.

    im just nervous that its going to get worse. was you initial attack the worse or did it carry on getting worse?

    I hope my advice helps for u.

    Good luck.

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