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Lichen Planus

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  • Oral lichen planus - not getting any relief after 2 years

    I am getting so down and frustrated with this condition. I finally went to the doctors about 2 and a half years ago after having noticed sore mouth ulcers never healing for over 6 months. I had a biopsy and they confirmed oral lichen planus. Since then I go to the hospital every couple of months and...

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  • Can Vulva Lichen Planus Spread

    I was diagnosed with Vulva Lichen Planus (biopsy) a few months ago.  My Dr put me on Clobesteral every night for 30 days then every other night for 30 days.  Got it pretty much under control.  Now it is in my anus area and I'm back on med every night for 8 wks.  Have any of you...

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  • UVB treatment for Lichen Planus

    Hi, Has anyone tried this to treat this condition? Have been offered both UVA or UVB but thought I’d opt for the less intense one first and see if that has any effect. Would really appreciate other people’s views on this treatment and it’s efficacy / side effects.

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  • Oral Lichenoid Reaction

    Hi, I was recently prescribed sertraline for anxiety, health anxiety in fact and it resulted in oral lichen planus on the inside of one cheek. I stopped the medication immediately but it has persisted (for over a month now) and has actually got quite sore. There is an ulcer as well as the white lacy...

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  • Lichen Planus

    Hello, I am new here, it was nice to find this group and notice that I am not alone with this disease. I have LP in my oral and genital, it is regulary controlled in hospital and somethimes they takes biopsies.  They haven’t ever got confirmation for my disease from biopsies, but several doctors...

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  • LP in my hair!

    I forgot to mention in my last post that I changed shampoos and had small itchy sores along my hairline and under my eyebrows.  Is their a special shampoo I can use?

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  • What I do for my LP

    I appreciate the tips I have gotten from LP suffers.  I have vulva LP and anal LP and oral LP.  My dermatologist said not to bathe/ showers only.  She prescribed Clobetasol which I  use daily.  I cut up a t-shirt of my husband's into small squares and that is what I use to...

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  • Please help me with Lichen planus

    Hi people  I've been suffering from lichen planus on my leg for about 8 years! Actually I first got LP in 2009 and suffered like 3 years,and it settled down slowly! Now I got it again,spent thousands on medicine! Nothing worked out!  Please help me on this, and the damn scars(even I have...

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  • How to use Dermovate when a flare occurs?

    Hoping that somebody is able to help with this. I have vulvar lichen planus and was discharged from the dermatologist's care a month ago as all the inflammation had cleared. For the past year I have been using Dermovate daily for a month, then twice a week for a month - and repeat! She did say that...

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  • Oral Lichen Planus

    I got diagnosed with inflammatory lichen planus 2 years ago. Certain foods really get my gums inflamed. I see my periodontist every 3 months for deep cleanings....but this is what I do daily that saved me: 1) every morning and every evening before I go to bed I gargle coconut oil (before brushing) for...

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  • Blisters

    First of all, so happy to find this group! My question is does anyone else have small  blisters? These are always in the same general area of my inner lower gum toward the back. All I can think of is maybe the lime juice I had in a drink a couple weeks ago? The weird thing is they come back now...

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  • Lichen Planus no joke

    I have suffered from this for 7 years.  First showed up in vagina area and doctors kept saying it was a yeast infection.  Finally they did a biopsy and it was confirmed.  Then 5 yrs. ago got stage 3 breast cancer.  Of course lost all my hair from chemo but it grew back not 100 % the...

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  • Lichen Planus Drug Eruption?? Please help

    Hello Everyone, I've been suffering with this condition for over 2 months now.  It first started off as itchy dry scaly spots but now it has covered my whole stomach, upper arms going down to my forearms now, and vaginal area. I was first diagnosed with pityriasis rosea but a biopsy confirmed...

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  • My cure for olp

    I have had lichen planus for many years, both oral and genitalia area.  I was seeing an oral surgeon 3X/yr to check the ulcer inside my cheek.  Visits now 2X/yr. I have cured the olp in my mouth, but still fighting the other area.  My olp cure:  equal parts solid coconut oil and baking...

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  • Flu jab

    Ive always avoided the flu jab but work in a hospital and they are keen for staff to have flu jab. How i wish I had never had it. I was immediately desperately ill for weeks, I went out like a light! I then started losing hair and itchy and red scalp. Yes lichen planililaris! Its definitely an illness...

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  • Lichen Planus Blues

    Hello everyone, I was diagnosed with OLP two weeks ago, after suffering from horrible flare ups for the past 18 years. Every doctor was stumped, and I have missed out on so much in my life because of these painful sores. I thought that I would feel relief and happiness after finally knowing what this...

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  • Has anyone tried CBD lotion/oil for thier LP?

    Ever since my LP has started I've dealt with muscle stiffness and spasm. I 've read that CBD helps with skin conditions and also muscle spasms so I tried it, and let me just say....I'm impressed with the results. My spasms has stopped and my scares are clearing up. I was just wondering if...

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  • Lichen planus

    Had this for over five years and just keeps getting worse.....what remedies are out there that will work

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  • OLP and my experience.

    So delighted to have found this forum, you have no idea.  Been suffering OLP since 2014, diagnosed 2015, didn’t start treatment until March 2018, mainly because I was hoping it would go away.  The professionals don’t seem have a clear understanding about maintaining it, I know it can’t be cured....

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  • Vlp and clobetasol

    Hi - I have been using Clobetsol for about 6 weeks, which has helped a lot with the itching. I still have an extremely red area and was wondering how long it takes for the clob to heal the redness? Thank you for any help!

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  • Recently Diagnosed with Lichen Planopilaris (scalp)

    Hello all.  I'm a 30 year old male hoping to gain some valuable knowledge and insight from this community, as it's been a major struggle dealing with this disorder. I've been fighting with the following symptons on my scalp for ~2 years now: red, inflammed skin, no flakes or scales,...

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  • OLP and implanted denture

    My maxifacial surgeon wants to remove my 11 lower teeth and put an implanted denture with two post. I.m worried my erosive OLP will get worse and I will wind up with no teeth instead of bad teeth. Will the implants heal? Has anyone done this? How did it go?

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  • Oesphagus inflammation

    I had an endoscopy recently which showed inflammation in the oesphagus I already have lichen planus orally and vaginally when I saw the consultant I asked if there could be a connection he dismissed it straight away and just said no I,m now being treated with proton pump inhibitors and he's just...

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  • Oral lichen planus

    just been diagnosed with OLP. Started right after I had extensive cosmetic dental work done and only around tooth/gum area. Currently mouth washing with dexamethasone, a steroid. Seems to help until I eat chili or Ranch dressing. Then I have to use again. Any other experiences?

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  • VLP info

    Need as much info on VLP as possible. I was diagnosed years ago & given Triamcinolone cream for flare up but lately been worse, painful, itchy & possibly spreading to back side. Uncomfortable daily & skin always seems soar/itchy 😥 what are some sympoms? What are things I should be...

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  • VLP Symptom

    I was diagnosed with VLP in July 2017 after having urination problems since March 2017. I am 67. Now I’m experiencing slight leakage and feeling like a few drops of urine still left upon rising from the toilet. Vulva have shrunk and vaginal opening is small but experience no pain or itching thank God....

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  • Mercury filling testing

    Does anyone have any ideas where to start to have tests done for reactions to mercury compounds ? Is it via GP or Dentists? Cannot seem to find any info online? Thanks

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  • VLP Questions

    I have been having what I thought was recurrent yeast infections for quite some time. I finally saw a new gynecologist yesterday and she took one look and said she thinks it is VLP. She did not do a biopsy but prescribed clob .05% and told me to use it once a day. And to only use a pea sized amount...

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  • Tests for allergies to dental materials

    Hi, I have LP and also have white streaks in my mouth.  I am thinking of having implants and wanted to do tests for sensitivity to dental materials prior to the procedure.  Anyone having LP done such tests? And what type of test did you do? Appreciate any info.

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  • Wife may have OLP

    Wow! I did not realize how hard it is to diagnose OLP. I think my wife may have it she has pretty much through all you have the dentist to the oral specialist her personal doctor and has been through 2 biopsy's which were negative. But now her mouth is getting more worse with soreness. She has a...

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