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Advice on posterior tibias tendon dysfunction (or progressive flat foot)

Posted , 3 users are following.

cristianeukbr
cristianeukbr

Dear All

I have posterior tibias tendon dysfunction, commonly known as progressive flat foot, on both feet. I have this problem for more than 1 year and need to see a very good foot and ankle surgeon (private or NHS). Do you know any one that you could recommend? I live in Brighton, but I am flexible. I am desperate to see a good specialist. 

I also would like to know about your experience with this condition. My life has changed so much. As much as I walk, more painful it gets. I am on and off an aircast boot, I used crutches, I use my bike to go everywhere, but cant cycle for a long time. Hard, I tell you!!!!

Thank you so much for your advice!

Cris

0 likes, 7 replies

7 Replies

  • cristianeukbr
    cristianeukbr

    Posted

    I meant "tibialis". Sorry for the mispelling!
  • Nikky8
    Nikky8 cristianeukbr

    Posted

    Hi Cris

    Sorry to hear about your painful feet.

    My name is Nikky and I've recently had complex reconstructivery surgery in both my feet . I know your pain. Surgery on ones feet is pretty hard work as the non weight bearing recovery is a killer. (3 months in my case)

    I had both my feet done in Guys hospital London in 2014 and 2015 and can recommend Mr Roland Walker .

    He's a genius and is a lovely guy.. .very down to earth.

    The orthopaedic team at Guys and St Thomas are the best in London. Mr Walker is a nhs surgeon so you would need to get referred to him by your GP.

    Good luck in your journey !

    Nikky

    • cristianeukbr
      cristianeukbr Nikky8

      Posted

      Hi Nikky

      Thanks so much for contacting me and sharing your experience. That means a lot to me.

      Did you have problems with the posterior tibialis tendon ? Do you you feel better after surgery? Any limitation?

      My arch hasn't collapsed and I have full function on my tendons. The problem is the pain I feel with the minimum effort. And it travels up the legs up to the knee. I can't even go to the supermarket. I'm suffering from this for more than one year. 😞

      I'm definitely going to check Dr. Walker. Thanks for helping me.

      Cris

    • Nikky8
      Nikky8 cristianeukbr

      Posted

      Hey Chis

      Yes, I had the same pain as you : (

      Once it's like that you have to get it seen to as the simple things in life becomes unbearable .

      I was born with fast feet and had a birth defect in both too . I had no arch at all. These ops take a long time before we feel the benefits. With my r foot I certainly enjoyed a pain free 3 months last year before my op in Nov 2015. My r foot op was in June 2014 . My r foot is hurting now but that's because I've had to hop on it for the last 3 months . Im sure it will stop hurting once I'm equally weight bearing.

      Hopefully you get to see Mr Walker as he will give you the best advise . If you are eligible for treatment within the NHS you have the right to be referred to a doc/surgeon of your choice . It's a specialist field and Mr Walker is passionate about his work which is why he's so good at what he does.

      Nikky

    • cristianeukbr
      cristianeukbr Nikky8

      Posted

      Thank you Nikky. Sorry to hear about your pain. We need to be strong to overcome this. Your advice is valuable for me. I really wish you a good recovery and I hope you can feel better sooner than you expect.

      Thanks for your advice. I will do what you said.

      All the best

      Cris

    • Nikky8
      Nikky8 cristianeukbr

      Posted

      Hi Chris

      Have you had any progress with an appointment to see anyone about your feet?

      Nikky

    • cristianeukbr
      cristianeukbr Nikky8

      Posted

      Hi Nikki

      Nice to hear from you.

      I decided to see David Redfern as I also read good things about him (and he is 5 minutes from my place). I wanted to see him last year but he was not on Bupa. Now he is : - )

      I quite like him. He did a thorough examination on my feet and sent me off for tests. He disagrees with the previous doctors who diagnosed me with posterior tibialis tendon dystfunction. My tendons always functioned well, and still are.

      I had another ultrassound (the third, since September last year) and nerve conduction studies. All normal! But the pain is still here. It's better than before but I think this is due to time and the physio exercises I do on my own, air cast boot and crutches (I try to take the load off my feet as much as I can). This week I am going to London to have a SPECT CT. I hope, something will show.

      I have also been to see James Alvey on the NHS. A friend recommendd him to me. He also disagreed with the previous diagnosis. I am going to have another ultrassound scan on the NHS and the doctor will ask some specific questions. He thinks I might have tarsal tunnel syndrome. 

      I feel frustrated because for more than a year I thought that I have one thing but now, I know nothing about my pain. ButI feel happier as I see some improvement.

      And what about you? How are you keeping?

      Cris

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