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I am looking to learn from your experiences. This Tuesday I go in for more tests, additional MRI and a CAT scan as well as follow up with my Otolaryngologist. I want to make sure I am asking all of the right questions. He thinks this is congenital and I have just now been diagnosed at age 50 so I am a little scared of what these additional tests will show. Here is what I know so far Profound hearing loss problem ear and some hearing loss in the other ear, Have also been suffering from long-term balance issues and fatigue. He is planning on a radical Mastiodectomy with facial nerve decompression as needed. Enclosure of the external auditory canal. He said I will take several months to recover and will need physical therapy for my balance as I will have no balance function on the right. He said I will need yearly MRIs as follow up ( chance of reoccurrence 30% ) and possibly a second look-see surgery in 6-12 months after surgery. Ok amazing people what questions do you think are most important to ask or that you wish you would have thought to ask before surgery. Thanks in advance.
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