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Cholesteatoma

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  • Popping and muffled sounds in ear after chelesteotoma surgery

    I had a chelesteotoma surgery and repaired eardrum about 5 weeks ago and I just went back to working out and when I was doing exercises that raised my heart rate my ear starting popping and sound felt muffled and I could hear my breathing out of that ear. Should I be worried. I'm calling the doctor...

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  • Continuous wet ear

    Had 1st mastoidectomy in 2011 which went well, then the Cholesteatoma returned in 2014 and had a 2nd mastoidectomy. During the 2nd surgery they removed a portion of my ear canal so they could look into the Mastoid with a scope rather than having to wait for weeks at a time for a CT Scan. I...

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  • Clostoma needs more research

     Hi iam 22 my names kirsty  I have problems with my ears every day since I was 3 years old  started off as a pulp in the ear but then had constant infections up until a year ago and got the devastating new I had a clostoma in my right ear along with mastoid surgery .  Then I whent...

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  • C-Toma

    Hi all can anybody share there experiences please as i am now suffering with constant ear ache in my opposite ear after 16 months since i had my C-Toma removed.My consultant has said that the ear is clear? so why am i constantly in pain,has anybody experience this too? I am also still not 100% right...

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  • Hearing after cholesteatoma surgery

    I am 22 and was told I have cholesteatoma yesterday. Even after getting recurrent infections in my right ear once every year for the last 6 years I did not think a condition of this nature would exist. So it came as a major shock to me! I know it is rare but if not treated can cause many complications....

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  • My experience with Cholesteatoma

    Hi everyone i just want too share my experience with cholesteatoma, due to the fact when i was diagnosed with it, i really couldn't find much on the internet about it. It was a very confusing thing for me to mentally deal with. My name is ben and throughout my whole child hood life, i had continuos...

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  • Granulation after CWD mastoidectomy

    I had a canal wall down mastoidectomy in 2013 to treat a rare (and very large/complicated) external ear canal cholesteatoma. Everything has gone well until a few months ago when we discovered granulation tissue that has formed in a part of the cavity, possibly caused or at least exacerbated by attempts...

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  • Mastoid Obliteration vs Ear Canal Enlargement

    I've had at least 3 mastoidectomies, 4 tympaniplasties, the ossicles in my right ear are gone, and I wear a BAHA. 2 weeks ago I met my newest Specialist, who told me that a combination of tiny ear canal and where the drainage sits in my mastoid cavity they are cleaning "blind". He gave...

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  • Mastoid cavity obliteration

    I am on the waiting list for one of these operations. I had a radical mastoid op when I was 11 am now 45 and having serious pain so after many oils ointments and sprays this seems like the last ditched attempt. Having had the op explained to me I was wondering if anyone else had had it done. 

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  • Bleeding out of ear....normal?

    Hi,  I was diagnosed with cholesteatoma about a month ago. My surgery is scheduled for September 27th. I was finally diagnosed after a very painful month long infection. The infection is gone now and I feel no pain. I have been getting discharge out of my ear; Mostly wax and some white cheese-like...

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  • Cholesteatoma - KTP Laser or Traditional Surgery

    Hi, My 8 year old son has been diagnosed with c-toma and is going through initial diagnostics. He has been diagnosed with it in his right ear and he has significant loss of hearing there. His left ear has a lot of wax and needs cleaning which the doctor could not remove in his surgery. The short we have...

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  • cholesteatoma worry

    Hi - our son of 6 has had ear infections on and off for the past 2 years. Initially a grommet was put in and since his hearing didn't improve they performed a recent operation to Investigate. we have now been told that he has cholesteatoma. When the doctor explained this to us he said that it...

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  • Experience with KTP Laser surgery ?

    I just got diagnosed this year with a Cholesteatoma, after a heavy mid ear inflammation in June, following a severe cold. Before that I had no problems with my ear. My hearing was virtually lost during the inflammation but recovered pretty well, I guess only a 30 % has gone in my right ear. I live in...

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  • Anyone only have one surgery?

    I keep reading these stories of everybody having multiple surgeries. Has anyone only had one surgery, and never had their cholesteatoma come back?  I've had two surgeries, one to clear the cholesteatoma when I was 10, and one to clear scar tissue on my rebuilt eardrum, and check if there was...

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  • worried about cholesteatoma op

    Hi, My name is Chris and in Oct of last year (2009) I had very bad pain in my right ear and started to get some foul smelling ooze from my ear. When I visited my docs I was told that I had a very small hole in my eardrum, but it was nothing to worry about as it would heal fine. After several visits...

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  • Chlosteatoma surgery, leaking stitches!! please help!

    Hi, My girlfriend had chlosteatoma surgery a week and three days ago, everything seems to be healing pretty well. Then about two nights ago she woke up in a little pool of blood/fuild leaking from her dissolvable stitches which smells like the disinfection pack in her ear. Is it normal the have a leak...

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  • scl scl

    cholesteatoma op & recovery

    When my 14 year old son was diagnosed with cholesteatoma last year, I rushed home & searched the internet for information. I found a very good site that explained in more detail what I had been told by his consultant & this one giving people's experiences (perfectly understandably...

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  • Please help cholsemetoma

    I have a cholsemetoma, and have been putting off surgery for 5 years as I'm petrified of hospitals and going under. The last few days I have been getting the worst dizziness and I'm really worried

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  • 6 year old daughter recently diagnosed

    Hi there, My daughter has been having chronic blood and smelly discharge from her ear for over a year.  She has recently had a CT scan which shows a cholesteatoma.  She is scheduled for surgery in March.  Her hearing is below average in the affected ear and I was wondering if her hearing...

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  • Cholesteatoma - Numbness

    Hi there,  I am 24 years old and have recently been diagnosed with "the monster". I have suffered with ear problems for as long as i can remember, I've had endless amounts of grommets inserted as a child and as an adult i have had 2 myringoplasty/tympanoplasty operations.  I...

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  • Something like mucus on my throat

    Hi everyone, Life was running all fine till the day I felt like there's something stuck on the back of my throat, and it has been exactly a month today. At first, I just ignored it, thinking it was phlegm and would go away within a day or two. After some days, as the problem persisted, I visited...

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  • PreOp symptoms and coping

    I have been dealing with ear pain, pressure and fullness since the beginning of may. After 3 antibiotics and 2 steroids I made my way to the ent who poked a hole in my drum and tried to drain and vacuum. Noticed something that wouldn't come out and put me on some drops and more steroids. 2 months...

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  • Long life cholesteatoma sufferers

    HI..I am a veteran of cholesteatoma.Had 9 surgeries .Lost all the hearing because of being misdiagnosed for 20 years.Now I am 41, waiting for a surgery to repair one labirinthine fistula (which gives me bad vertigo) on the right ear.On the left ear I have cochlear implant that needs to be replaced because...

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  • Plz help I'm worried

    So for the last 4 months I have been having sinus issues sore throut eye pain ear pains not bad dough and ringing nice and both sides of mastoid bone ache and have a small swollen lymph nodes I'm a healthy 26 year old male. Doc says not to worry and said it's allergies but I've never had...

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  • Congeital cholesteatoma

    My 14 year old son had  poor hearing in one ear and as his speech was absolutely normal it was not detected until he was 7. After many appointments -mainly because I was in denial that there was anything wrong -a scan confirmed a congenital chloesteatoma. They new itwas this beacause he has never...

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  • Surgery in 3 weeks time, what to expect when recovering?

    Hi, i was diagnosed in 2016. i have my surgery in 3 weeks time on March 27th. I am absolutely terrified. Its hard not knowing what to expect when you wake up. my main concern is if it effects my facial nerve and not knowing how my hearing will be. ​is anyone who has already had their surgery able to...

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  • I had a successful mastoid surgery, can I help anyone?

    In March I made a post on this talking of how fearful I was for I had been diagnosed with Cholesteatoma, reading over it brought back alot of memories of how scared I really was and how at the age of 14 I was left uneducated on my diagnosis dismissed as being merely a kid who was likely to not understand....

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  • External canal cholesteatoma anyone?

    Hi anyone, its been over 2 years since I first went to my GP with ear ache, deafness and worst of all the feeling of something alive crawling around in my ear canal. Treatment by anti biotics and monthly syringing was my initial treatment not the best course of action for c'toma but hey why should...

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  • White chunks, tinnitus and pressure

    Hi all I see the consultant again on 11 April. Will have microsuction as my ears are so blocked. I have dug out some huge white dry chunks and that gave some relief, but it's building up daily. I'm really worried about my facial nerve as my face on the ctoma side feels weird - like cold. My...

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  • Pain in Jaw after mastoidectomy/tympanoplasty

    I am 41 and had smelly drainage out of my right ear for decades and I was always prescribed ear drops and sent home...Finally a PA looked and didn't know what she was looking at so she sent me to ENT...She saw cholesteotoma right away and I had surgery on my right ear January 13th it is now the end...

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  • Family history of ctoma

    hi again My maternal uncle has had ear probs all his life he now has hearing aids - he is 65 my mum mentioned my issues to him today and he had a ctoma on the attic of his canal about 15 years ago and has ongoing issues. Does this think run on families I wonder. Anyone else has any experience...

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