Posted , 11 users are following.
In March I made a post on this talking of how fearful I was for I had been diagnosed with Cholesteatoma, reading over it brought back alot of memories of how scared I really was and how at the age of 14 I was left uneducated on my diagnosis dismissed as being merely a kid who was likely to not understand. Consequently I took it upon myself to reseach and find out what was happening to my body, finally finding this website. I had my surgery on June the 24th and I write this with a fully fuctioning face and many brilliant memories since the surgery. I wish to reach out to anyone who has been affected by Cholesteatoma as I couldn't be more grateful that my surgery was a success. I'm 15 years old yet what I went through made me grow up. Googling what Cholesteatoma was and seeinf 'death rate' come up as one of the suggested options I don't think I'd ever been so afraid in my life. I was diagnosed on January the 24th and 5 months later I had the surgery. Those 5 months were the worst months of my life as I had the word Cholesteatoma on my mind 24/7. Finding this website helped me immensely as I began to not feel quite so alone and I would love to give back. I may not have all the scientific information on the surgery but I'd love to share my experience in hope it can help people the way I myself was helped.
3 likes, 37 replies