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im new to this forum, so thank you for listening to my story. ive always had ear troubles, i had grommets as a child and then years ago my hearing in my left ear got worse, and i was told i had a massive hole in my eardrum, i was told with surgery they could get my hearing back, so 2 days ago i went in for a tympanoplasty with an ossiculoplasty to repair the hole and also put in a prosthetic earbone to replace mine that had eroded. however when i woke from the surgery, my surgeon told me that he could only repair the hole as he found that i had cholesteatoma in my ear and he couldnt complete the full procedure. he told me i will have to have another surgery in 9 months to remove the cholesteatoma growth and then simply walked off before i could ask questions. im only 21 years old and now im left with 2 weeks off work to worry and recover from my ear surgery whilst trying not to worry about the complications from this disease. ive read online that it can spread to my brain and kill me, and im just getting more and more depressed. my follow up appointment isnt for another 3 weeks so i cant even ask my surgeon anything until then. any advice would be greatly appreciated, i feel so scared and alone with this.
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