Bad case of cholesteatoma....anyone relate?

Posted , 3 users are following.

I had a cholesteatoma in my right ear which had grown through the tegmen bone and had holes on the lining of my brain which theu repaired. prior to this operation i went to the a&e with vertigo, numb arm and my brain just wasn't working so knew something was wrong. from the mri they could see i had one in left ear as well so operated on that 3 months later. This had completely stripped the tegmen bone and my brain was hanging down so had to have everything reconstructed. I have never felt so ill in my life to the point i felt i might not make it. im worried that the work to reconstruct everything may not be enough and something will happen to my brain, i just don't feel safe anymore. have anyone else had a cholesteatoma that have grown to the brain?

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  • Posted

    I know I am replying to a very old post. But wow that is crazy!

    I can't imagine what you must of went through. I only know how I feel about this and its not a nice place to be in with or without the dreaded surgery. I hope you feel better and your life significantly improved and you are over the very worse of it all.



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