1. Community
  2. Ears, nose, throat and mouth
  3. Cholesteatoma

Long Term care and solutions for side effects after surgery for Cholesteatoma

Posted , 3 users are following.

j36023
j36023

I just wanted to discuss here with those who have had surgery for Cholesteatoma. I had a surgery 11 years ago, the surgery went well but after a few years, my ear started to form build up from dead skin, water, etc very quickly. My doctor told me, usually after removing this cholesteatoma I will need long-term care for cleaning and microsuction. So, yes, I have to go to my specialist every 4 to 5 months, sometimes earlier, because the build up and fool odour that comes out of my ear is really annoying. Is this the only way to deal with this? My specialist doesn't tell me about any other solution or whatsoever, I guess is better for him for me having to go there every 4 months for a visit. But what it bothers the most to me is the fool smell. How is everyone else dealing with this?

0 likes, 2 replies

2 Replies

  • rachel46861
    rachel46861 j36023

    Posted

    Hi!  I've had 3 surgeries for c-toma in my right ear over the past 15 years.  I am now going through it all over again for my left ear now, unfortunately.  I visit my ENT every 6 months for a clean out, and from what I understand that is the only long term solution for people like us.  Have you asked him for any eardrops to help with the foul smell and discharge?  My ENT usually gives me a script for Floxin Otic.  

  • karenM29
    karenM29 j36023

    Posted

    hi i am new to this site, looking for help and advice as i to had a cholesteatoma remove three years ago, getting fed up with the smelly constant discharge even though i am following all the correct procedures ie vaseline coted cotton wool when washing hair etc. it has started happening more frequently and is effecting my work. (unfortunately i work in a call center) i am going back every four months to get it cleaned now. i have on my last visit one month ago had it cortisoned still not stopped it as i have more discharge again and i have just been given more ciloxan drops from my doctor. its beginning to depress me now, especially as if it carries on i will have to finish work. sorry to hear you have been having the issues for so long. no one has offered me another ct scan should i ask for one ?

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.