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Hi, I have just been diagnosed with a Cholesteatoma.
I have complained about a full feeling in my ear for "years" but never really checked into it. I have complained off and on of the feeling of water in my ear and the Doctor just would give me antibiotics to clear it up and this process has been going on for years as well but the fullness never left.
Last year I had to fly to pick up my Sons car and bring it back home. It was the most miserable flight I have ever had. My ears hurt so bad and when I got back home I "again" went to the Doctor and got antibiotics for another ear infection. Shortly after that I started hearing crickets in my left ear that would never leave. I tolerated it and never got it checked because it just wasn't bothering me all that much but then the "thunder storms" moved in and I started getting lightening strikes of pain in my ear and they got bad enough that I was using a rice pack on my ear almost all day to make it feel better. I went to an ENT and after a lot of testing, he was going to put a tube in my ear. He was in the process of preparing to put the tube in and pulled back a piece of crust over my ear and all of the debris fell out. That is when he diagnosed me with a Cholesteatoma.
I have to go to another specialist next week. My ENT said that this is not something that just happened in the last 6 months, he said it has been there for a while.
Now after reading several posts I am really worried.
I have never experienced any discharge with odor.
I am wondering if anyone else experienced the pain and the ringing "before" being diagnosed? I am thinking that maybe mine has progressed to something not so good.
What should I expect when I go see the ENT/Surgeon?
I have been experiencing many nasty headaches, but I have allergies and sinus issues and just figured it is from that. Now I am thinking that maybe I should really be concerned.
I hope that they "will" do a CT scan because I am pretty concerned now.
Can anyone offer me any advise or give me any kind of "positive" news?
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