1. Community
  2. Ears, nose, throat and mouth
  3. Cholesteatoma

Mastoidectomy, tynoplasty and chlosteteoma removal

Posted , 2 users are following.

jennifer38581
jennifer38581

hi everyone.

I had a mastoidectomy, chlosteteoma and tynoplasty done 10 months ago, it took 6 1/2 hours it was that bad. I have had reocurring infections in my ear and sinuses. my dr says they can't help except they have given me ear drops. i also have severe nerve damage due to the operation, which apparently only 5% of people get. anyway for months I've said I have pain in my mastoid bone, had an mri and chlosteteoma has not returned. i've had amitriptyline for over 2 months as the dr is convinced it is all my nerves. i still get pain in my throat and neck. has anyone ever experienced this?

0 likes, 1 reply

1 Reply

  • Michelle_86
    Michelle_86 jennifer38581

    Posted

    Hi my son has had to date 6 of these operations due to chronic colesteatoma. He lost all his hearing in the right ear after the first operation because it was so sever, it had also gone to the base of the brain too.

    He too has nerve damage, facial nerve damage and has trouble when eating hot and cold food.

    He has now had a complete obliteration with a blind sac closure using a live cell from the scalp so he no longer has a hole in his ear it has been completely closed up.

    He Has been under St thomas hospital in London under a professor who performed his 4th and 6th op and then he was referred To an international specialist at Ipswich hospital where he had his last operation to date.

    He often complains of pain running along the bottom of his jaw and down his neck on the side of surgery. He also has severe balance problems because they took out the vestibular balance nerve as that was also damaged. The ear drops are good the eye ones but for the ear we find r the strongest and usually they give a antibiotic acting drop and a steroid base one. The biggest mistake GPS especially make is giving oral antibiotics because they won't help the ear from infection.

    If you are still struggling then I strongly recommend you keep going back to the doctor who u r under and keep expressing you worries and problems... Only YOU know your own body.

    Also my son has recently has his adenoids removed because they were inflamed causing fluid behind his left (good ear) ear drum and constant blocked nose. Since having sinuses out he has been much much better.

    There is a balloon thing they can prescribe or you could buy in chemist that you have to blow this little special balloon up via your nose and this helps to keep the ear drum and its a good exercise.

    I do hope so. E of this information is useful to you. I am always happy to help in any way I can with my knowledge and advice.

    Kind rewards

    Michelle

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.