Ear pain for years
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I am a 20 year old college student. To get an idea of my history, starting at the age of 2 I had my first of many (13 to be exact) surgeries on my ear due to a cholesteatoma that occurred 4 times (the 4th being caught early enough to not require surgery due to my mastoidectomy). I have no middle ear bones and my ear drum was made out of a skin graph twice. And since about the age 12-13 I started to get a lot of chronic pain that my ENT and many others just say was due to nerve damage from my extensive surgeries but it has been nearly a decade later and they have given me no answers. I was given gabapentin and was on it for years but it didn’t seem like it did anything so I stopped taking it. I also had tried getting steroid shots into my ear from my ENT which just made my pain 100x worse. I have regular cleanings every 6-8 weeks which helps manage my infections but I am in pain constantly and I just really need to know what different options I have because my doctors have given me none and I can’t live in this pain anymore. Has anyone had any similar problems?
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