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I have had two overactive ‘episodes’; one back in 2015 and when I was in normal range I was told to come off my medication (which I think was a bit sudden). I started having hyper symptoms back in February 2018, it took 6 weeks for any GP to refer me back to the hospital consultant (they didn’t believe I had the correct symptoms).
I have been back to the thyroid consultant today and he has said that my thyroid levels are now in range. He’s said as this is the second time I’ve had it, I have more of a chance of going hyper again if I come off carbimazole so he is going to gradually lower the dosage from what it is now (20mg) to 5mg and be kept on that until my son is old enough so that I can have the RAI. My son is 5 and he said I could have the RAI a when he is 8!!!
I did ask if there was a possibility I could just eventually come off carbimazole without further treatment. Do I wait? Should I consider asking him for a thyroidectomy? Do I change my diet to see if this makes a difference? I have also had problems with my liver due to a mix of high carbimazole dose and a infection. I see the consultant in 2 months so I have some time to consider what I’d like to ask him next. What would you do in my situation? What experiences have you had?
Just in advance: I don't have a copy of my thyroid function levels.
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