Advice please

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hi guys I'm 15 years old and I've been suffering for the past year. I've been to the doctors many of times and they keep sending me for tests and I recently had results back confirming I have vitamin D deficiency so I thought that all the pain I've been having is through that. My mother suffers with fibromyalgia and I'm very concerned I have it to! we've told the doctors this and they keep saying I'm too young to have fibromyalgia. I've been researching a lot into fibromyalgia and I've learnt a lot of things I didn't know before my main concern is that I have many of the symptoms. please if anyone one has gone through or is in a similar situation to me any advice would be much appreciated thank you X

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  • Posted

    Have you had your thyroid tested and if only by doctors sometimes the test does not come back accurate so a specialist can do more indepth tests.. There is a disease called Hashimoto's that has all the symptoms of Fibromyalgia..

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  • Posted

    Hi sweetie. Sorry to hear you are having symptoms similar to your mum. Well Ellie, one good thing is that your blood tests mostly have come back normal. I personally don't believe that you are too young to have FM. My daughter has FM as well and she was quite young when the symptoms began. Don't worry too much sweetie. You can always see another doctor and request to see a Rheumatologist. But even if you have FM Ellie, you can learn to manage it. So don't stress about it. Ask mom for some advice. I would suggest that you could take a magnesium supplement which can help with pain and muscle spasms. I myself have been taking a liquid mineral supplement and vitamin D. A multivitamin can be good as well. Many can fine tune supplements for their particular situation. Eating a healthy diet is also very important and I know that that is hard at 15. Try your best to stay away from the junk food sweetie. Sugar is not good for us. Junk food has empty calories with no real nutrition. So start liking veggies and fruit and chicken and fish. Some red meat for iron and B 12. Read up on nutrition Ellie. I have had FM for over 35 years now and I have always approached it basically holistically. Which means through good eating and a bit of exercise and homeopathy etc. Epsom salts in a very warm bath and soaking for muscle aches can help too. I also go to see a Remedial Massage therapist. I take pain meds only when I have a migraine. Some of the ladies could help you more regarding medication that may help you. Another good advice I could give you Ellie, is not to compare yourself with other teens. We do have that tendancy when we are young. Even as adults we often compare ourselves to others. That is just not healthy or reasonable because everyone's situation is different. And you know Ellie, even some of your friends that seem healthy, will develop some health problems later on themselves. No one is immune today. So you just focus on your own particular situation and do all you can to keep yourself healthy and functional. Worry and stress is an enemy to Fibromyalgia sweetie. It can trigger all kinds of symptoms. So try to deal with worry and stress in a productive way. There are good books on anxiety to give you some real helpful hints on controlling this. And try to keep real friends around you as a network. Not those who drain you or make you feel inferior. Real friends will support and build you up sweetie. So take care of yourself and take charge of your own health and welfare. Big hugs. Maggie xx

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    • Posted

      Thank you so much! You've been a lot of help I really appreciate it. How long was it after your daughter had the symptoms did she get diagnosed if you don't mind me asking?I just feel like the doctors ain't listening to me when I'm telling them things xx

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    • Posted

      It was many years Ellie. I think she was having many symptoms in her twenties but just got diagnosed in her 30s. So don't give up. Living according to your limitations can help you cope. Never despair. xx

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    • Posted

      It takes an awful long time doesn't it! The only reason I'm going back and fourth the doctors all the time is because I'm missing out in school because I'm always ill especially in the mornings. Some days I can't even hold a pen for to long because my hand locks and I have to stop writing for a while, it's really frustrating!xx

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    • Posted

      Have you been checked for Lupus as well Ellie? Or Lyme disease depending on where you live? Just to rule out other conditions. I know, it is very frustrating. But one way or another, if you do your best to keep yourself healthy through your diet and lowering stress levels; you will still benefit either way. Attitude is very important with any type of autoimmune disorder or FM or any other condition. Getting frustrated will not change things sweetie. It will only take more of your energy. Acceptance is very crucial in dealing day to day. So accept that you have certain energy limitations and aches and pains that are unpredictable. Just deal with one thing at a time. Find some peace within yourself and enjoy the better moments. At least you can still walk and you have not lost any of your limbs. You still have sight and touch and so many other blessings that we often just take for granted Ellie. Some have much more difficult challenges every day than we could ever imagine. So try to focus on what you Can do sweetie, not what you can't. xxx

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