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Advice please

Posted , 3 users are following.

ashley72
ashley72

Hi

I first went to the GP in November last year with GI problems , mainly diarreha and constipation, fowel smelling faeces, abdominal pain/cramps and extremely tired. After several blood tests it was confirmed I had really low iron and folate levels and was given tablets to review in couple of months.

With my symptoms persisting further blood tests where done in january to test for celiac disease ( family history) and my iron levels (low levels but not anaemic) but they hadn't risen much so I was told I had to take iron and folate for 9 months and my GI problems where put down to low iron levels.

However after still having symptoms I called a few days ago to check if my celiac results had come back, and to my surprise it was negative . I called to arrange an appointment with the GP as that morning I had blood for my anus ( bright red) and still had my ongoing symptoms from November. I was seen by the GP less then one hour later and had a rectal exam to confirm I did not have anal fissures or haemorrhoids.

He said if it was IBS I wouldn't have bleeding and thought best to refer me for colonoscopy. After discussing my family history with bowel cancer he looked concerned which made me also. I am now having bleeding with very little bowel movement and im only 28 .

1 like, 15 replies

15 Replies

  • amy71414
    amy71414 ashley72

    Posted

    Hey! i have had very similar symptoms also from November, my specialist also refered me for a colonoscopy/endoscopy and i am suppose to have that sometime in May. I also have a family history of Bowel cancer and cancer in general on my dads side which makes me worried also. i have just turned 21 and obviously its a bit worrying being so young! i was meant to have the colonoscopy and endoscopy next week but i had complications with the tonsillectomy i had last month and now i have to have it again! because he didnt do it properly!! in the mean time i have tried to eat healthier and i have decided to start a gluten free dieat just to see what happens, i guess it cant hurt right. I hope all goes well with you! please keep me updated! is your colonoscopy booked soon ? 
  • mel15596
    mel15596 ashley72

    Posted

    I've been going through similar symptoms going since September last year it started with rectal bleeding and change in stool consistency and diffuse abdominal pain then large amount of mucus started my colony isn't due until May I'm so nervous that I have colon cancer like you I'm only young (27) with a 6 year old child I'm so worried I will be leaving her without a mum 😭

    • amy71414
      amy71414 mel15596

      Posted

      Please let me know how you go as mine will also be in May 
    • ashley72
      ashley72 mel15596

      Posted

      Hi Mel

      Have you had your appointment yet ? Let me know how you get on

    • amy71414
      amy71414 ashley72

      Posted

      Hey! so after my horrible luck with my 2 tonsillectomies in the last 2 months! yes i said 2!!! i am due to have my colonoscopy and endoscopy on the 9th so ill let you know how i go still having symptoms i think its possible i may have celiac disease but im not sure i have done a gluten free diet and i did feel better although i still have the black and red specs in my stool so i dont know what it could be i just cant wait till its over becuase its always at the back of my head and i cant stop thinking about it! how have you been ? 
    • ashley72
      ashley72 amy71414

      Posted

      Yes let me know how you get on . I first thought I had celiac but this has been ruled out. Im still having symptoms and constantly have it at the back of my mind also . I still have few months to wait x
    • amy71414
      amy71414 ashley72

      Posted

      thanks for your reply are you getting both colonoscopy and endoscopy ?
    • amy71414
      amy71414 ashley72

      Posted

      so its a long story so sorry for the paragraph but in June last year my lymph nodes on my neck came up out of no where and it was very painful so i went to my GP and i had anti biotics and not long after i had a BM which had blood in it and basically turned the water a pale pink colour. I was so scared and freaked out but it only happened that one time and it was the least of my worries at the time because the doctors thought i had Lymphoma i was sent to an Oncologist which was incredibly scary! but he didnt seem to worried so that was a massive relief although i still had alot of symptoms and at the time i also had glandular fever for the second time which is also apparently rare. So within the next month i started to get numbness and tingling in my arms and legs which over a week got so bad that i ended up being so weak that i could barely move and couldnt walk without assistance. this lasted about a month and was one of the hardest things ive ever been through! i was in hospital for about a week they ran some tests which came back clear for example a 2hr MRI on my brain and full spinal and a lumbar puncture. so eventually i had an appointment with a Neurologist as i also have Photosensitive Epilepsy and was taking Epilim at the time and had been for the past 10yrs in that appointent she did a nerve conduction test which showed that i was weak and we decided that i would change my epilepsy medication to Lamictal which i am currently on. about a week or so after i changed my medication i got better and was almost back to normal with walking and moving again so wether that was a coincidence or not im not intirely sure. then in november i had an anal fissure which then was bleeding alot for 3 days in a row and a couple other days. and then my Tonsil issue happened it had been up for about 9 months prior to that but obviously it was on the bottom of my list of things i needed to get checked out so over the course of that i had ALOT of antibiots and the strongest ones you can get over the counter which did not work. During that time my BM started to change being colour shape size and smell. obviously i was worried again especially after finding out my pop has terminal bowel cancer. i emailed my specialist as obvously its an embarresing thing to talk about and he said wait a couple weeks as it might be from the anti biotics but i just asked for the referall anyway because i new something wasnt right. So i wouldve had it earlier like i said but i had my tonsils removed in February and booked my colonoscopy and endoscopy for the beginning of April but instead of this happeneing my surgeon decided to leave to much tissue in there and they grew back 3 weeks later !! i was so angry and upset the pain was unbearable so i had them removed for a second time in April instead of the other one. so now i am booked to have both on the 9th also i got hemmerhoids from the surgery because the painkilers stop you from being able to go to the toilet and i didnt even think about it till it got to like a week later and realised i hadnt had a BM for that long so you could imagine how bad it was when it came out this happened both times for both surgeries you think i wouldve learnt the first time! but literally was the WORST thing ever! so my fingers are crossed that its something simple although i just have that feeling like i know somethings not right and even now im still having issues with my throat i just feel like its never ending and im struggling a little its been the toughest year of my life!! 
    • ashley72
      ashley72 amy71414

      Posted

      Aww that sound horrendous . I hope all goes well for you then fingers crossed . Iv had blood with BM twice which have both lasted several days. Been checked for anal fissures and haemorroids both negative and doctors doesn't seem to think it's IBS and celiac was negative also resulting in me over thinking it. I have very low iron and ferritin levels which is a sign of inflammation in the body plus my antibodies are pretty high since the end of last year

    • amy71414
      amy71414 ashley72

      Posted

      Thank you! I also had low iron last month and I had to get the injections for it I really hope it's nothing serious !!!

    • mel15596
      mel15596 ashley72

      Posted

      Hi Ashley yes I had mine of the 5th of my I had several biopsies done still awaiting the results I get them on the 13th June he did say after the procedure was done that I didn't have cancer so I'm happy with that, my bleeding had subsides for 2 weeks but it's now back and worse than before, I thought I was getting better but it appears not 😐

    • ashley72
      ashley72 mel15596

      Posted

      That's positive he was able to say definitely not cancer. Why did he take biopsys and what where they from ? How often do you bleed ? X

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