Posted , 4 users are following.
I have only recently been diagnosed with HH.... ferritin 697... started vensection with 2 units a week x 3 weeks... but then haeomagloblin dropped to under 10..... I feel completely wiped out... find hard to muster any get up & go..exercise is so difficult.... would so appreciate any advice...go stopped vensection for min 6 weeks
0 likes, 5 replies
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johan55235 valo44
Posted
Your haemoglobin is too low .I suggest you stop until it is over 13. You have become anemic which has it's own dangers.
will63301 valo44
Posted
We’re you suffering from fatigue before you started vensection? How high was your iron when you felt this way?
I have been recently diagnosed and I have suffered chronic fatigue for a long time. I was hopeful that, as my iron went down, that I would gain energy and be less tired. It is disappointing to hear you say that the treatment is making you more fatigued not better.
valo44 will63301
Posted
In honesty I never noticed too much...everyone's tired these days...but after 2/3 venesections I noticed a big difference like an alertness..energy i didn't notice missing... but in my case I think too much too soon... lesson learned 2 units a week was to much ... maybe 1 every 2 weeks until I get to maintenance...learning curves for us newbies
johan55235 valo44
Posted
sheryl37154 valo44
Posted
If you have reduced your dietary intake of foods with iron in it - stop. Assuming this is the problem, keep eating green veggies, red meat if you like it, and any other natural food with natural iron in it. Just avoid the man made fortified foods and iron supplements.
Reducing your dietary intake causes a reduction in haemoglobin and therefore causes problems which prevents you having your necessary venesections.
If not, try having some Vit C with meals to increase your iron intake to get your haemoglobin back up.
Having said that 2 x vx per week is excessive. It is usually done for those with well over 1000, like even 4000, and yours was only 697. I was >999 and once a week was plenty. That is most likely your problem and you need to talk to your haematologist/dr, whoever ordered this frequency.
Good luck with it.