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Advice please from others who may have been through this

Posted , 4 users are following.

Flare1
Flare1

Hi, I've had rectal bleeding and diarrhorea since Jan. My GP saw a haemorrhoid so referred me to colorectal. By the time I saw the Consultant I was much worse with bleeding, mucous, pus and constant toilet trips. The Consultant told me it was not down to piles but couldn't see anything on Sigmoidoscopy. I had to wait a few more weeks for colonoscopy and was then diagnosed with indeterminate colitis. I was prescribed asacol enemas and told I'd get a Consultant appointment when the results of the biopsies were back. The Asacol made my bleeding so much worse and I rang the Consultant's Secretary and she spoke to him and he told me to stop the enemas. It's now 2 weeks later and so I rang the Secretary back to see what I should do as I still have bad diarrohea and bleeding and I'm now on no treatment. She told me the results of my biopsy show probable ulcerative colitis but because my Consultant is Colorectal he may not see me and refer me to Gastroenterology instead. I feel in limbo. The Secretary told me she'll look into it but is not at work next week. I wonder if anyone could advise me as to any steps I could take to try and get some treatment/a Consultant appointment? I've got an appointment with my GP in 5 days to see if she can help, although last time I saw her she admitted she has no Gastro experience. I'm still managing to go to work but feel very tired and fed up!

Any tips?

Thanks for reading!

0 likes, 6 replies

6 Replies

  • ehsan18513
    ehsan18513 Flare1

    Posted

    Hi

      Can I ask if you have been taking anti biotics lately? Are you lactose intoleant?

     

    • Flare1
      Flare1 ehsan18513

      Posted

      Hi there,

      I've not taken any anti-biotics for about 7 years and I am not aware if I'm lactose intolerant, does that mean you cannot tolerate dairy? I think I would know if I was, would I?!!

      Thanks

    • ehsan18513
      ehsan18513 Flare1

      Posted

      Hi

        Mine flared up after a flu apedemic. Antibiotics, destroy the good and the bad bacteria in the guts. Once the bad bacteria take over after the treatment, the flare up starts. I am also lactose intoerant, which does not help. My speialist perscribed Mazavant, which worked within a week. I am back to normal now with no medications.

  • stephanie71259
    stephanie71259 Flare1

    Posted

    I can relate to some of your experiences. A colonoscopy and biopsies gave me a diagnosis of UC and diverticular. The sig showed absolutely nothing even after a flare. I've been told the same thing that I might have indeterminate colitis. Sometimes in a flare I have a very high inflammation marker and sometimes during a flare I don't. I am seeing a gastro consultant now. Sometimes I have diarrohea with bleeding. Steroids seem to knowck that on the head. I also take Pentasa. Sometimes I am constipated so I treat myself for that. Sometimes the surgery prescribe anti biotics. I did read somewhere that in Japan that is a course of action they take for UC.

    What I am trying to say is that in my year and a bit long experience there's no easy answers. GP's often don't know and go by tests and ignore symptoms. The hospital consultant hedges his bets thus the indertminate diagnosis. I've got written on my notes that it might even be Crohns. Goodness knows what it all means. I feel the same as you so you're not alone. Let us hope we get a definate diagnosis and help with this rotten condition! 

    • Flare1
      Flare1 stephanie71259

      Posted

      Thank you so much for your comments, I work for the NHS so I know how (even with the best will in the world from the staff) it can take so long waiting for results, then Drs to comment on them, more tests, wait for more results & Drs comments etc but I'm just a little frustrated with the waits. I've lost weight through all this diarrohea and down to 9 stone now so could really do with some help to knock it on the head!!

  • vijay_14203
    vijay_14203 Flare1

    Posted

    Hi

    Suggest you should consult another GP with UC experience. If they put u on right medication remission can be achieved soon with some diet changes.

    Also you need a GI specialist so don't hold back

    get proper consultation and be strong and positive and don't let the flar take over , medication can control it. Good luck

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