Advice please - which option should I choose?

Posted , 13 users are following.

I am 58 years old, few years ago I had massive amounts of blood in urine and semen as well as typical urinary problems associated with BPH. I had two cystoscopy, numerous scans, four months taking duodart with no improvement. The second urologist told me that I have a friable vascularized prostate which is bleeding.

My prostate was only 40cc in size. I entered a clinical trial and had a PAE done which was not successful. After six months I had another PAE which solved the urinary problems and rid me of any bleeding for two years. However, after just over 2 years the blood has returned in both urine and semen. There is only occasionally a very small amount sometimes at the beginning of the urine stream but a reasonably significant amount always in the semen. The interventional radiologist told me that this was likely as the body would adapt and new branches would grow to provide a blood source for the prostate. So now I am left with a choice. Put up with it a and always wear a condom forever or have a procedure for example laser which will possibly rid me of the blood but give me RE. Which is the least worst option? If I do decide on a procedure to be done then which type of procedure or laser would have the lowest chance of RE and ED? I have been advised that a third PAE is not a safe option. Your opinions and advice would be appreciated.

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  • Posted

    Have you asked your urologist about whether it might be possible to determine where in the prostate the bleeding is happening? It would seem as though that is possible if the PAE procedure was accurately done to eliminate bleeding for a couple of years.

    My first thought when I read your post is to try the Rezum procedure because I've had it done and it was, at least for me, a simple procedure. It also has very ittle chance of RE or ED. The steam from the Rezum device may be able to, if accurately administered, kill off the area of the prostate where the bleeding is occurring. 

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  • Posted

    In itself it sounds as if the blood in your semen is a cosmetic issue. Is there any health risk for you or your partner(s)? I’d need more info from you to know what options to explore/ suggest. Eg Do you have a partner or partners? Do you or they want the option of you fathering a(nother) child? How would always using condoms affect your experience of sex? Have you talked to any partner about how they view the issue? 
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  • Posted

    You have a hard choice.  I do not think you should have any procedure.  You do not know if it is going to work or not and any procedure you have comes with it's own list of side effects.  Anything that cut the prostate will cause retro ejaculation It may also cause you erection problems, leaking where you will have to wear a pad all the time.  I think you should leave well enough alone.  If it is only a little blood I would not worry about it.  I read a article about a guy had a little blood in his sperm after sex and it did not hurt his wife.  She ended up having a baby.  I do not think it will harm your partner Or you just ware a condom and be able to have sex  It is up to you.  Ken 

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  • Posted

    Embolization can be used for bleeding so I can see how the PAE helped for awhile.  I would assume after two PAEs your prostate is shrunk down considerably.  I would look at any meds or supplements that may contribute to thinning of the blood,  I'm wondering if there is a vascular specialist (they do exist) that may be helpful.  Whether their specialty extends into prostate bleeding issues, I don't know.  There is a Society for Vascular Surgery.

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    • Posted

      I wonder if the vascular specialist would be able to tell where they are and cauterize them.  A few years ago when I had my Urolift repair and went to soon on my blood thinners.  I had blood clogs on my prostate and that is what they did.  That stop the bleeding  Ken   
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    • Posted

      Maybe if you got a uro that actually wanted to help you. Last time I bled I called the uro and requested a cystoscopy right away. I figured its the only way we'd narrow down where the blood was coming from/ He said he didn't think it was necessary and he'd do one the next appointment. I did not have another cystoscopy. Maybe a ct scan would show sourse of blood but obviously you need a doctor thats really wants to get to the bottom of your problem.

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  • Posted

    Have you had an MRI scan to give your urologist / vascular surgeon (VS) a picture of where problem may be.  My VS told me on Monday that the initial slight blood colouring of seminal fluid which I reported was a new one on him though the "literature" acknowledged it could occur.  It soon stopped (op was 2 months ago); I had wondered whether during the 2 hours of the op one of the small tubes finding their way along my arteries might have damaged something.  I am happy now it has not.  If your bleeding continues and is heavy, I feel further investigation is needed

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  • Posted

    I had same symptoms as you. Literally peeing blood and very large clots. At least you got an answer from your doctor. After a couple of ct scans and a cystoscopy I was told I needed TURP. I was never told about the friable vascularized prostate condition you have. I did not have TURP. I  went on finasteride. After 1 year of on and off bleeding it stopped. I'm guessing the finasteride shrunk my prostate enough to distroy the area that was bleeding. Its been almost 2 years since the last time I peed blood.

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  • Posted

    Hi, first let me say we all feel for you and have you considered avoiding retro ejaculation by means of FLA with Dr K in Houston Texas even just to chat with him to give you a fresh perspective will be well worth your while, in my case I had an enlarged median lobe and wanted to avoid all the side affects of aggressive surgery for my bph today I am free of the median lobe blockage and have no known side affects from FLA from my point of view it is nothing less than brilliant along with no pain during or after and no issues at all all the best Brian.
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  • Posted

    I wish I could help you. Doctors won't give you the full picture. I turned down the urolift and will try flowmax.

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    • Posted

      Richard.  If you are in the UK and you consult first your GP, he/she can advise you only the basis of their knowledge.  If they suspect (based on a PSA test) a prostate cancer or (based on frequent peeing) an enlarged prostate, they may refer you to a urologist for detailed examination.  How long you have to wait for such a consultation may depend on your local health trust.  Many on this bulletin board have consulted a urologist privately by agreeing to pay privately (which I have done),  Their range of knowledge should be wider but even then you may not get a full range of options (with associated benefits and risks).  I have learned much more of this from reading this bulletin board
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    • Posted

      I think maybe he needs to get another doctor.  All doctor should be willing to do anything to help there patients.  I am going through prostatitis again.  It is better then stones like the test showed.  I had a scope done Wednesday in the office.  Watching him pull it out and telling be that my bladder was fine no stones my prostate is open and my stricture is better then it was last year.  He put me through to fine the cause of my problem.  Prostatitis is what I have to deal with now.  I will be on Cispro 500 mg 2 X a day for 28 day's if it works it works if not I will try something else.  My doctor is not pushing me to have any procedure done because it will not help.  I am also on Vesicare 10 mg for my bladder.  This pill helps to relax the bladder.  Men please make sure that the prostate is your problem.  It could be your bladder or something else.  It is not all way your prostate.  I have only been on Cispro for a few days and I do feel better went a few times today no forcing. Please all get a second opinion it will bring new light into your problem.  God bless you all  Ken  

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    • Posted

      Hi Ken, jay111 recently posted a thread on how he cured his prostatitis with alternative medicine, something called MMS. You may be interested. Hank
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