Advice please - which option should I choose?
Posted , 13 users are following.
I am 58 years old, few years ago I had massive amounts of blood in urine and semen as well as typical urinary problems associated with BPH. I had two cystoscopy, numerous scans, four months taking duodart with no improvement. The second urologist told me that I have a friable vascularized prostate which is bleeding.
My prostate was only 40cc in size. I entered a clinical trial and had a PAE done which was not successful. After six months I had another PAE which solved the urinary problems and rid me of any bleeding for two years. However, after just over 2 years the blood has returned in both urine and semen. There is only occasionally a very small amount sometimes at the beginning of the urine stream but a reasonably significant amount always in the semen. The interventional radiologist told me that this was likely as the body would adapt and new branches would grow to provide a blood source for the prostate. So now I am left with a choice. Put up with it a and always wear a condom forever or have a procedure for example laser which will possibly rid me of the blood but give me RE. Which is the least worst option? If I do decide on a procedure to be done then which type of procedure or laser would have the lowest chance of REand ED? I have been advised that a third PAE is not a safe option. Your opinions and advice would be appreciated.
0 likes, 19 replies
thomas77847 exwhyzed
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I don't know what to tell u.
ken19524 exwhyzed
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Have you asked your urologist about whether it might be possible to determine where in the prostate the bleeding is happening? It would seem as though that is possible if the PAE procedure was accurately done to eliminate bleeding for a couple of years.
My first thought when I read your post is to try the Rezum procedure because I've had it done and it was, at least for me, a simple procedure. It also has very ittle chance of RE or ED. The steam from the Rezum device may be able to, if accurately administered, kill off the area of the prostate where the bleeding is occurring.
Pepasan exwhyzed
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kenneth1955 exwhyzed
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You have a hard choice. I do not think you should have any procedure. You do not know if it is going to work or not and any procedure you have comes with it's own list of side effects. Anything that cut the prostate will cause retro ejaculation It may also cause you erection problems, leaking where you will have to wear a pad all the time. I think you should leave well enough alone. If it is only a little blood I would not worry about it. I read a article about a guy had a little blood in his sperm after sex and it did not hurt his wife. She ended up having a baby. I do not think it will harm your partner Or you just ware a condom and be able to have sex It is up to you. Ken
hank1953 exwhyzed
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alanatcroydon hank1953
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hank1953 alanatcroydon
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Camster exwhyzed
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Embolization can be used for bleeding so I can see how the PAE helped for awhile. I would assume after two PAEs your prostate is shrunk down considerably. I would look at any meds or supplements that may contribute to thinning of the blood, I'm wondering if there is a vascular specialist (they do exist) that may be helpful. Whether their specialty extends into prostate bleeding issues, I don't know. There is a Society for Vascular Surgery.
kenneth1955 Camster
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uncklefester kenneth1955
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Maybe if you got a uro that actually wanted to help you. Last time I bled I called the uro and requested a cystoscopy right away. I figured its the only way we'd narrow down where the blood was coming from/ He said he didn't think it was necessary and he'd do one the next appointment. I did not have another cystoscopy. Maybe a ct scan would show sourse of blood but obviously you need a doctor thats really wants to get to the bottom of your problem.
alanatcroydon exwhyzed
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Have you had an MRI scan to give your urologist / vascular surgeon (VS) a picture of where problem may be. My VS told me on Monday that the initial slight blood colouring of seminal fluid which I reported was a new one on him though the "literature" acknowledged it could occur. It soon stopped (op was 2 months ago); I had wondered whether during the 2 hours of the op one of the small tubes finding their way along my arteries might have damaged something. I am happy now it has not. If your bleeding continues and is heavy, I feel further investigation is needed
uncklefester exwhyzed
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I had same symptoms as you. Literally peeing blood and very large clots. At least you got an answer from your doctor. After a couple of ct scans and a cystoscopy I was told I needed TURP. I was never told about the friable vascularized prostate condition you have. I did not have TURP. I went on finasteride. After 1 year of on and off bleeding it stopped. I'm guessing the finasteride shrunk my prostate enough to distroy the area that was bleeding. Its been almost 2 years since the last time I peed blood.
brian34488 exwhyzed
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lester19220 exwhyzed
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richard25210 exwhyzed
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I wish I could help you. Doctors won't give you the full picture. I turned down the urolift and will try flowmax.
alanatcroydon richard25210
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kenneth1955 alanatcroydon
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I think maybe he needs to get another doctor. All doctor should be willing to do anything to help there patients. I am going through prostatitis again. It is better then stones like the test showed. I had a scope done Wednesday in the office. Watching him pull it out and telling be that my bladder was fine no stones my prostate is open and my stricture is better then it was last year. He put me through to fine the cause of my problem. Prostatitis is what I have to deal with now. I will be on Cispro 500 mg 2 X a day for 28 day's if it works it works if not I will try something else. My doctor is not pushing me to have any procedure done because it will not help. I am also on Vesicare 10 mg for my bladder. This pill helps to relax the bladder. Men please make sure that the prostate is your problem. It could be your bladder or something else. It is not all way your prostate. I have only been on Cispro for a few days and I do feel better went a few times today no forcing. Please all get a second opinion it will bring new light into your problem. God bless you all Ken
hank1953 kenneth1955
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kenneth1955 hank1953
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