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Advice pls , just started on Clonazepam

Posted , 7 users are following.

Tezes
Tezes

Just been prescribed clonazepam by a neurologist who specialises in movement disorders. I was told I have a rare type of dystonia with dystonic tremor and myoclonus. 

The dosage of clonazepam is to be increased over next few weeks then she will add propanolol . So far apart from tiredness in the morning I haven't had any side effects. I take it before bed but the next increase is to add a tablet in the morning and then increase tablet strengths. 

Anyone else have this disorder and medication experience ?

I would be grateful for Any advice/pointers

thanks for reading

1 like, 33 replies

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  • michaelas1969
    michaelas1969 Tezes

    Posted

    I was diagnosed with cervical dystonia 6 months ago. I just had my 2nd round of botox a week ago and it is hell. I know the side effects will wear off soon, but can't wait to get through the next couple of days. Today my neurosurgeon started me on 3mg of Clonazepen a day. I'm hoping this works. However, I think the drug may have caused the dystonia along with a highly stressful nonstop work environment. My neurosurgeon thinks the dystonia is all hereditary. however, I took Clonazepen 3mg a day for anxiety starting 3 years ago and did an unsupervised stop of the medicine over a 2 week period - bad idea. That is when my first symptoms of dystonia appeared. I think that hard stop may have triggered it, but who knowa. I also had bad withdrawal symptoms so I know I didn't ween down slow enough. Ironically I'm going back on the Clonazepen to see if it helps. I'm in a situation where I'm willing to try anything to live a life. If it doesn't help in the next month I may try deep brain stimulation as I have heard this can be very effective. Anyone that uses Clonazepen needs to make sure they ween off it very carefully when the time comes as it can be its own monster. By the way, I'm glad I found this forum!

  • bianca76
    bianca76 Tezes

    Posted

    Hi Teze. I Have a genitic Movement disorder call Alcohol sensitive myoclonoc dystonia. My brother also has it. His started when he was a toddler. Mine started in my teenage years but I was in denial and tried to hide it until I got older and met my husband.

    my neurologist has put me on many medications some have made me suicidel especially Keppra. I'm been on clonazapam since day 1. But you can get addicted to this and also buid up an intolerance to it. I also take Zoloft and Gabapentin...but my neurologist wants add something next time as my symptoms are getting worse. I have botox injections in my shoulders and neck. Im a candiate for deep brain stimulation.

    best of luck

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